Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Peripheral Neuropathy


ksymonds84

Recommended Posts

gracetruth Newbie

Wow, your poor daughter had shingles at age 15? Oh, my goodness. Is she okay now..healthwise?

That poor girl. My youngest son had mono when he was just 7 and it was horrible. He was severely stressed at that

time and had been sexually abused and we were going through a transition with a new step father who turned out to be a control freak who pressured us all...that lasted seven years.

My ex was told by his doctor that when he was only 50 and had shingles that the younger you are when you get them the more likely you are to come down with cancer so be very very careful with your health and to get lots of rest and to eat an anti cancer diet, no sugars, sodas, plenty of greens etc.

Not to worry you but I would take some time getting her to consider going to an alternative health care provider and having her try some muscle testing for what supplements she is lacking.

It is believed that by replacing organic versus inorganic minerals in our bodies and drinking distilled water that we can rid ourselves of the badminerals (inorganic) and have the good ones left behind which will help us function at our best ability and will restore our health.

I, personally, am so tired of being unhealthy all of my life as it has become a lifestyle to sort of "own" my diseases.

saying, "I have fibromyagia (well that is gonenow too actually)," and "I have thyroid disease" (I am working on getting that one reversed now as I was successful reversing it for 18 mo's much to my doctor's amazement in the late 1990's until my husband refused to allow me to buy them anymore, the supplements which were helping me...

they were : selenium, zinc and copper in an 8 to 1 ration, B6 with B complex on the side, super blue green algae capsules (that came from upper Klamath Lake in Oregon , the harvesting was done there I mean as it is a clean lake),

pantothenic acid supplement/pills, and this was actually a remedy that a Christian doctor recommended who I saw on television and he has written a book called. .."What you Don't know may be Killing you", his name escapes me at the moment....was it Dr. Donald Colbert? or he may be the other Christian doctor...I'll try to find out..anyway...it appears that having a host of other auto immune disorders throughout my life like psoriatic arthritis in my knees, (skin problems), hashimotos which changed to just low thyroid thankfully after adding the vit D3 , IBS, possibly Lupus,

myasthenia gravis, which seems to have disappeared, vasculitis and neuropathy which is now gone...migraines for over 40 years, which recently had started in my hand...as I explained earlier which is so very odd...and is associated with the change in the vascular system throughout one side of the head, one arm and one hand causing numbness and tingling...and pain..., and fibromyalgia, and shingles....this recent doctor said he thought all of my other doctors should be sent all my gluten products UPS for not diagnosing me properly til now at age 61....he was so upset.

I am just glad to be here and know what is going on finally and I hope to improve now from that too....with all your comments and help I hope to learn from those of you who have been struggling with making a gluten free diet work; I'm sure I can learn a lot about that diet here. Thank you again for your help. I hope my experiences and comments can also in turn offer some help to you as well. Everyone's personal experiences come at such a great cost to them personally and to offer what we know and have experienced here is to place such trust in each other to be kind and understanding and sympathetic to what we have endured and continue to endure in many cases. Blessings, and again thanks so much for your replies. And, yes, emotional and physical (doing to much) stress brought upon the shingles indeed...and with the background of a stressed immune system as related above and with the mercury being dumped and I do believe with the excessively large amt of B12 with the dumpedmercury, in my opinion it added to my problem. I will find the report and bring it here ..wish me luck. In any case, if you do not have excessive amounts of mercury in your system as did I you should be benefiitting for nerve repair and without the side effect of the problem I believe I have endured due to the mercury in my system. For now, it is only conjecture and should be treated as such until I can get that information I read somewhere. If not....anyone who wants to google B12 and mercury may be able to find what I had found. I am only trying to prevent anyone else from suffering from what I am now going through with the possibility of breast cancer; pleaee understand I only want to help others not diminish any good or beneficial results or drown any hopes anyone has for the benefits of B12. I know how important it is to find something that finally works and to want to hold onto that and continue with one's healing. I only wishI could take a lot of B12 now for the same but do not dare to until I rid myself of lots more mercury. I'm glad we can share our experiences here openly for all to decide for themselves what is best individually. This is a wonderful forum. Blessings dear people, GraceTruth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gracetruth Newbie
I've been glutened before though, without this happening. I'm thinking it's probably the weights, they're causing the aggravation. I just came back from my walk, my left hand was complaining, my feet were buzzing...maybe it's this horrible humid weather we are having. It's been the weirdest summer. My CFS symptoms seen to be in a flare, the fatigue is terrible. Before my walk, I took a nap, quite by accident! ;) Am I rambling? :P

Deb , I love your commentaries and esp. your quotes at the bottom here...they are really great

Have you tried getting off of potatoes, tomatoes, peppers and eggplant? I have found I don't have the hand thing and the migraines and such and the numbing limbs anymore and the tingling. Also have you ever had your vit D3 levels checked and have you been tested for hashimoto's antigen? The Vit D3 wouldI believe in my low opinion would take away the hashimoto's maybe as it seems to have done for me....also adding prehistoric minerals or even colloidal minerals and cod liver oil I think and selenium may do a miracle makeover for your symptoms. Please prayerfully consider trying this regimen...I would love to see you get your life back girl. with concern and sincerity for your well being, GraceTruth I have had symptoms like yours...I 'think" I know what you are going through ...at least in part.

Hope this helps. prayers being said for you Deb, hope you don't mind.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.