Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hashimoto's And Celiac?


adm07

Recommended Posts

adm07 Rookie

Hi!

I was just diagnosed with Hashimoto's Thyroiditis. Someone said that if you already have an autoimmune disorder, then you're likely to have Celiac's. So I did some reasearch and found these symptoms on google:

Abdominal pain

Abdominal distention, bloating, gas, indigestion

Constipation

Decreased appetite (may also be increased or unchanged)

Diarrhea, chronic or occasional

Lactose intolerance (common upon diagnosis, usually goes away following treatment)

Nausea and vomiting

Stools that float, are foul smelling, bloody, or


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor

You can have celiacs without any symptoms at all.That doesnt mean it still cant do damage. That is a scary thought!

You would want to ask for the celiac panel:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Your doctor might not let you get the test because of no diarrhea, thats what they told my mom(some doctors are really uneducated about celiacs) , tell them many close relatives have been diagnosed and you were recomended to be tested.

Also, there is the chancce of a false negative. I had 3 negative tests, but i went gluten free and all my headaches went away, and my stomach aches are less(although right now i feel very nauseaus from rice pasta spaghetti...hmm) but i am so much better gluten free. and i went from 80lbs to 100!! so thats a plus!

We used enterolab to see if i was reacting to gluten. enterolab is an online order of stool and gene tests for multiple food intolerances. they are really great. i found out i was reacting to gluten, and slightly to casein(in dairy) and that i have the DQ8 gene which is most commonly associated with celiac.

adm07 Rookie

Thanks for your reply!

So is it common for someone to have no symptoms AT ALL even during childhood and still suffer from this?

I'm thinking of getting the enterolab done but it just costs so much :( Do you know if insurance an cover it or part of it?

And congrats on your weight gain but that's the last thing I want lol I want to lose 20 lbs.

I dunno...I feel like I must have actual symptoms. I'm just super scared to have this.

Not everyone with hashimoto's has to have celiac's right? :(

Roda Rising Star

Just because you have one doesn't mean you'll have the other. However that said, autoimmune diseases do tend to go together. I was diagnosed with Hashimoto's in 2000 after two miscarriages. I didn't have any problems until Feb. 2006. I started with a racing heartbeat, hair falling out and extreme fatigue. Then I started with heartburn. Several (I mean several) doctor visits later and not until Dec. of that year I found out I was anemic. All but the hearburn can be atribuited to that. I was told it was because I am female that was why I was anemic. I started seeing a really good endocrinologist and she tried to get my ferritin levels up without sucess and treated my thyroid. About 1.5 years later I asked her what she knew about celiac because no one could find a reason for the anemia and low ferritin. She did at least order the tTG (in hindsight wish I had all the panel done) and it was overwhelmingly positive. A month later I had biopsy confirmation. I have read articles that having hashimoto's is enough of a reason to get screened for celiac and vice versa. A good endocrinologist should know the connection and screen you for it and if necessary, refer you to a gi doc.

Maggie Mermaid Apprentice

One of Dr. Mary Shomon's books on the Thyroid pointed out that there could be a correlation between Hashimoto's & being gluten-intolerant and/or celiac. I elected to go gluten-free after being diagnosed with Hashimoto's in addition to having an enlarged thyroid that they wanted to take out or treat with radiation. I only had a couple of the symptoms listed but I thought it was worth a try. It's been over a year & at the last checkup, the doctor said the thyroid wasn't getting any bigger. I can only hope that the trend continues. In your case, you might find that you feel better without the gluten products. It's possible that because of your age, you aren't as severely affected as an older person so you're not exhibiting those symptoms. Being gluten-free is alot less invasive approach than even taking drugs.

daphniela Explorer

You won't always gain weight after going gluten free. I have been losing 1-2 pounds a week since gluten free. I still have 20 more to go and hopefully my weight loss stops when I get to my goal weight.

  • 7 years later...
satindoll77054 Newbie

You are right about having to lie about it being hereditary; so that, the  doctor will test you.  I had to. When the blood tests came back for Hashimoto's and one other autoimmune disease, he referred me to some female endocrinologist. I don't like to go to female doctors. So, I went to a top notch Rheumatologist. He did further testing and found that the other autoimmune disease is Celiac. He treated me with B vitamens, folic acid tablets and some meds to help get my system back in order. He also sent me to Imaging for many tests that showed problems with my organs.  Then, he told me to see some specialists regarding my diseased lungs, life-threatening Hiatal Hernia, spots on my brain, moderate to severe arthritis, and my throat was closing up.  I had to have surgery to open it back up.  My small intestine was devoid of villia (small hair like structures that absorb vitamens and minerals in the small intestine].  He put me on a gluten free diet and now I feel myself again.   My vocal cords became paralyzed and I am currently seeing a vocal cord specialist. Also, my nails developed fungal infections and my eyebrows disappeared. Most of my hair fell out and this straw-like hair grew in it's place. These two diseases together can become monsters to people like me. I am 68 years old.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,747
    • Most Online (within 30 mins)
      7,748

    hampiebee
    Newest Member
    hampiebee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.