Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Think I've Been Glutened, Please Check My Menu :)


tygwyn

Recommended Posts

tygwyn Newbie

I've not been diagnosed as Celiac but my doctor is convinced I'm gluten intolerant... so I'm giving it a go. I've been Gluten free for 10 days. The first week I felt pretty bad... diaorhea (sp?) worse and anxiety also worst. Things calmed down yesterday and I started to feel much better but for the last hour I've been getting little cramps, I'm very windy and very bloated. I was hoping that someone here would be able to check what I've eaten today and tell me if theres anything you can see that I've made an error with. Like I say... I'm very new to this!

Breakfast:

Gluten Free Cereal with Semi Skimmed Pasteurized milk

Orange Juice

Lunch:

Gluten Free Crackerbread with Cheddar Cheese slices

Corn on the Cob on a stick with butter (bought at a market place... could this be it?)

Dinner:

Kangaroo Steak cooked on the barbie with Canola Oil

Salad (lettuce, tomato, onion) with French Dressing

Feta Cheese

Mashed Potato with margarine

Egg

Gluten Free Mayo

Orange Juice

My problem is that when I check the ingredients I only know to look for 'wheat' 'oats' or 'rye' - what else should I be looking for?

Any help or advice is really appreciated... big learning curve this isnt it?!

Rach xxxx


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KathiSharpe Apprentice
Corn on the Cob on a stick with butter (bought at a market place... could this be it?)

That looks like the #1 possibility... tho my initial reaction would be "how". If I was gonna cook corn on a stick it would be in plain water with some butter or margerine. Cross-contamination, or maybe they put some boil (seasoning) in the water????? Lots of spices and seasonings have gluten and it's not exactly declared well on the labels.

The other possibility I can think of is that you cooked a gluten-containing food on your grill (er... barbie) previously, and tiny amounts remained.

There's a great list here on celiac.com of foods and ingredients to avoid - (back up to the main celiac.com page and it's linked from there) BUT you'll probably want something Oz specific (assuming you're Aussie because of the 'roo and barbie reference, but it's getting to where you can get kangaroo meat here in the US too <yum!>)

darlindeb25 Collaborator

10 days is too early to be worrying. It takes time for your body to rid itself of gluten, 10 days is not enough time.

In the beginning, you should stay away from gluten free processed foods. You need to give your body time to heal. Eat whole foods, potatoes, fresh meat, veggies, fruits, eggs, etc. The processed stuff can be too heavy, and just add to the problem.

JillianLindsay Enthusiast

Good morning Rachel, and welcome :) I'm a bit of a newbie too (one month gluten-free) but I noticed a couple possibilities.

How clean is your BBQ grill? -- if you've cooked meats with gluten or toasted buns on the grill there could still be crumbs on it that can cross-contaminate your food -- give it a really good clean and if you have others in your household who use the grill you can use tin foil to avoid cc.

French dressing -- look on the company website to see if it lists whether or not the product is gluten-free (or do a google search), or call the manufacturer

**Things such as artificial and natural flavours, spices (with no specifics) can be hidden sources of gluten. Check out the list on this website of safe and unsafe ingredients to look for. Unfortunately there are a lot more than just wheat, oats, rye and barley to look for.

Check your margarne. I believe most are gluten-free, but I've always checked mine to be safe. *You should probably have your own dedicated margarine if there are others in your household who eat gluten. If they use the margarine for their toast they will easily get toast crumbs in the margarine which can make you sick.

It is quite a learning curve, but with reading and practice you'll catch on very quickly :)

Good luck and good health!

Jillian

I've not been diagnosed as Celiac but my doctor is convinced I'm gluten intolerant... so I'm giving it a go. I've been Gluten free for 10 days. The first week I felt pretty bad... diaorhea (sp?) worse and anxiety also worst. Things calmed down yesterday and I started to feel much better but for the last hour I've been getting little cramps, I'm very windy and very bloated. I was hoping that someone here would be able to check what I've eaten today and tell me if theres anything you can see that I've made an error with. Like I say... I'm very new to this!

Breakfast:

Gluten Free Cereal with Semi Skimmed Pasteurized milk

Orange Juice

Lunch:

Gluten Free Crackerbread with Cheddar Cheese slices

Corn on the Cob on a stick with butter (bought at a market place... could this be it?)

Dinner:

Kangaroo Steak cooked on the barbie with Canola Oil

Salad (lettuce, tomato, onion) with French Dressing

Feta Cheese

Mashed Potato with margarine

Egg

Gluten Free Mayo

Orange Juice

My problem is that when I check the ingredients I only know to look for 'wheat' 'oats' or 'rye' - what else should I be looking for?

Any help or advice is really appreciated... big learning curve this isnt it?!

Rach xxxx

Mango04 Enthusiast

tygwyn - Are you in Australia? If so, your country clearly labels allergens and you don't need to worry so much about hidden gluten as mentioned above and in many other places around this forum. B) So...you're already looking for the right things...wheat, rye and barley.

tygwyn Newbie

Wow that was some seriously fast replies ... thanks ever so much!

Great detective work too, yes I am in Australia... Sydney to be precise and yes Roo is YUM! Nice and healthy too so all the more reason to eat it!

