Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Impossible To Heal 100%?


jasonD2

Recommended Posts

jasonD2 Experienced

I mean unless i never ever eat outside my house is there anyway I will be able to heal my damage 100%? the chance of getting glutened is always high no matter how careful you are -- i hear stories about people healing and being able to tolerate other foods again, but are these folks the ones who never eat out or bring their own food to places? I work in sales and travel a lot and just dont see how i will ever be able to not eat out. do i quit my job? think of a new career? i'm sorry but there is just now way i will EVER bring my own food into a restaurant with other people

Also, is it true that every time your glutened you reverse months and months of healing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

There is no definite answer for this one. Dr. Green told us they really don't know why some heal much quicker than others, or why some seem to not heal well. Some people continue to eat gluten at times...they say, each glutening can set you back 3 months. Some never go totally gluten free. Unless you eat whole foods, things that never do contain gluten, you can never be 100% gluten free.

As for the damage healing, that depends on the person, how many years it took to be diagnosed, how strict they are, many variables.

You do the best you can for you.

chasbari Apprentice

Is that three month set back an arbitrary number or is there clinical evidence of such. I know I have been able to maintain strict gluten-free with only one glutening episode for the last 7 months and am healing up well. I have a hard time, after the experience I had of a severe one time glutening, with believing that it sets you back with that much damage... and my gut damage was considerable at diagnosis. Yes, I am very careful about what I choose to eat now and don't have the added challenge of having to entertain clients as you do but I now know that this is the key to me feeling healthier every day and so I will do anything necessary to maintain this even though I live in a house full of gluten eaters. It can be done. What has been the key for me is sticking with strictly paleo and not trying to incorporate pseudo faux gluten equivalent foods. I make no apologies for taking food with me and if anyone is curious I will explain.. but only if asked.

tarnalberry Community Regular

realize that by saying you will NEVER bring food into a restaurant, you CHOOSE to eliminate an option.

if you also say that you will NEVER eat before hand and just socialize at the restaurant, you CHOOSE to eliminate another option.

that only leaves you with a very risky option.

it may be the right choice for you, but KNOW that YOU are the one eliminating your own options.

jasonD2 Experienced

Maybe so...but thats one thing I will never do...bring my own food to a restaurant. Id rather not eat at all and that's usually what I do when i go out and people are eating . im just not gonna be that person who does that

tarnalberry Community Regular
im just not gonna be that person who does that

what kind of person are we (those of us who do)?

(I'm not trying to be snippy at all, but ask the "why do I think the way I do?" kinds of questions, so we understand what *really* motivates our actions and can evaluate *that* objectively.)

darlindeb25 Collaborator
Is that three month set back an arbitrary number or is there clinical evidence of such.

All I know is, this is what Dr. Green has told us as a speaker. I also know, when I get glutened, often times I am sick for at least 3 weeks and up to 4 months.

I have taken my own food to a restuarant, and they were told before I went, that I was. My boss was throwing a going away party for one of our workers, and told them I could not eat their foods. They gave me a plate to put my food on, and no one but us knew.

Choose your battles, if you prefer to get sick by eating out, that is your option.

Last night, our group leaders said if you want to eat out, stick to the better restuarants which are now catering to celiac...don't go to fast food places like Applebees, PFChangs, and such...too much chance of CC there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Oh, I had wanted to add:

I don't think you have to give up your job and change careers. But you may have to get creative and inventive, in a way you've never had to do before. Think of that, however, not as a burden, but an opportunity that could both improve your skills at your job, and in life in general. You never know the possibilities creativity will afford!

GottaSki Mentor
Last night, our group leaders said if you want to eat out, stick to the better restuarants which are now catering to celiac...don't go to fast food places like Applebees, PFChangs, and such...too much chance of CC there.

Hmmm, while I agree that you need to be careful about choosing restaurants, I strongly disagree with including PF Changs in the list to stay away from. We have found that their gluten-free policy is fantastic and implemented very well by everyone including hostess, waitstaff and chef at two PF Chang locations. Many restaurants with gluten-free policies don't train their staff. We find that it is obvious when a restaurant and their staff understand our needs as we state them or do not understand or are careless with our requests.

