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What A Day


SGWhiskers

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SGWhiskers Collaborator

I had some goofy things happen today, and I feel the need to let it all out. First, I realized I was catching the wretched cold someone in the office had last week. I'm looking forward to that upcoming fun. Then I requested my old hospital send all my new records to a new rhumatologist I'm seeing this Saturday. Well the old hospital sent the records to our office fax machine instead of to my doctor's office. That meant that the secretaries were there picking up 80 pages of my personal medical records. And page 1 had OBGYN stuff about aspects of intercourse, # of partners, depression diagnosis, and infertilitiy. Really, I didn't need the ladies I work with knowing that information. They were discrete and said they didn't see anything, but seriously, how can you flip over 80 pages without seeing a word here or there. A LOT of it was depression and infertiity stuff. I'm trying to get over being mortified.

Then I headed over to CVS to figure out what cold medicine was gluten, lactose, ibuprofin free and had the old sudafed instead of the new weaker stuff. 1:15 minutes later, I had given up on tylenol's customer service and gotten the ONE item that CVS brand has that was even close. It has ibuprofin, but I'll just torture my tummy for the week.

BLAH.

And cough drops... Are any safe? I remember reading halls was not, so I bought regular life savers and starburst to suck on, but if there is something menthol out there, it would be more soothing.

Afrin??? anyone know if it is gluten free.

At least treating the celiac this well has kept me from getting sick for a year. That is the longest stretch in my life.

Thanks for letting me talk it through.


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celiac-mommy Collaborator

Sorry you're having a rought day! I know that this past spring, the Halls Naturals were gluten-free. My dd ate them while she had a nasty cold.

Feel better soon!

jerseyangel Proficient

You poor thing! :( I'm so sorry about your day. I can help with the Afrin--it is gluten-free. I'm actually on it now, compliments of a dysfunctional eustacian tube <_<

I've used Robitussin Honey Lemon Cough Drops and their cough syrups before with no problems.

I don't use the multi symptom cold meds--just Extra Strength Tylenol as needed, so I can't help much with those.

Hope the cold turns out to be mild and that tomorrow's a much better day :D

Wenmin Enthusiast

Ricola Natural Herb Cough Drops and Tussin Diabetic (salt, dye, sugar, etc free) are both Gluten free. (I think) I've been using these for quite some time without any side affects. Both can be found at CVS.

Wenmin

heatherjane Contributor

Just my two cents, but I would complain to the hospital that sent your records to the wrong fax #. That is a major violation of HIPAA policies. I work for a health insurance company and it is constantly drilled into our heads about how careful we have to be w/ private health info. Hospitals/Dr's offices are held to the same standard.

Hang in there - tomorrow is a new day!

mommida Enthusiast

I'm sorry about your day.

I'm stuck having a month of torture. I have caught someone trying to get money from a non-profit that they are NOT entitled to. This woman is now harrassing me. I feel bad because I think she needs some mental help, but I am ready to involve the police if neccessary.

I know, no good deed goes unpunished. I really just didn't need this garbarge right now. I have the sinus infection starting too.

Hang in there kiddo! :)

ang1e0251 Contributor

Wow, you win for most emotionally draining day! I take Dayquil or Nyquil with no problems. Haven't tried a throat drop but straight honey is very good to soothe the throat and help a cough. When something is trying to get us, we mix up a cup of hot water with a tblspn of honey and one of apple cider vinegar. If you like it sweeter, add more honey. It will shorten a cold and is very soothing on the stomach, the throat and sinus'.


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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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