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What Do You Do


scoobydoobydoo

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scoobydoobydoo Newbie

??

have any tips and tricks to make the gluten pass through your system quicker or lessen the immune reaction? anything in particular you do to relax and take your mind off the glutening?


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txplowgirl Enthusiast

I start drinking water, it seems to help me, then if possible I go lie down and try to go to sleep with a heating pad on my tummy.

StephanieM Newbie

Me too. It's only happened once at a restaurant, where I was told as soon as I swallowed the bite, that my server was wrong and there was gluten in it. I drank lots of water to almost 'dilute' the food, and in its tiny amount, I avoided the stomache bloating and discomfort.. I think even the dh if I remember correctly.

However, all the water in the world doesn't change my other symptoms of muscle aches, chills, migraine, etc.. it only seems to remedy the bloating, if I drink immediately.

  • 2 weeks later...
brigala Explorer

Eliminating all dairy from my diet for a week or two will significantly reduce (but not eliminate) the symptoms of glutening for me. The worse the glutening, the longer it takes. I ditch dairy for a few days even if I don't know I've been contaminated but know there's a chance; like if I eat in a "new" restaurant or at someone else's house. That way I don't get violently ill even if I do have a reaction.

-Elizabeth

mysecretcurse Contributor

My reactions are all in my skin, joints, mouth(gums) and my brain... and no... there is no stopping it. :(

flourgirl Apprentice

I just hold onto my hat and ride it out. My immune system remains in high gear even on the diet (I have other disorders, too). There is not stopping the disaster for me....except to be even more vigilant about food, and deal. Hopefully for you it's short-term and not too hard to get through :)

OptimisticMom42 Apprentice

benedryl - hot water, cherry juice, maple syrup, Miralax tonic - allergy cream on my spots and in the creases around my nose if they itch or burn

I promise never to do that again, ever ever....


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CGally81 Enthusiast
??

have any tips and tricks to make the gluten pass through your system quicker or lessen the immune reaction? anything in particular you do to relax and take your mind off the glutening?

Since one of my symptoms is becoming hungry from it, what I did was I'd grab other food. I noticed that certain food tended to reduce the symptoms faster than other food. A certain brand of popcorn (Herr's) did it for some reason, as did M&Ms. Other food didn't have as much of an effect.

And I'm talking about it helping the neuro symptoms (brain frog, etc.) as well. In fact, the Herr's Popcorn helped it tremendously. That was before I even realized I had gluten intolerance, or what was happening.

Btw, I'd bought chewable L-Glutamine tablets. I hear that L-Glutamine can help you recover well, and from experience, I can tell you that fish REALLY helps a lot. Having flounder for dinner totally undid my nasty symptoms that I'd been having one day.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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