Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh On My Scalp

Lawspike

By Lawspike
in Dermatitis Herpetiformis

Recommended Posts

Lawspike Rookie
Lawspike
Posted

I was diagnosed 7/10/09 with Celiac. Almost immediately after, I got confirming biopsy for dh on my scalp, back and forehead. The back and forehead had JUST started, and thankfully - and is going away, FAST!

I can't remember in the last 15-20 years, or more, when I was not trying to control a *psoriasis* outbreak on my scalp. Special shampoos, creams and WEARING GLOVES - in order to avoid scratching my scalp and what skin was left that was actually not raw, bleeding or worse. July 22 was the beginning of my gluten/casein/soy/eggs free elimination.

I AM SHOCKED. This is the FIRST TIME in almost two decades that I have nothing - NOTHING - on my scalp, EXCEPT HAIR!!!!!!!!!!!!! NO LUMPS, no p%$#@# bumps, no bleeding under my nails when I scratch an itch (and I have barely even scratched an itch, at that, in nine days!

I AM SO ECSTATIC! I know I have a LOOOOOOOOONG way to go with the rest of my horrible Celiac ailments, due to YEARS of misdiagnoses... BUT, I HAD to share this! I am almost brought to tears, by the simple fact that my head is almost completely cleared up... And, I have not even noticed that brushing it does not even hurt!! :D

:D :D :D :D :D :D :D :D :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I'm so happy for you!! :D It's wonderful, isn't it, when we finally have an answer--and better still that there's something we can do about it.

ravenwoodglass Mentor
ravenwoodglass
Posted

I felt like jumping for joy too. I had the sores all over my face also and it is soooo wonderful when they are gone. I am so glad you had a quick response, I did to.

YoloGx Rookie
YoloGx
Posted

Yay for you!

Bea

rpinette Newbie
rpinette
Posted

Hi Lawspike,

I'd love to know where you're located. I'm looking for a Doctor in the LA area to determine if I too have DH as I've had the SAME symptoms on my scalp for over 2 years now & would LOVE to find out what it is!!

Thanks!!!

Lawspike Rookie
Lawspike
Posted
  • Author
Hi Lawspike,

I'd love to know where you're located. I'm looking for a Doctor in the LA area to determine if I too have DH as I've had the SAME symptoms on my scalp for over 2 years now & would LOVE to find out what it is!!

Thanks!!!

Hi! I am in TN. The armpit of the south! LOL.... was relocated for husband's career - from South Florida! I actually marched back into the HARVARD trained dermatologist I was seeing here - AFTER my Celiac biopsy and follow up bloodtests came back SCREAMING CELIAC... and DEMANDED he biopsy the scabby things... on my scalp. One way to tell if it is DH. SURE AS ANYTHING... it was! I wanted to knock him out. 20 creams and hundreds of dollars in visits... over 2.5 years...

tell your dermatologist you have Celiac and want a biopsy... they should have NO problem... they just scraped one of my things on the scalp... a few days I waited and WHALAH!

declan Newbie
declan
Posted
I was diagnosed 7/10/09 with Celiac. Almost immediately after, I got confirming biopsy for dh on my scalp, back and forehead. The back and forehead had JUST started, and thankfully - and is going away, FAST!

I can't remember in the last 15-20 years, or more, when I was not trying to control a *psoriasis* outbreak on my scalp. Special shampoos, creams and WEARING GLOVES - in order to avoid scratching my scalp and what skin was left that was actually not raw, bleeding or worse. July 22 was the beginning of my gluten/casein/soy/eggs free elimination.

I AM SHOCKED. This is the FIRST TIME in almost two decades that I have nothing - NOTHING - on my scalp, EXCEPT HAIR!!!!!!!!!!!!! NO LUMPS, no p%$#@# bumps, no bleeding under my nails when I scratch an itch (and I have barely even scratched an itch, at that, in nine days!

I AM SO ECSTATIC! I know I have a LOOOOOOOOONG way to go with the rest of my horrible Celiac ailments, due to YEARS of misdiagnoses... BUT, I HAD to share this! I am almost brought to tears, by the simple fact that my head is almost completely cleared up... And, I have not even noticed that brushing it does not even hurt!! :D

:D :D :D :D :D :D :D :D :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


declan Newbie
declan
Posted

I am so glad for you Very many of us know the joy of finding out what is wrong and finding a solution. Good luck.

declan

Bonnie Bryant Newbie
Bonnie Bryant
Posted

Hi There,

Congrats on finally having an answer and a solution to the problem. My name is Bonnie Bryant and I have a friend who just found out she has Celiac Disease and she needs special shampoo to keep her hair from drying out and body washes to keep her skin from getting irritated. I sell AVon and she asked me if they Have Gluten free Product like shampoo, body wash conditioner makeup. etc. And i have a list of all that they have that IS GLUTEN FREE. I was shocked myself asd i did just start working with Avon. They have an amaxing amount of Gluten Free Products. If you need any way of finding out let me know...my email is Bonnie@mulelighting.com and my Avon web siite is:

Open Original Shared Link

Thanks for sharing !!

Bonnie bryant

angieInCA Apprentice
angieInCA
Posted

Congrats! I can relate to your elation on realizing what has really been going on all these years and can now take control and regain your heath. Life is Good!

romi Newbie
romi
Posted

Could someone tell me if you can still get this dermatitis if you are already on a gluten free diet? I was diagnosed about 7 years ago, but have this dermatitis very bad in my scalp and forehead. What does anyone if anything use for this condition?

ravenwoodglass Mentor
ravenwoodglass
Posted
Could someone tell me if you can still get this dermatitis if you are already on a gluten free diet? I was diagnosed about 7 years ago, but have this dermatitis very bad in my scalp and forehead. What does anyone if anything use for this condition?

Have you checked whether your shampoos etc are safe? What has you dermatologist said about it and have they tested it and confirmed it is DH? If they have then gluten may be sneaking in somewhere.

YoloGx Rookie
YoloGx
Posted

You could also have some other allergen...or even candida overgrowth showing on your skin. But do check, maybe the other respondent is right and some gluten has snuck in somewhere or other...

Bea

  • 2 weeks later...
rpinette Newbie
rpinette
Posted
Hi! I am in TN. The armpit of the south! LOL.... was relocated for husband's career - from South Florida! I actually marched back into the HARVARD trained dermatologist I was seeing here - AFTER my Celiac biopsy and follow up bloodtests came back SCREAMING CELIAC... and DEMANDED he biopsy the scabby things... on my scalp. One way to tell if it is DH. SURE AS ANYTHING... it was! I wanted to knock him out. 20 creams and hundreds of dollars in visits... over 2.5 years...

tell your dermatologist you have Celiac and want a biopsy... they should have NO problem... they just scraped one of my things on the scalp... a few days I waited and WHALAH!

THANK YOU LAWSPIKE. I am going to ask my Dermatologist to do a biopsy & check for DH.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748
    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.