Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free No Prob...but...

LuvMoosic4life

Recommended Posts

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

SOOO.... I was thinking how nice it would be to just be GLUTEN INTOLERANT. I never knew these other foods (dairy, soy, corn, nightshades, carrots, melon,pork...what else??) were also causing me problems.

Small amounts of those foods SEEM to be O.K on occasion, but I'm really getting fed up with a limited diet of veggies, chicken and tuna. The other day I was craving chips and salsa REALLY bad...something I never crave. SO I went and got some gluten-free GMO free tortilla chips and organic salsa. I had a little bit for two days, and now I'm paying the price. I feel bloated/swollen all over and the worse part is the puffiness in my face (mostly around the sinuses.) I also seem to breakout from corn chips/nightshades (even small amounts)...although it really isnt pimples....more like red rash type of thing. I feel so disgusted I cant even look at my face in the mirror :( not to mention I get major brain fog/irritablilty, so sorry if I'm not making complete sense! ugh! there's just a list of symptoms....I dont feel liek going on...

It's wierd because sometimes these foods don't cause me a problem....but I think it's because I've been sneaking them in my diet more latley...mostly out of frustration with not being able to eat so many things...so i just say "well it wont bother me" but a little bit here and there adds up. And it seems like even though these foods make me feel like crap, I'll still reach for them thinking "well, I already don't feel good so why not." I never used to be like this before....this whole thing is making me realy depressed. I just wish I had a "NORMAL" body.

also curious: does anyone else get swelling from corn or nighshades?? its mostly like a water retention thing for me....but not quite....just wierd to describe....but enough to make me not want to wear my normal clothes...

thanks for letting me vent here....nobody understands me anymore lately!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

I don't swell like you are talking about, bloating yes. Tomatoes are a nightshade, did you know that? If I ate salsa, I would have diarrhea in 20 minutes flat. The only potato chips I eat are UTZ brand. They do not seem to bother me. Corn chips are out, any flavored potato chips are out.

I too eat chicken breast, veggies, occasionally tuna, or cod. No red meats, no nightshades, no grains. I'm not so sure all the other grains bother me themselves, but I do feel they are cross contaminated with gluten. Some people are super sensitive.

thanks for letting me vent here....nobody understands me anymore lately!!

This type of venting is always ok, we have to do it somewhere. Some of us do understand how you feel, totally understand.

ravenwoodglass Mentor
ravenwoodglass
Posted

(((((((((hugs))))))))))) Wish there was some way to help with this, I don't have as many intolerances as you do but the ones I do have make me frustrated too sometimes. The one I hate the most is soy. It drives me crazy that it is in sooooo much. Sometimes I just give in to wanting something as simple as a ranch dressing on a salad. Like you I suffer for it, say I won't do it again but then sure enough the craving gets to be too much and I slater another salad and suffer again for it. Funny I have no problem with craving gluten but my other intolerances I do slip up on. It is hard and it is just not fair. Lots of us do understand and sympathize.

Wolicki Enthusiast
Wolicki
Posted

I am curious if anyone else has issues with Maltode xtrin? I get stabbing stomach pains when I have something with it- even when the product says "gluten-free." Thanks

Janie

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
I am curious if anyone else has issues with Maltode xtrin? I get stabbing stomach pains when I have something with it- even when the product says "gluten-free." Thanks

Janie

it may be a corn intolerance...I believe they use corn starch for it sometimes...

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
I don't swell like you are talking about, bloating yes. Tomatoes are a nightshade, did you know that? If I ate salsa, I would have diarrhea in 20 minutes flat. The only potato chips I eat are UTZ brand. They do not seem to bother me. Corn chips are out, any flavored potato chips are out.

I too eat chicken breast, veggies, occasionally tuna, or cod. No red meats, no nightshades, no grains. I'm not so sure all the other grains bother me themselves, but I do feel they are cross contaminated with gluten. Some people are super sensitive.

