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Confusing Results From Enterolab

no-more-muffins

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no-more-muffins Apprentice
no-more-muffins
Posted

I just got back my test results from enterolab and I am shocked and really unsure about what to do. I was so sure I had a gluten problem.

So here are my results:

C) Egg, Yeast, and Soy Food Sensitivity Stool Panel

Fecal Anti-ovalbumin (chicken egg) IgA: 2 Units

Fecal Anti-saccharomyces cerevisiae (dietary yeast) IgA: 6 Units

Fecal Anti-soy IgA: 9 Units

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA: 6 Units

Cow's Milk Protein Sensitivity Stool Test

Fecal Anti-casein (cow's milk) IgA: 8 Units

I have had all the typical symptoms of gluten intolerance. Poor growth as a child, late puberty, nausea, stomach problems, frequent pooping, anxiety, depression, weight loss, fatigue, weakness, insomnia.

My blood and biopsy tests came back negative. I was so sure I have gluten intolerance. What do I do now? I have been eating gluten free for a month and have noticed feeling better. I have been sick for the last few days which I attribute to geting cc from taco bell.

My 21 month old daughter tested positive for gluten sensitivity (18 units).

I am beside myself. What do I do? I could really use some advice. I was hanging on to the gluten sensitivity thing because if that isn't my problem then I don't have anything else to try. There is nothing else I can do. I know I can make IgA because my blood test indicated that I could make IgA. Should I just keep eating gluten free and see? I had been gluten free for 3 weeks when I did the testing. Could I still have a wheat allergy and not be gluten sensitive? I don't know what to do.

HELP!

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you post your levels from the total IGA that might help. If you are on the low side that may be significant. If you are feeling better on the diet then I would keep it up, you are showing antibodies even though the levels are not extremely high.

no-more-muffins Apprentice
no-more-muffins
Posted
  • Author

My total IgA was 115. The reference range from the lab was 68-378. My ttG was 0. I don't know if that means much but the lady I talked to at enterolab said that it was possible that I didn't produce huge amounts of IgA and that I could be intolerant to gluten and still never make enough of the IgA to produce a positive result. She also said that she had never ever seen a ttG that was 0. I am wondering if my results are valid or if I am really weird. I guess it is possible (but rare) to have a sensitivity to another protein in wheat besides gluten. Like glutenin.

Has anyone had any similar experiences with this??? It is Soooo frustrating.

ang1e0251 Contributor
ang1e0251
Posted

Did you ask them what IGA number would be considered IGA deficient?

no-more-muffins Apprentice
no-more-muffins
Posted
  • Author
Did you ask them what IGA number would be considered IGA deficient?

I didn't ask them but I am assuming that they just follow the reference ranges that are given by the lab.

no-more-muffins Apprentice
no-more-muffins
Posted
  • Author

I have been reading in the "Healthier Without Wheat" book by Dr. Wangen and it has given me a new direction to look. He says:

"Gluten seems to be responsible for most reactions to wheat. It is also possible to have an allergic reaction to wheat without gluten being involved....With a non-gluten reaction to wheat, all gliadin, gluten and celiac testing will be negative. But tests that measure your reaction to whole wheat (rather than only to gluten) will be positive....This is not a traditional wheat allergy. It is really a chronic wheat allergy, equivalent to a gluten intolerance but to another component in the wheat....Some component of the grain other than gluten (gliaden) is the problem."

I am trying to see if I can find a place that does IgG testing for whole wheat or maybe the glutenin proteins. I think the lab that Dr. Wangen is associated with does that testing but I don't know yet how to go about it or whether it would really be worth it.

My hubby and I decided to get our other kids tested, at least the blood tests to start with. If those come back negative I think we'll move on to stool

I actually convinced my husband to get screened as well, even though he is sure he doesn't have it. I wanted to get him checked because he has been having abdominal cramping, looser stools, lots of headaches, neck pain, carpal tunal syndrome, acne, and weight gain, nasal congestions, "allergies", red eyes, heartburn, tired all the time, dark circles under his eyes.... (Sounds like symptoms to me...) I guess I just figure if we are already doing gluten free at home he might as well do it all the time.

Besides, if our baby has it, maybe she got it from HIM.

Bethinjapan Rookie
Bethinjapan
Posted

This is very interesting to me too. I'm waiting on results of blood tests and biopsy, but am fully expecting them to all come back normal (based on a few things--long story-- and a WHOLE lot of reading up on the issue). I've been gluten free for three days now, and my diarrhea turned off like a light switch (went gluten free for a few days a month or so ago as well with the same result), but I'll need to give it a try for much longer to see if other symptoms/systems are affected. Now I'm trying to figure out how in the world I'm going to keep this up if they tell me I'm fine!? And I was just SURE this was my problem!! :rolleyes:

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    • knitty kitty
      High DGP-A with normal IGA

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    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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