Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Intolerances Besides Gluten


jkr

Recommended Posts

jkr Apprentice

Hello,

It seems like since I had the endoscopy I've had more stomach issues than normal. I know that you can develop other food sensitivites so I am assuming that is the problem. My stomach gurgles after almost everything I eat. The GI did tell me I'm probably lactose intolerant too. My intestines have severe inflammation and severe atrophy. I wish the doctor could give me something for the pain.

I will start a food diary to try to figure out what I cannot tolerate. Also, does anyone have any suggestions about what to take to alleviate the pain? I do take Pepto-Bismol occasionally also.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa79 Enthusiast

It does take time to heal, which can cause other intolerances in the early stages, when was you diagnosed?

I am in the same boat, I am finding other foods irritate me, thinking it could be sugars, which can also be dairy due to the lactose, but I am thinking of possibly suffering from Fructose Malabsorbtion. I am going to ask for the breath test to be done.

I was about to post this so maybe I can add to your post for information on other food intolernaces and fructose malabsorbtion.

I get sore tummys mainly above the belly button the main pain, major bloating, major severe constipation, headaches they have improved since going gluten-free. But know there is something else.

I am seeing a naturopath who is helping although I need to investigate more on other intolerances.

mushroom Proficient

The most common intolerances are of course lactose (because the damaged villi produce the lactase to digest the lactose); some people are intolerant of all dairy. Other major culprits are soy, corn, eggs, and with some people nuts. Those seem to be the major ones to try eliminating first. Pepto Bismol seems to be the preferred treatment for the distress though I never tried it myself.

Hang in there, because generally after the first two to three weeks things will start to settle down and the other problems will become clearer. In the first couple of weeks you really can't reach any conclusions. You have to wait for everything to stabilize and then work from there. Patience, unfortunately, is required in this process. It took a long time to get where you are, and it isn't going to be reversed overnight.

jststric Contributor

I had to self-diagnose myself and I think I had what they call a "leaky gut" when I discovered my intolerances. You must heal your "gut" by putting back the good bacteria like you find in yogurts into your intestines. Since I am also dairy intolerant, I couldn't do the yogurt or even most of the supplements I found as they also had milk/casein in them. I found www.kirkmanlabs.com and they have allergen-free supplements and bought their acedophilus. I would give it a couple of weeks at least to heal your stomach before trying to figure out too much about what other things are bothering you. You can go ahead and journal so you may see a pattern of food groups you eat alot of so you can figure out a plan to put into place when you do start eliminating foods from your diet. Good luck.

jkr Apprentice

Thanks everyone for the replies!

ang1e0251 Contributor

I would agree with the other posters. It's just too soon for you to narrow that down. In the beginning, your system can be so raw it feels like you're reacting to everything. I would back off to a very simple diet of whole foods that you prepare yourself with one ingredient seasonings. No fresh dairy for now and if fruits seem too irritating, leave them also. Both of those you will probably be able to add back in later after some healing. In time when you start feeling better, then add in new foods one at a time every few days. The food journal is a very good idea going forward. It all helps you get into the new routine and helps you to shortcut future problems.

mhope Newbie

hey everyone. so i am just curious. after reading the responses above and information from other places, I understand that a lot of other intolerances come to light after going gluten-free. Does this happen more frequently than not? And how can you tell if the symptoms are from a newly discovered intolerance or it if is just still problems from gluten? I just started gluten-free last week and this is all really new to me... I just see the majority of people posting have many other things they need to avoid and I feel like it would be hard to pinpoint.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast
hey everyone. so i am just curious. after reading the responses above and information from other places, I understand that a lot of other intolerances come to light after going gluten-free. Does this happen more frequently than not? And how can you tell if the symptoms are from a newly discovered intolerance or it if is just still problems from gluten? I just started gluten-free last week and this is all really new to me... I just see the majority of people posting have many other things they need to avoid and I feel like it would be hard to pinpoint.

I believe we disover other intolerances after going gluten free, because we assume our symptoms are all caused by gluten intolerance or celiac disease. After we know we have eliminated all sources of gluten from our diets, we can't blame gluten for lingering symptoms. Rather than guess which other foods caused my symptoms or try a tricky elimination diet to determine the cause of my symptoms, my ND gave me the ELISA blood tests (3 variations) which diagnosed my other 5 food allergies. My Enterolab tests diagnosed my gluten and casein intolerance. My doc also gave me stool tests for bacterial, parasitic and fungal gut infections, which can also cause gut symptoms. I'd recommend tests to determine the cause of lingering symptoms after you're certain that you are no longer consuming gluten.

SUE

mhope Newbie
I believe we disover other intolerances after going gluten free, because we assume our symptoms are all caused by gluten intolerance or celiac disease. After we know we have eliminated all sources of gluten from our diets, we can't blame gluten for lingering symptoms. Rather than guess which other foods caused my symptoms or try a tricky elimination diet to determine the cause of my symptoms, my ND gave me the ELISA blood tests (3 variations) which diagnosed my other 5 food allergies. My Enterolab tests diagnosed my gluten and casein intolerance. My doc also gave me stool tests for bacterial, parasitic and fungal gut infections, which can also cause gut symptoms. I'd recommend tests to determine the cause of lingering symptoms after you're certain that you are no longer consuming gluten.

SUE

Thanks Sue, that is a very helpful explanation! I think that I am just so used to feeling sick that I can't imagine that all gut symptoms could actually go away. Realizing that that is a possibility, I can see why one would look for other causes once getting off of gluten! Thank you again!

burdee Enthusiast
Thanks Sue, that is a very helpful explanation! I think that I am just so used to feeling sick that I can't imagine that all gut symptoms could actually go away. Realizing that that is a possibility, I can see why one would look for other causes once getting off of gluten! Thank you again!

