Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Tired...

pchick

Recommended Posts

pchick Rookie
pchick
Posted

I was wondering if anyone has gone through the same thing?

My test results were negative, but my IgA count was extremely low, so they wouldn't read positive even if I had celiac for sure.

current test results:

Triglycerides: 480

Blood sugar: 111

borderline anemic

CS1: +3 candida, +1 saprophytic fungi

GP2: no parasites

MB2 Total intestinal SIgA: <11 (normal range is 400-880)

MB3 Intestinal lysozyme: 4 (normal is 6)

MB4 Alph Anti-Chymotrypsin: <14 (normal is <60)

FG1 Chymotrypsin: <3 (normal is >9)

no allergy to milk, soy, egg

F14 Gliadin Ab SIgA: 7 negative

Because of this I went gluten free 3 weeks ago and so much is going better. My heartburn has stopped, I'm becoming more regular :) , I have less abdominal pain and a lot less bloated. My skin has almost cleared up completely (first time ever) and I'm thinking much more clearly so I'm having positive response to the diet.

The thing is though, for the last few days I've been VERY tired again. All I want to do is sleep, it's hard to keep moving sometimes and so I've been taking too many naps (and still not feeling rested).

So I'm wondering if anyone else has this? Could it be a healing response (I've been sick for a long time and now have leaky gut)? It almost feels like a detox ~ kind of a heaviness in the body and head. I don't know... maybe I was "glutened" but I don't think so. Everything else is holding fine - still regular and such, but I'm just really, really tired... and I have a strange tingling sensation all over, including my tongue.

Just looking for answers or someone who is experiencing the same thing ~ I'm so confused... and I really just want to feel normal for a little while.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Amyleigh0007 Enthusiast
Amyleigh0007
Posted

B12 really helps me beat fatigue. I know it has helped many here too.

pchick Rookie
pchick
Posted
  • Author

Thanks Amyleigh, I just ordered gluten free multi vitamins... should get here Monday. Doc put me on enzymes and probiotics, and something to facilitate iron permeability.

I've been taking EmergenC's when I feel woozy... and I think that helps. I know the vitamins will help.

momxyz Contributor
momxyz
Posted

Could it be another sign of healing?

Did by chance, you have issues with insomnia as well as GI problems?

My daughter has been working on eliminating gluten too. (The big sources were easy, now I'm working with her to be aware of stuff where gluten is precent as an additive... ie read the fine print.)

One of her complaints was insomnia...trouble falling asleep, trouble staying asleep.. Last night she slept for over 11 1/2 hours. That's the first time that's happened in a long time.

Maybe your body needs the rest, and now, you can finally get it?

elle's mom Contributor
elle's mom
Posted

pchick-

I have been gluten free now for only 3 months but having a similar experience to you. I was always VERY tired and fatigued-needed naps every day-felt like I would die without. That feeling slowly began to get better after about two months of gluten-free, but came back again on & off. Til now I have chalked it up to female monthly issues-but maybe it is a healing response or something.

Googles Community Regular
Googles
Posted

I have been gluten-free for about a month and a half now. I still have days where I am exhausted and when I get home from work all I can do is fall into bed for two hours before I get up and eat dinner. It does seem to go in phases. Good luck with adding the vitamins, I hope it works. Have you had your vitamin D, folic acid and other vitamins checked to see if you need more than over the counter vitamins will provide?

pchick Rookie
pchick
Posted
  • Author

sorry to hear some of you are experiencing the same thing... but I'm glad to hear I'm not the only one. I'm motivated to keep it up in the diet dept. in hopes in a few months I'll be having all sorts of energy! Keep me posted ~ let me know when you all start feeling better ;)

as far as insomnia... I stay up late because I can't fall asleep easily ~ I usually fall asleep between 2 and 4am, but once I fall asleep I'm out until 10 the next day (with a few bathroom breaks). Lately, I've also been taking naps during the day.

If I know I'll get better, I can do this for a while.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Chuck8268 Rookie
Chuck8268
Posted
I was wondering if anyone has gone through the same thing?

My test results were negative, but my IgA count was extremely low, so they wouldn't read positive even if I had celiac for sure.

current test results:

Triglycerides: 480

Blood sugar: 111

borderline anemic

CS1: +3 candida, +1 saprophytic fungi

GP2: no parasites

MB2 Total intestinal SIgA: <11 (normal range is 400-880)

MB3 Intestinal lysozyme: 4 (normal is 6)

MB4 Alph Anti-Chymotrypsin: <14 (normal is <60)

FG1 Chymotrypsin: <3 (normal is >9)

no allergy to milk, soy, egg

F14 Gliadin Ab SIgA: 7 negative

Because of this I went gluten free 3 weeks ago and so much is going better. My heartburn has stopped, I'm becoming more regular :) , I have less abdominal pain and a lot less bloated. My skin has almost cleared up completely (first time ever) and I'm thinking much more clearly so I'm having positive response to the diet.

The thing is though, for the last few days I've been VERY tired again. All I want to do is sleep, it's hard to keep moving sometimes and so I've been taking too many naps (and still not feeling rested).

So I'm wondering if anyone else has this? Could it be a healing response (I've been sick for a long time and now have leaky gut)? It almost feels like a detox ~ kind of a heaviness in the body and head. I don't know... maybe I was "glutened" but I don't think so. Everything else is holding fine - still regular and such, but I'm just really, really tired... and I have a strange tingling sensation all over, including my tongue.

Just looking for answers or someone who is experiencing the same thing ~ I'm so confused... and I really just want to feel normal for a little while.

NJKim Newbie
NJKim
Posted

I have been gluten free for 17 years and what I found that happens in cycles is I get extremely low iron enough to anemic and also I have trouble absorbing other nutrients. My recommendation would be take a a multi-vitamin but with an iron percentage less than 50%. This is because the iron will upset your stomach if you have too much because it is hard to absorb in the intestines. Also never take on an empty stomach. Hope this helps!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.