Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Peanut Butter Not Agreeing..and A Dumb Gi Guy


runningcrazy

Recommended Posts

runningcrazy Contributor

Ive posted like 3 or something other questions so Im not going to type my whole history again, I think theres a place where you can read my other posts IF you want.

My question is, first before I get into it Im 13 year old girl, Ive been vegetarian for almost 7 years now and Im not changing that. Ive had problems for probably forever, when I was nine especially I remember stomach issues. Mainly constipation. But the reason we went after a diagnosis is because theyve been getting worse and worse.

My dumb gastroenteroligst we saw a couple weeks ago for the first time just said rude remarks to us and made us sound stupid. He said I just need to take beano because I probably eat a lot fo beans and thats why Im bloated. He kept saying stuff like doubting celiac, and he kept calling the blood test he was giving me(which was negative) the test for wheat allergy.1) Celiac is not a wheat allergy, right?

2)We ordered the full gene and stool panel from enterolab, (or whichever one costs 369dollars) which also had a free casein testing 4 days ago. We decided if its positive for antibodies that i should get a jumpstart so i went gluten free/ casein free 4 days ago, atleast until my results come. So far I havent had one headache(which i was having everyday) my bloating went down a lot and i felt better. I also wasnt burping up food which i was getting after every meal. Today i had peanut butter(adams natural) and immediatly had bloated stomach, burping up, crampy(slightly) and ive had a weird dullish stomach ache since i ate it(1 tbsp, 3 hours ago, still hurts). So my question is, all of my symptoms that went away with gluten free, besides the headache came back with the peanut butter. I also havent been eating peanut butter since i went gluten-free/CF. Could my problems be from peanut butter and not gluten at all? I guess not having the headaches is convincing toward gluten because besides gluten/casein and i guess peanut butter, nothing else has been cut out.

I doubt its cross contamination, we have been careful, i have my own cutting board, foods, i know to look for hidden things like soy sauce, barley malt, etc. The peanut butter has not been cc because the natural stuff gets so hard we use a spoon and scoop it in a bowl and heat it up, then spread it on bread, or whatever(I put it on a carrot)

So if it really is peanuts, would that be it. Gluten not even an issue? Could i just use sunflower seed or almond butter. Or would I need to avoid nuts. Or just avoid legumes becauise thats what a peanut is. Sorry, im confused. I LOVE peanut butter and generally eat it every day, not sure why i havent been eating it since gluten-free/cf.

And also, how long did it take you to get your enterolab results if you were tested, i know it says 3 weeks, but im hoping its sooner. Thanks! Sorry for the length!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shendler Rookie

1) Celiac is not a wheat allergy, however, you can have a wheat allergy. Celiac is an autoimmune disease.

2)In addition to having celiac you may also have other food problems. Do you generally have problems with peanuts or other nuts? Is there something else in the peanut butter you can be reacting to? What did you eat the peanut butter with? I suggest going on a food elimination diet once you find out the results of your tests so you can figure out what other foods can be causing you problems.

runningcrazy Contributor

I ate the peanut butter with a garden grown carrot because i love peanut butter and carrots. The ingredients are peanuts and salt, i dont think im reacting to salt, and ive never had a problem with carrots.

I have had issues with headaches, we thought the peanut butter was giving me headaches. My headaches were always from peanut butter on toast or a sandwich, i didnt get a headache with the carrot, just stomach problems.

I havent had a headache since gluten-free/CF

Thanks for the response:)

And also, isnt a wheat allergy more like hives, rashes, breathing troubles? I dont really know so sorry for being clueless <_<

shendler Rookie

When you have a food allergy you can get those symptoms when consuming the food, but it doesn't have to be that severe. I'm allergic to beef and when I eat it I only develop a headache. Maybe you should see an allergist to see if you are allergic to peanuts. Also this link may help you understand more Open Original Shared Link.

I would continue eating gluten free and see how you feel. Along the way you may find that there are other foods you can not tolerate and quite a number of people with celiac are that way. I suggest a food diary so you can keep track of those reactions.

