Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet (SCD)

AliB

By AliB
in Food Intolerance & Leaky Gut

Recommended Posts

Gobbie Apprentice
Gobbie
Posted

Wow, gobbie, what do you eat?

Here is a link to the breaking the vicious cycle website that will give you info on the SCD, including the leagl foods list:

Open Original Shared Link

Thank you so much for the link, checking it out now.

What do I eat.. I know :0

My menu is always the same and very limited if I want to look after my health.

I can only eat a certain amount of varied fresh vegetables and fruits.

Ofcourse not all the kinds as I still have few allergies even to fresh stuff like nuts lol.

Things are alright as long as I am eating at home.

The major problem is dining out cos I can't eat anything lol.

Hard to socialise that way..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 2.4k
  • Created
  • Last Reply
psawyer Proficient
psawyer
Posted

May I ask what IMO is?

It means "In my opinion."
Gobbie Apprentice
Gobbie
Posted

It means "In my opinion."

Oh, thank you!

lol.

  • 3 weeks later...
GFMichigan Newbie
GFMichigan
Posted

Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

  • 1 month later...
Guest Ellen Martino
Guest Ellen Martino
Posted

Hi, this is my first post! I've just spent a good week researching SCD like crazy and I think I'm finally ready to tackle the diet, slowly but surely. I've been going back and forth about it, my symptoms are not as severe with most of the people I read about, but I have had bloating and gas filling up my stomach every time I eat, no matter what I eat for almost 2 years, and I know I need to clear out my system and heal (and get rid of those nasty grains and starches). I also was very apprehensive at first, because over the past year I have lost about 15 pounds (I was not overweight) so I was scared that I would get to under 80 pounds (i'm 4'11 and female) with the diet. So the question was - should I do the intro and go through the stages slowly or not? I decided that yes, my body needs a reboot, and especially after reading this site that you recommended:

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

I understand that for true healing to take place I should follow their advice about progressing through the stages very slowly. It seems like the e-book has a lot of great info, and the free chapter kind of sucked me in. Have you downloaded the whole e-book? I'm very tempted to buy it, since it gives a lot of step by step info about how to progress through stages, how to cook food, etc. I know a lot of people say, do whatever is best for you, but I need structure damnit! Anyway, I was wondering if anyone had any success following the advice of the book and would it be worth it to purchase it?

I'm so happy to be finally part of the conversation, I've been reading this forum for a week straight and only got up to page 70! Lots of great people, very interesting info!

~Ellen

jenngolightly Contributor
jenngolightly
Posted

I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

  • 2 weeks later...
Carol Frilegh Enthusiast
Carol Frilegh
Posted

Hi, I've been following this thread for quite a while and it helped me finally start the SCD Diet.

I can't say enough about this diet, I have been on it since July of 09. It's not fun at all, but it is so worth it! The gluten-free diet never did the trick and after 7 days on this diet I was feeling like a normal person for once...

I just got the courage to finally sign up to tell everyone that this diet is the one thing that finally allowed me to live a "normal" life and have some decent digestion and health. So I wanted to pass along a couple resources I used to get started last summer (because I know it is tough after reading BTVC... it's sorta confusing).

pecanbread.com is a great resource that helped me answer many questions about the diet, they have been around forever and are more geared towards parents of autistic children, but either way the information is the same.

scdlifestyle.com is a newer community that has a blog and if you look on the sidebar you can download a free chapter from their book on how to start the SCD diet in 24 hours, which is awesome for helping you get started right away. Seems like they have some decent stuff and know what there talking about. Guy has Celiac too!

scddiet.org has some awesome recipes for when you are further down the road on the diet, plus it's a great resource to find some specialty items that are local to your area.

Anyways, I hope this helps someone finally start feeling better like I did. If you have any questions about the diet or anything send me a message or post on this thread, I will be glad to help if I can.

Good luck!