This type of venting is always ok, we have to do it somewhere. Some of us do understand how you feel, totally understand.

Thanks! yes, I'm well aware of what nighshades are, potatoes, peppers, tomatoes, eggplant, and a few others....even paprika bothers me sometimes-ugh. I make sure any grain I eat is labled gluten-free, but i dont eat them often. It's hit or miss with them bothering me...

now my mom thinks that all my problems may be tied to something else...and that I may not even have a gluten intolerance!!! ugh she keeps mentioning H pilori...but I really doubt it. I havent been sick in over a year since going gluten-free!

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
(((((((((hugs))))))))))) Wish there was some way to help with this, I don't have as many intolerances as you do but the ones I do have make me frustrated too sometimes. The one I hate the most is soy. It drives me crazy that it is in sooooo much. Sometimes I just give in to wanting something as simple as a ranch dressing on a salad. Like you I suffer for it, say I won't do it again but then sure enough the craving gets to be too much and I slater another salad and suffer again for it. Funny I have no problem with craving gluten but my other intolerances I do slip up on. It is hard and it is just not fair. Lots of us do understand and sympathize.

:) thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author

I was thnking today.....does anyone else get fed up with trying to explain to people other food issues along with gluten?- so much that you don't even bother to explain after a while? People just don't understand how all these foods that I ate on a regular basis before are bothering me now....I almost feel like typing an explanation up, making copies and carying around with me to give to friends/family etc. instead of having to re-explain myself over and OVER.... :lol:

mushroom Proficient
mushroom
Posted

Yeah, I seldom mention the other intolerances, except for perhaps soy.

mysecretcurse Contributor
mysecretcurse
Posted

(((HuGS))))

I totally feel you! I am going through this myself. Been gluten free (or attempting to be) since 2007 and only recently have gone dairy and corn free as well. Or rather.. mostly. Haven't eaten any more cheese but did have a few dark chocolates that contained milkfat the other day. Avoiding corn has been harder. I stopped the corn chips and tortillas but there is still modified corn starch in some of my supplements and spices. I'm too exhausted too care anymore. It's depressing. I am hungry all the time and crave everything I can't eat. I am just doing my best, it's all we can do I guess.

txplowgirl Enthusiast
txplowgirl
Posted

Hi there,

Yes, I do have an allergy to nightshade veggies. Bummer isn't it. Yes, my ankles and legs swell. In addition to the nightshade, gluten and soy. I have sensitivities to sugar, aspartame, maltodextrin, dextrose and sucrose, high fructose corn syrup. I could go on and on.

So far, thankfully, i don't breakout but I get the itches so bad my sweetie tells me sometimes he gets a picture of a bear with his back to a tree just a scratching a way because i'll find a corner somewhere and go to trying to scratch my back. :lol: Right between my shoulder blades where I can't reach. AAhhhhhh!

Carri Ninja Rookie
Carri Ninja
Posted
I am curious if anyone else has issues with Maltode xtrin? I get stabbing stomach pains when I have something with it- even when the product says "gluten-free." Thanks

Janie

I am very sensitive to maltodextrin as well. It is nasty and is found in A LOT of things. It is also used a lot on seasoning in chicken in restaurants. - be careful!!

The bad part about maltodextrin also is that it can be produced with several different ingredients INCLUDING WHEAT and they don't have to specifically list it!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Midwesteaglesfan
      - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Going for upper endoscopy today

      UPDATE: here I am a couple months past my full diagnosis and going gluten free. I’ve been feeling a lot better. More energy, joint pain has gone down a lot. Haven’t really had the headaches and migraines I’ve had for years. My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said, have ...
    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with...
    3. Cecile
      - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time.
    4. Jmartes71
      - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I get the shakes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748
    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      My Journey Continues some notes

      By xxnonamexx · Posted

      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Symptoms

      By Cecile · Posted

      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      Not validated

      By Jmartes71 · Posted

      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      New issue

      By Jmartes71 · Posted

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.