When I first experienced pain free hours, I wondered how I would order my days without celiac pain. That may sound ridicuous. However I had struggled with pain, bloating, gas and irregularity for so many years, I couldn't imagine life without those symptoms. After I eliminated sources of my food allergies, I learned some of my symptoms had actually been caused by bacterial dysbiosis (more bad bugs than good bugs) in my intestines. So over the past 3 years I have been diagnosed with and treated for 3 bacteria, 1 parasite and 1 fungus. I'm currently struggling with c-diff, a very drug resistant and potentially lethal bug. I'm on my 4th treatment cycle. I want to be symptom free soon. Enough already! LOL

SUE

mhope Newbie
When I first experienced pain free hours, I wondered how I would order my days without celiac pain. That may sound ridicuous. However I had struggled with pain, bloating, gas and irregularity for so many years, I couldn't imagine life without those symptoms. After I eliminated sources of my food allergies, I learned some of my symptoms had actually been caused by bacterial dysbiosis (more bad bugs than good bugs) in my intestines. So over the past 3 years I have been diagnosed with and treated for 3 bacteria, 1 parasite and 1 fungus. I'm currently struggling with c-diff, a very drug resistant and potentially lethal bug. I'm on my 4th treatment cycle. I want to be symptom free soon. Enough already! LOL

SUE

Wow, you are really getting through a whole lot of issues! I can completely understand the inability to imagine life without all these symptoms, I still can't and am very skeptical even after reading all of the wonderful improvements people feel! Even though you are still dealing with various other problems, at least they are being worked out (hopefully with that last potentially lethal one!!!) Good luck and I hope it all gets taken care of and you can enjoy your symptom free-ness!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,485
    • Most Online (within 30 mins)
      7,748

    callahab
    Newest Member
    callahab
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K.   Vitamin A toxicity does not cause Celiac disease.  Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation.  Fish contains thiaminases, chemical compounds that destroy thiamine, Vitamin B 1, making the thiamine unusable.  Excessive intake of foods containing thiaminases can precipitate low thiamine.   Low thiamine can also be a result of bacterial or yeast infections.  A high carbohydrate diet encourages Candida and bacterial infections.  High carbohydrate diets promote SIBO and Candida because they feed on the excess carbohydrates and suppress the beneficial bacteria.  Other types of bacteria can take advantage of this and set up housekeeping outside the gastrointestinal tract, including bacterial vaginosis. Thiamine Vitamin B 1 can alter the microbiome.  Thiamine has been shown to suppress Candida, SIBO, and other bacterial and viral infections, and favor the growth of beneficial bacteria.  My SIBO cleared once I supplemented with Benfotiamine, a form of thiamine that has been shown to promote intestinal healing, and a B Complex.  Thiamine works in concert with the other B vitamins and magnesium. Thiamine helps to lower histamine levels by calming mast cells that release histamine at the slightest provocation.   Following the Autoimmune Protocol diet also helped immensely in getting my digestive system calmed and able to tolerate more foods. Have you discussed with your doctor and dietician supplementing essential B vitamins while healing?  What is your Vitamin D level?  Vitamin D helps calm the immune system.  
    • cristiana
      Update - my Active B12 is 36.  Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal.   I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great, because from what I understand, in the UK our normal levels are set low and 'lower normal' levels would be considered a deficiency in such countries as Germany and Japan. Regarding B12 levels, it doesn't look as if my levels are low enough to be offered B12 injections.  That being the case, I remember reading that sublingual tablets can still be very effective but one particular type is better than another - I can't remember which type.  Can anyone help?
    • cristiana
      Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test?  I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests.  My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals seem to be taking any interest in it although this is  my fault as last time I saw my Consultant I failed to mention my symptoms - I had so many other questions to ask him.  Anyway - here are the details for an A test: https://www.medichecks.com/products/vitamin-a-retinol-blood-test?gad_source=1&gad_campaignid=11996732820&gbraid=0AAAAAD9XHFyeAOrxlryOpWS_jXwZ8PCc1&gclid=EAIaIQobChMIyrjj2Pb2jwMVnJJQBh22CTkVEAAYASAAEgIGDPD_BwE
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      This is a very complex and difficult situation, and your intuition about a potential link to celiac disease is medically plausible. While Guillain-Barré Syndrome (GBS) is often triggered by infections, it can also be precipitated by other immune system events, including a significant gluten exposure in a person with celiac disease. The timeline you describe—neurological symptoms appearing after the GI symptoms subsided—is classic for post-infectious (or in this case, post-exposure) GBS. Furthermore, there is a recognized, though rare, neurological condition directly linked to celiac disease called Gluten Ataxia, which affects coordination and can cause gait problems. However, the rapid onset of paralysis and cranial nerve involvement you experienced is more characteristic of GBS than typical gluten ataxia. It's also important to know that a negative EMG early in the course of GBS does not rule it out, and "Functional Neurological Disorder" (FND) is not purely psychiatric; it is a real and complex disorder where there is a problem with the functioning of the nervous system, not its structure, and it can be triggered by physical illness or stress. The most critical step is to continue working closely with your neurologists. You should absolutely bring up your celiac history and your theory, as it is a relevant piece of the diagnostic puzzle. They may consider specific antibody tests related to gluten neuropathy or ataxia to help differentiate the cause. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.