While traveling and business meals can be tough, it is probably best to order simple food (grilled meats, steamed vegies, rice or baked potato). I understand that you don't want to bring your own food, but how about throwing a gluten-free dressing in that briefcase to add some flavor?

Good Luck and certainly don't quit your job - well at least not because of your dietary needs :)

tarnalberry Community Regular
Hmmm, while I agree that you need to be careful about choosing restaurants, I strongly disagree with including PF Changs in the list to stay away from. We have found that their gluten-free policy is fantastic and implemented very well by everyone including hostess, waitstaff and chef at two PF Chang locations.

Some here have had really bad luck with PFChangs. The effectiveness of their training and staff seems to vary significantly from location to location. I highly recommend trying out a place (not eating if you don't feel safe) and seeing how it goes. Sure, this risk is not for everyone, and I'd certainly stay away from ones with a bad reputation, but it's an option. (I've had luck in Bellevue, WA; Walnut Creek, CA; Irvine, CA; and Long Beach, CA; not to mention a few others I don't recall at the moment.)

lovegrov Collaborator
Maybe so...but thats one thing I will never do...bring my own food to a restaurant. Id rather not eat at all and that's usually what I do when i go out and people are eating . im just not gonna be that person who does that

Please explain what exactly is wrong with that.

richard

Mskedi Newbie

I'm curious why you're so opposed to bringing your own food as well. If the restaurant you're going to is one you trust and will cater to you, that's one thing, but if you know you can't eat... why not bring your food? There are many people out there who are actually uncomfortable when they're eating and someone else isn't -- I've yet to meet anyone who's uncomfortable when someone brings their own food for dietary/health reasons. I've done both several times (as a vegetarian, not because of Celiac yet, and generally in catered work situations), and bringing my own food put a LOT less attention on me than not eating.

Three Ds Newbie

Not being able to eat out at very many places has been one of the most difficult changes for me. I really miss my weekly lunch with friends and I'm thinking I will start eating before hand and go and just get something safe like a coke.

For those of you who wrote about bringing your own food to restuarants . . . I never thought about doing this and have heard that in some areas you cannot do so due to health code/regulations. Has this been a problem for you? Are there ways around the "code"? Or are you just in an area where it's not against the health regulations?

GFgirly Newbie
All I know is, this is what Dr. Green has told us as a speaker. I also know, when I get glutened, often times I am sick for at least 3 weeks and up to 4 months.

I have taken my own food to a restuarant, and they were told before I went, that I was. My boss was throwing a going away party for one of our workers, and told them I could not eat their foods. They gave me a plate to put my food on, and no one but us knew.

Choose your battles, if you prefer to get sick by eating out, that is your option.

Last night, our group leaders said if you want to eat out, stick to the better restuarants which are now catering to celiac...don't go to fast food places like Applebees, PFChangs, and such...too much chance of CC there.

Just a little note***

PF Changs is now gluten friendly :]

Open Original Shared Link

That's their gluten free menu.

Some other restaurants I've found helpful are Chili's, Pizzasalad (if you're in the area), Wendy's (if you want fast food), Chipotle, BJs (last I checked they were reformulating their allergy menu)

Honestly if you just alert the manager or take your server aside or even call before you come in to eat, many restaurants will be very cooperative especially small, personal restaurants. These people want you to give them business and will most likely do anything to make you comfortable. If I don't have the option of picking the eating place I either eat a garden salad and eat something else after or if I have time I'll research beforehand and see which gluten free options are offered and how well the restaurant controls contamination. I've found that most people who I tell about my disease to, are naturally curious and in satisfying thier curiosity i'm also heightening the chance that anyone in their family with undiagnosed gluten sensitivity or celiac's will be given the opportunity for proper diagnosis. Most family members and friends who recognize and symptoms or complications that I discuss will talk about the possibilities with their suffering family members. You don't need to preach your disease, but you also don't necessarily need to hide it. It wouldn't be the first thing I tell someone that I meet but if the need comes up I wouldn't hesitate to say anything. Consuming gluten to satisfy those around you is a horrible idea; you need to be doing everything to keep yourself healthy. If it helps here's a link to a website with gluten-friendly restaurants. Also checking with support groups in areas your traveling to will provide you with information on grocery stores and other restaurants in the are that would be good to eat at.

Open Original Shared Link

Open Original Shared Link

Good luck and stay healthy!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.