I have been following the SCD for ten years and probably will follow it for life. I have been able to add a few things after all this time but don't do it often. Please be aware the blog you mention is written by people who have not been on the SCD diet for a long time and all the information may not be applicable to a strict version of SCD. The gentlemen have written a book which claims to tell you what Elaine Gottschall left out. Elaine researched the SCD for nearly four decades and it is presumptuous to assume one knows what she left out. The authors certainly seem very enthused and sincere and deserve praise for their extensive and interesting articles. If you want to verify authenticity on SCD foods supplements and instructions, refer to:

www,breakingtheviciouscycle.info

www.pecanbread.com

Some of the SCDLifestyle information has been gleaned from these two websites above in addition to the book on SCD, "Breaking the Vicious Cycle." Use extreme caution with store bought foods and know you are using them at your own risk even if the ingredients have been verified.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carol Frilegh Enthusiast
Carol Frilegh
Posted

I've jumped around in this topic, but don't see the answer to this: It seems that there's quite a bit of sugar involved in the diet - even though it's not from simple carbs. The diet really pushes fruit and juice, so I'm worried about how much "crashing" I'll do if I decide to commit to the diet. You know, eat a lot of -ose, then crash a few hours later so I need to eat more -ose. Has anyone had this happen or know of anywhere that I can read about this?

https://www.celiac.com/authors/143/Carol-Frilegh

  • 2 weeks later...
Katie B Apprentice
Katie B
Posted

Hi there,

just wondering if anyone has had success going off of the diet? I believe in its validity but don't want to restrict myself forever.

Any advice would be appreciated!

  • 2 weeks later...
kannne Explorer
kannne
Posted

I have been on 100% SCD doing the stages since august 09.

Now I am able to tolerate 8 vegetable (boiled to death..) and lean meat + white fish :)

  • 3 months later...
gary'sgirl Explorer
gary'sgirl
Posted

It looks like no one has been on this thread for a while, but I was hoping that maybe some of you who have tried the SCD would tell your story. That is if it worked for you or not and if you have any advice about it.

I am going to buy the book today and I think this is the most hopeful thing I have come across since I have not had any improvement from going gluten free.

I was diagnosed with Celiac November 2009 and have been gluten free for 11 months.

Along with taking gluten out of my diet I have also taken out many many other food groups including all the top problematic ones.

Thanks for any replies!

~Sarah

ClevelandRocks Newbie
ClevelandRocks
Posted

I am wondering if this diet helps Candida issues and if not, how I can also kill the Candida while on the SCD diet? Anyone have experience with this?

  • 1 month later...
jess7396 Newbie
jess7396
Posted

Hello, I am new here. My daughter has recently become ill with what we will only be able to assume is (partly) Celiac or severe gluten intolerance. Prior to July, she was a fairly healthy (though very thin) child (age 10), with her only major complaint over the years being horrible canker sores that would take over her mouth on a regular basis (I have always suffered them as well, as did my father).

In July she suddenly became very ill with many digestive symptoms. To make the long story short, we know that she carried the HLA DQ-2 and HLA DQ-1 alleles, and that she now reacts violently to gluten with digestive symptoms as well as horrible migraines and peripheral neuropathy.

She is 100% gluten-free and will remain so, so we decided to forgo biopsy as it seems to be a risk with little benefit, since she clearly needs to be gluten-free either way.

The only other thing we know is that she shows evidence of a prior EBV infection, perhaps that was what started this whole mess?

On to my point in posting on this thread. I've read quite a bit about GAPS and SCD over the months she has been sick (she is not completely better, though much improved on the gluten-free diet).

What I am wondering, as we consider this option and discuss going through such a diet with her- has anyone here actually been "cured" of celiac disease with this diet? I understand that by nature these diets are gluten-free and very easy on the digestive system, so I understand that she may well benefit from the diet in making her "all better", but I am curious about the idea that after a couple of years, perhaps she might be able to all things, simply being sure grains are "properly prepared" and a small part of her diet, etc.

I'd welcome any thoughts on this, thank you for your time.

~Patty

  • 7 months later...
taysic Rookie
taysic
Posted

I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

jenngolightly Contributor
jenngolightly
Posted

I can tell you from my experience -- this WORKS. completely, completely works. I have Celiac and IC... and every day I would experience sharp, jolting pain in my abdomen... like someone was taking a knife to it and scratching. For over a year, I've been Gluten free and it's helped but not insanely... I've always been waiting for the symptoms to go away while eating cereals and grains and flax and roots.. all kinds of foods I thought I shouldn't be suspicious of.

I'm just beginning out on this... but anything to make the pain go away.. I don't mind at all being on this for life. It's not life unless you're healthy! And I've never had more energy, clarity, ease within my body than on this diet. If you are thinking about... you should definitely try it!!! :)

Happy to hear that you're feeling better. I had the same reaction! I didn't have to stay on the diet forever. I started adding other foods back in at about 11 months. I'm still mostly SCD, but not completely. I feel great now!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748
    Lunaluv
    Newest Member
    Lunaluv
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.