Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Of The Test Results Are Back.

Roda

Recommended Posts

Roda Rising Star
Roda
Posted

Well, at least for now I feel that I can give the celiac a rest for my oldest ds and we will continue to monitor him. I really think that everything is related to not feeling well with his sesonal allergies and his susceptibility to strep. Here are his results:

Gliadin IgA AB-- 4 unit (19 units or less ...Negative)

Gliadin IgG AB-- 1 unit (19 units or less ...Negative)

Tissue Transglutaminase Ab IgA--4 (values greater than 19 positive)

He has had a total IgA last year and is not deficient. I am still waiting on the reticulin IgA Autoantibodies.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

Yes, but it is known that at least 20% of biopsy proven celiacs have negative tests...

I know af a little girl (from another forum) who only had the endomysium antibody test positive.

How old is your child?

Often tests are unreliable with children under three because they do not make enough antibodies, but that was why the total IgA was done.

nora

Roda Rising Star
Roda
Posted
  • Author
Yes, but it is known that at least 20% of biopsy proven celiacs have negative tests...

I know af a little girl (from another forum) who only had the endomysium antibody test positive.

How old is your child?

Often tests are unreliable with children under three because they do not make enough antibodies, but that was why the total IgA was done.

nora

He is just over 8 1/2 years old. He isn't having any symptoms to indicate a biopsy. He did not have the EMA done because the reference lab would not do it unless the tTG was positive. I had another post about that asking the importance of having it too with the other tests, but noone here would reply. So I did the labs where my insurance would pay. I didn't want the out of pocket expense of out of network. It would have been nice to get some other input though. Oh well. I do the best I can. I don't think this is the issue right now. It was easy to think so since I'm diagnosed, but I can't blame everything on celiac. I have had a pretty good instinct with both of my boys thus far that has served me well and I don't think this is it at this time. Thats not to say that I won't be keeping an eye on things.(I had him retested to include all the tests this time) Thanks for the reply.

lizard00 Enthusiast
lizard00
Posted

Out of curiousity, are you having him tested every year?

I had my son tested last year around this time, and everything came back negative. I believe his tTG was 0. I understand how you feel, it would be easy to blame everything on celiac since I have it. I feel like I walk this line that borders awareness and paranoia... it's crazy.

I'll be seeing his pediatrician in about two weeks for my daughter's one month checkup, and I am going to ask him what his opinion is on the frequency of having him tested. Then I might ask my GI when I see him next... ;)

Roda Rising Star
Roda
Posted
  • Author
Out of curiousity, are you having him tested every year?

I had my son tested last year around this time, and everything came back negative. I believe his tTG was 0. I understand how you feel, it would be easy to blame everything on celiac since I have it. I feel like I walk this line that borders awareness and paranoia... it's crazy.

I'll be seeing his pediatrician in about two weeks for my daughter's one month checkup, and I am going to ask him what his opinion is on the frequency of having him tested. Then I might ask my GI when I see him next... ;)

I don't know how frequently I should have him screened. We were having some isolated behavior problems and thought that this could be it. He only had a total IgA and tTG last Nov. so I asked his allergist to run all of the tests this time to cover all the bases. His tTG last Nov was 2. I can completly relate to the awareness bordering on paranoia. Not only do I have celiac, but I work in a hospital too and it can be quite bothersome to know things. Sometimes I think ignorance would be bliss. :lol: No not really, if that was the case, I would still probably be undiagnosed. I guess I just want to make sure if he is going to develop something I want to catch it early and not have him suffer. I have a 4 almost 5 year old too who had the same screening last year as my oldest ds. I have not had him retested yet and will probably wait awhile. My oldest ds's seasonal allergies are really bad this year and I really believe this is the problem. We had a two year period when they were really under control and he was feeling well and not sick. I guess the honeymoon is over. We'll get back on track though.

nora-n Rookie
nora-n
Posted

Hi, sorry, we are not all online here every day...

That case with the little girl with only the endomysium test positive, was on another forum (delphi) so you could get more answers with important questions if you post them several places....maybe someone here in the children folder could have related and answered that it is not uncommon to only have one of the tests positive.

Still, about 20% of celiacs have negative blood tests.

There is another place you can use to test for early gluten issues, it is enterolab. They have a very sensitive IgA ttg and antigliadin stool test, that is where the antibodies show up long before the blood. But they pick it up so early that they can only call it gluten sensitivity, not celiac.

In case you wanted to prusue if gluten is an issue with the one with behaviour issues. They also test for antibodies against milk.

The gene tests give some kind of risk assessment.