If you have any other questions feel free to ask :)

runningcrazy Contributor
When you have a food allergy you can get those symptoms when consuming the food, but it doesn't have to be that severe. I'm allergic to beef and when I eat it I only develop a headache. Maybe you should see an allergist to see if you are allergic to peanuts. Also this link may helpyou understand more Open Original Shared Link.

I would continue eating gluten free and see how you feel. Along the way you may find that there are other foods you can not tolerate and quite a number of people with celiac are that way. I suggest a food diary so you can keep track of those reactions.

If you have any other questions feel free to ask :)

Thanks:)

I do have one more question.

If say I was having issues with peanuts, do you think gluten could be eaten again, and the peanuts were secretly copying celiac symptoms? I know I should just wait to see if my enterolab come back positive or not but I am just impatient. Anyone who ordered enteroab before, how long did it take for results? I know it's 3 weeks according tothem, but did anyone get them sooner?

ohsotired Enthusiast

Peanut butter gives me stomach aches, even if I only eat a tiny bit. I'm ok with a handful of peanuts though.

But I also have serious problems with gluten.

So it's possible it's both.

Hope you find your answers soon!

The Fluffy Assassin Enthusiast
Thanks:)

I do have one more question.

If say I was having issues with peanuts, do you think gluten could be eaten again, and the peanuts were secretly copying celiac symptoms? I know I should just wait to see if my enterolab come back positive or not but I am just impatient. Anyone who ordered enteroab before, how long did it take for results? I know it's 3 weeks according tothem, but did anyone get them sooner?

Some thoughts:

You could reintroduce gluten and lay off the peanut butter and see if you get bloated again. That might be an indication that you have a problem with both. (Or if you don't get bloated, it might indicate that it's just the peanut butter.)

You could try the peanut butter on celery, just on the off chance that there's some weird interaction between the peanut butter and carrot in your stomach.

You might well have difficulty digesting fats (as a lot of celiacs do). You might visit a grocery store or raid the pantry and look at nutritional information panels on products to try to find something with as much fat as peanut butter. In my house, the only thing that compares is pistachios; even boiled peanuts have nowhere near as much. Maybe the almond butter you mentioned would be similar. Anyway, try another high-fat food and see if you also feel bloated.

Otherwise, I echo the earlier replies that a: your gastroenterologist is an idiot and b: seeing an allergist (preferably a non-idiotic one) might be a good idea. You can search this site's Doctors forum with your hometown and hopefully find better doctors.

Good luck to you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor

Thanks everyone, these are all really helpful!

I guess I'll wait and see what my results are from enterolab,in the mean time steer clear ofgluten and peanuts.

We already decided we would not go back to my GI because we did basically EVERYTHING opposite of what he said and we were finally seeing improvement.

How long, if you tested through them,to get your results from enterolab?

jerseyangel Proficient

Could be a legume intolerance that made itself known after you cut out the gluten. Sometimes, other food intolerances will become apparent shortly after going gluten-free like soy, dairy, corn, legumes, etc.

I'm terribly sensitive to legumes--your symptoms sound more like a sensitivity than an allergy to me.

hannahp57 Contributor

i have had issues with peanut butter as well. i think for me it is the high fat content because peanuts are fine. if i eat too much (sometimes i think its just a bad day) i am in serious pain. i feel bloated, gassy and feel burning searing pains in my stomach like theres acid in there. its awful. i can tell a difference between those symptoms and glutening symptoms though... gluten is absolutely the most painful thing ive endured yet

ksymonds84 Enthusiast
Thanks:)

I do have one more question.

If say I was having issues with peanuts, do you think gluten could be eaten again, and the peanuts were secretly copying celiac symptoms? I know I should just wait to see if my enterolab come back positive or not but I am just impatient. Anyone who ordered enteroab before, how long did it take for results? I know it's 3 weeks according tothem, but did anyone get them sooner?

did enterolab last month and it took 17 days. I already had a diagnoses but was interested in casein and genes. I have problems with peanuts, beans, and soy. A food diary will help tremendously in discovering other intolerances that you may have. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.