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Dapsone Topical Ointment

DinaB

By DinaB
in Dermatitis Herpetiformis

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DinaB Apprentice
DinaB
Posted

Hello,

My dermatologist finally gave me Dapsone topical ointment yesterday, after trying Valtrex and Bactroban. Had anyone had any experience with the ointment? I could tell it worked pretty well already, but belly has been real bad so I am confused about ingredients. Something that is for DH couldn't have Gluten, right?

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momxyz Contributor
momxyz
Posted
Hello,

My dermatologist finally gave me Dapsone topical ointment yesterday, after trying Valtrex and Bactroban. Had anyone had any experience with the ointment? I could tell it worked pretty well already, but belly has been real bad so I am confused about ingredients. Something that is for DH couldn't have Gluten, right?

I don't have an answer to your question but I do have another question for you:

Was he thinking your blisters were caused by herpes virus (therefore the Valtrex) and then Staph (therefore the use of Bactroban)?

DinaB Apprentice
DinaB
Posted
  • Author
I don't have an answer to your question but I do have another question for you:

Was he thinking your blisters were caused by herpes virus (therefore the Valtrex) and then Staph (therefore the use of Bactroban)?

Yes. Was on Valtrex for 3 weeks and the breakouts were still happening. Then he put me on Bactroban and made it a little worse. Just started Dapsone last night. My belly has been killing me all day and bad D.

captaincrab55 Collaborator
captaincrab55
Posted
Hello,

My dermatologist finally gave me Dapsone topical ointment yesterday, after trying Valtrex and Bactroban. Had anyone had any experience with the ointment? I could tell it worked pretty well already, but belly has been real bad so I am confused about ingredients. Something that is for DH couldn't have Gluten, right?

I'm using Fluocinonide .05%, but I'll inquire about the Dapsone cream when I see my Dermatologist in 5 weeks.. Your Pharmacist should be able to answer the Gluten question... One should start a Patient Profile @ their Pharmacy..

DinaB Apprentice
DinaB
Posted
  • Author
I'm using Fluocinonide .05%, but I'll inquire about the Dapsone cream when I see my Dermatologist in 5 weeks.. Your Pharmacist should be able to answer the Gluten question... One should start a Patient Profile @ their Pharmacy..

My Pharmacy is useless and I cannot trust them. They told me twice that something was Lactose Free/Gluten Free and I got sick and wound up with welts on my scalp. I asked them to flag my profile, but still they cannot be trusted. After more research this afternoon, I realized that the ointment is an antibiotic, which is why my stomach is upset with bad D.

captaincrab55 Collaborator
captaincrab55
Posted
My Pharmacy is useless and I cannot trust them. They told me twice that something was Lactose Free/Gluten Free and I got sick and wound up with welts on my scalp. I asked them to flag my profile, but still they cannot be trusted. After more research this afternoon, I realized that the ointment is an antibiotic, which is why my stomach is upset with bad D.

One would think that a Pharmacist could be held accountable.... I'm sure the Government Agency that Licensed the Pharmacist will listen and take action if warranted..

lovegrov Collaborator
lovegrov
Posted

Dapsone isn't just for DH. I think it was originally used for leprosy and has been helpful for some symptoms of AIDS.

BTW, I've never heard of the ointment. I always just took the pills.

richard

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DinaB Apprentice
DinaB
Posted
  • Author
Dapsone isn't just for DH. I think it was originally used for leprosy and has been helpful for some symptoms of AIDS.

BTW, I've never heard of the ointment. I always just took the pills.

richard

Yes, it's rather new. And you are correct about leprosy as well.

ChemistMama Contributor
ChemistMama
Posted

Topical dapsone (Aczone) is used for certain types of acne.

Open Original Shared Link

The ingredients are below:

Inactive ingredients: Carbomer 980, diethylene glycol monoethyl ether (DGME), methylparaben, sodium

hydroxide, and purified water.

All the ingredients are not synthesized from anything wheat-based (I'm a chemist), but as for it being totally gluten free, I don't know.

Oral dapsone is gluten free, since they know the only two indications for it are leprosy and DH, and the DHers wouldn't use it if it wasn't gluten free!! I got several small tubes from my dermatologist, but since I"m on the oral right now I'll try it when I'm done with the dapsone.

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