The conventional celiac tests have a high cutoff, and this is intentional, so that they only pick up kinda severe celiac damage. They try to make them correlate with biopsy results showing severe villous damage.

nora

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Super Sensitive People
      2

      Alarming

      Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my...
    2. trents
      - trents commented on Scott Adams's article in Origins of Celiac Disease
      10

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

      Medical science has only recently begun to understand the link between the health of our gut biome and it's impact on other body systems. Very recently, scientists have discovered that gut bacteria play a role in the development of Parkinson's disease and Alzheimer's disease. Up until very recently, the only real concern in medical science circles about the...
    3. RMJ
      - RMJ replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      I would not eat it. Some people are more sensitive to small amounts of gluten than others. Until you know how sensitive you are It is probably best to be extra careful. Is this a crustless pizza? I looked on the Papa Murphy website, clicked on nutrition and filtered by “avoid gluten”. The only pizzas that it said were gluten free were crustless sli...
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Barilla gluten free pasta

      Has anyone had a reaction to gluten free pasta ? I made ground beef pasta and gluten free sauce and I'm having every symptom there is. Nausea , constipated, burning pins and needles, anxiety...etc lots of pain 😞 headache 😭 Does this sound familiar? I'm literally bed ridden.
    5. Scott Adams
      0

      Fluffy Blueberry Buckwheat Pancakes That Are Naturally Gluten-Free

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,448
    • Most Online (within 30 mins)
      7,748
    JEBarry
    Newest Member
    JEBarry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my "new care",i thought. I had  scheduled appointment in March zoom call just to be dump, it was CANCELLED on their part! My appointment isn't there anymore! I do have appointment with Mayo clinic Tuesday on the phone. I also did talk to our local representative in Stanislaus office this past Friday, yesterday and ( Justin) thinks he knows about celiac disease. I don't think he understands because he told me he knows all about celiac! Well Justin why am I dealing with this bs in your county? Hintz the reason why I feel the need to go to city hall meeting yet I  don't have the medical  support....
    • RMJ
      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      By RMJ · Posted

      I would not eat it. Some people are more sensitive to small amounts of gluten than others. Until you know how sensitive you are It is probably best to be extra careful. Is this a crustless pizza?  I looked on the Papa Murphy website, clicked on nutrition and filtered by “avoid gluten”. The only pizzas that it said were gluten free were crustless slices. Papa Murphy’s nutrition  
    • Colleen H
      Barilla gluten free pasta

      By Colleen H · Posted

      Has anyone had a reaction to gluten free pasta ?  I made ground beef pasta and gluten free sauce and I'm having every symptom there is.  Nausea ,  constipated,   burning pins and needles, anxiety...etc   lots of pain 😞 headache 😭  Does this sound familiar?   I'm literally bed ridden.  
    • Known1
      Reverse Osmosis (RO) Water

      By Known1 · Posted

      Thank you for your reply.  I read the same thing about distilled water.  Oddly, drinking that has not caused any sort of reaction in my gut.  Nothing I can hear and feel anyway.  🤣  With that said, I have also switched over to spring water for drinking.  My traditional go to grocery store charges the exact same thing ($1.39) for a gallon of pre-bottled spring, distilled, or RO water.  The manual gallon refills of RO water have an attractive price of $0.49 per gallon, provided you use your own container.  Knowing it causes major bubble gut (and likely other issues) for me, I am avoiding all RO water moving forward.  In fact, I will gladly drink tap before RO water. Here is what Google says when searching "European study regarding reverse osmosis water". --Begin quote: European studies indicate that while reverse osmosis (RO) is highly effective at removing contaminants, it strips essential minerals (calcium, magnesium) and creates low-mineral, slightly acidic water.  Research suggests this may have long-term health implications, such as mineral deficiencies, while also negatively affecting the sensory quality (taste) of water. Key Findings from European Research & Reviews: Health Concerns: Epidemiological studies in Europe have associated low-mineral water consumption with increased risks of cardiovascular disease, cognitive decline, and reduced intake of essential nutrients. Mineral Depletion: RO systems can remove up to 95%+ of solutes, including minerals that are vital for health. Sensory and Quality Impact: Studies show that reducing the mineral content (TDS) of water makes it taste bitter or flat, with optimal, "fresh" taste found in water with a TDS between 190 and 350 mg/L, suggesting post-RO remineralization is necessary for better quality. Regulatory & Safety Context: While not banned, European regulations under the Drinking Water Directive emphasize the importance of mineral content, and countries like Germany often favor alternative treatment technologies that retain minerals. Industrial Application: In Europe, RO is widely accepted for industrial applications (e.g., food, beverage, pharma) due to its high purity output, but it poses challenges like membrane biofouling. Environmental Impact: RO is recognized to use more energy and waste more water (up to 15% more) compared to conventional treatment methods, raising environmental concerns in some municipalities.  Recommendations: Due to the loss of minerals, many experts recommend remineralizing RO water before drinking to improve taste and nutritional value.  --End Quote
    • knitty kitty
      Reverse Osmosis (RO) Water

      By knitty kitty · Posted

      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.