Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medication Changes


Googles

Recommended Posts

Googles Community Regular

I am on two medications that I have gotten used to the side effects from them and put up with them given the benefit I get from the medication itself. Latley I have noticed that I have been having less side effects, but it is also possible that my medication isn't working as well. I can't be sure because of all the other stress going on in my life right now if it is the stress or if it is my medication being metabolized at a different rate. My doctor doesn't know a lot about celiac disease so I'm not sure how to bring it up in the context of maybe needing my medications adjusted. However, I also am moving in two weeks and don't want to be changing my medications while that is going on. Does anyone have any advice? Have other people had to change medication doses once going gluten free? (I've been gluten-free shortly over a month.) Any advice would be helpful. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DreamWalker Rookie

It was sort of the opposite after going gluten-free with me. Before, quite a few meds seemed pointless which I mentioned to a doctor once who... didn't believe me. So, I dropped it.

Anyhow, are you taking an extended release form of a med? The molecule is attached to a polymer which your body has to digest through before receiving the intended medication. Usually this is mixed with the "instant" release (i.e. the active ingredient/molecule isn't coated with something you have to digest through). I would benefit in the morning when I took my first dosage yet after two hours (this med was supposed to last 7-9 hours) it would cease working (in very obvious ways). Then, by the evening I'd feel it "kick in" again. (It was an ADHD medication.) I couldn't sleep for the life of me due to this. Four years later and seven/eight months after going gluten free, I oddly don't have that issue anymore.

I hope that helps.

If your doctor doesn't believe you or take you seriously - find another one. Another thing to check into is if you've switched generics. The FDA allows 20% deviation from the brand's original formula.

kyle1957 Newbie

I have had the same experience as DreamWalker with my adderall for ADD. Had to switch back to the immediate release form and take dose three times a day to get any effect. I am hoping this changes as my insides heal. This seems to be the case with my synthroid. I had been at 200mcg a day, after going gluten free I have had dropped down to 125mcg per day. I don

Googles Community Regular

Thanks for your experiences. My meds are an antidepressant and a mood stabilizer neither are extended release, I just take them twice a day. I can tell I am still getting some, I just worry that I'm not getting as much as my depression is raging back. The really complicated part about it right now is that my psychiatrist knows nothing about celiac disease. (though neither does my pcp or the nutritionist I saw). I will be forced to change docs as I am moving, but I don't know how much choice I am going to have since I have very limited resources and no mental health insurance once I move. My psychiatrist thinks that my reactions are just grief over moving. While I can see that some of it would be, the crying jags and extreme depression seem more reminiscent of past times when I've needed to adjust my meds. I can't really go up on one because I'm already above the recommended doses. The other one I have to be careful with because I have always been really sensitive to any increase in dose (which is totally affected by what I eat). So for right now I just feel overwhelmed by everything. Thank you for your input and examples and any others that people give.

Lawspike Rookie
Thanks for your experiences. My meds are an antidepressant and a mood stabilizer neither are extended release, I just take them twice a day. I can tell I am still getting some, I just worry that I'm not getting as much as my depression is raging back. The really complicated part about it right now is that my psychiatrist knows nothing about celiac disease. (though neither does my pcp or the nutritionist I saw). I will be forced to change docs as I am moving, but I don't know how much choice I am going to have since I have very limited resources and no mental health insurance once I move. My psychiatrist thinks that my reactions are just grief over moving. While I can see that some of it would be, the crying jags and extreme depression seem more reminiscent of past times when I've needed to adjust my meds. I can't really go up on one because I'm already above the recommended doses. The other one I have to be careful with because I have always been really sensitive to any increase in dose (which is totally affected by what I eat). So for right now I just feel overwhelmed by everything. Thank you for your input and examples and any others that people give.

No advice here... BUT, I sure hope you get some relief and peace - SOON!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.