The grills for the barbie were actually brand new, bought today so no worries there.

Mango... thanks for the heads up regarding the labelling. I'm still not sure how this works though? Does that mean that EVERYTHING that is gluten free is labelled as such, or is it just that the gluten ingredients need to be listed? I'm still not sure what I should be looking for.

Thanks again everyone - very very much appreciated!

darlindeb25 Collaborator

I don't know about Australia, yet here in the US, rye and barley are not required to be listed on the label. Only wheat, other glutens were excluded. Just keep that in mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast
I don't know about Australia, yet here in the US, rye and barley are not required to be listed on the label. Only wheat, other glutens were excluded. Just keep that in mind.

That's just in the US. In Australia (at least when I was there a few years ago - Sydney as well :) ) gluten had to be clearly labeled, and I was told I could simply read labels to find out if gluten was present in the product. Of course you should double check my info, but my advice would be to ask the gluten-free Aussies, as things work quite differently there in terms of products, labelling, what's safe, what's not etc. (it's possible for a US brand name product to contain gluten while the equivalent Australian product with the exact same name might be safe, and vice versa).

I just feel bad when a lot of Australians worry unnecessarily after taking US-specific advice from this site - there's lots of good info here but make sure you can pick out the advice that only applies to specific countries.

tygwyn Newbie

Thanks Mango - great advise there - I'll head over to the overseas section and try and find some helpful aussies there :)

Much appreciated :)

That's just in the US. In Australia (at least when I was there a few years ago - Sydney as well :) ) gluten had to be clearly labeled, and I was told I could simply read labels to find out if gluten was present in the product. Of course you should double check my info, but my advice would be to ask the gluten-free Aussies, as things work quite differently there in terms of products, labelling, what's safe, what's not etc. (it's possible for a US brand name product to contain gluten while the equivalent Australian product with the exact same name might be safe, and vice versa).

I just feel bad when a lot of Australians worry unnecessarily after taking US-specific advice from this site - there's lots of good info here but make sure you can pick out the advice that only applies to specific countries.

captaincrab55 Collaborator
I've not been diagnosed as Celiac but my doctor is convinced I'm gluten intolerant... so I'm giving it a go. I've been Gluten free for 10 days. The first week I felt pretty bad... diaorhea (sp?) worse and anxiety also worst. Things calmed down yesterday and I started to feel much better but for the last hour I've been getting little cramps, I'm very windy and very bloated. I was hoping that someone here would be able to check what I've eaten today and tell me if theres anything you can see that I've made an error with. Like I say... I'm very new to this!

Breakfast:

Gluten Free Cereal with Semi Skimmed Pasteurized milk

Orange Juice

Any help or advice is really appreciated... big learning curve this isnt it?!

Rach xxxx

Semi Skimmed Pasteurized milk could be a problem..

Jackie927 Rookie

Could the whole dairy thing be causing the problems....my doctor told me to stay away from dairy being gluten intolerant?

Semi Skimmed Pasteurized milk could be a problem..
elle's mom Contributor
Could the whole dairy thing be causing the problems....my doctor told me to stay away from dairy being gluten intolerant?

I was also thinking maybe the dairy could be an issue. I noticed you have dairy at every sitting.....when my daughter was diagnosed, they said no dairy for at least the first 30 days as during the healing process you are technically lactose intolerant. You may be able to tolerate it better later on, thankfully my daughter can.

georgie Enthusiast

What about the orange juice ? Did you squeeze that fresh yourself ? Some commercial juices are made from concentrates imported from overseas... and may not be labelled correctly. I am wary of processed foods when they use words like 'concentrate' or 'made from imported ingredients' - as I think a few seem to slip through our labelling laws.

Maybe you have a dairy or fructose intolerance as well as Coeliac ?

Maybe the corn was too hard to digest ? Was the corn buttered at the stall ? What else had they used that butter for , and the knife ? Was it real butter or a blend ?

Did everyone in the house eat gluten-free ? Could it be cc from bench tops/ plates etc?

ang1e0251 Contributor

Dairy, sure but you've been having it. Try to give it up for a few days and see.

The orange juice doesn't seem like it could have gluten in it but I can tell you, in the beginning I couldn't handle any fruit. Just too much on my sensitive system. Now I can eat any kind again.

I would wonder about the corn.. In the 60's when we sold corn on the cob at fairs, we also served it on the stick and it was deep fried!! Sounds icky now but it was delicious and we sold a lot. In the fryer next to it, we cooked corn dogs. Believe me, there was major CC!

Just be aware when eating out that the way a food is cooked is just as important as what's in it.

Billygean Apprentice

Butter from the marketplace. They will undoubedtly have spread butter on bread and dipped the knife back in. Our butter is full of my boyfriend's crumbs so I have my own!

suemorton Newbie

Hi! Between teh french dressing, margarine and the grill - all or some of them could have affected you.....the thing I'm finding most difficult is the cross contamination on the grills - cause you can never (I find anyway) get them completely spick and span.........I have a list of the safe/unsafe foods you can and can't eat. If anyone's interested, please feel free to email me at jamiensue@hotmail.com and I can send the attachments to you!

Take care,

Sue

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.