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Anyone Stopped Eating All Grains Including Rice?


River*

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River* Contributor

Hi, I think I need to stop eating rice as well as all other grains.

I just need to come up with a replacement food first. I think I am going to try bean flours by Bob's Red Mill.

What was the difference from before to after for you? I still feel out of it and it has been about 6ish months gluten free I am pretty sure eliminating rice will make a difference. Did eliminating rice make you feel with it again?

Thanks, Riv


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nasalady Contributor
Hi, I think I need to stop eating rice as well as all other grains.

I just need to come up with a replacement food first. I think I am going to try bean flours by Bob's Red Mill.

What was the difference from before to after for you? I still feel out of it and it has been about 6ish months gluten free I am pretty sure eliminating rice will make a difference. Did eliminating rice make you feel with it again?

Thanks, Riv

Hi Riv,

I'm planning to go grain free too. I've been reading blogs like Elana's Pantry:

Open Original Shared Link

and NoMoreCrohn's:

Open Original Shared Link

Elana bakes with coconut flour and almond flour only. I think she is now dairy free as well. Erin at NoMoreCrohn's is following the Specific Carbohydrate Diet, which is a bit different (not dairy free). There's a MONSTEROUSLY long thread in this very forum, all about the SCD (152 pages!):

https://www.celiac.com/gluten-free/index.php?showtopic=62006

I haven't done this quite yet, but my daughters Robin and Cheryl and Robin's husband Steven have all gone grain free and say they are feeling MUCH better! Cheryl has lupus and Addison's Disease, and has improved enormously....she isn't sleeping all the time now, and has energy to do things. Steven is now off all his medication (he has fibromyalgia, as do I), and is running 1/2 mile a day. Robin says she's lost 15 pounds.

In any case, the people here on the SCD can also give you their testimonials.....I really think grain free is the way I'm going to have to go.

Good luck!

JoAnn

P.S. I saw your post in the other forum inquiring about people from Vancouver Island. Does it count if you WANT to be from Vancouver Island? :) My husband and I keep our eyes on the real estate offerings in that area because we'd love to live there some day.....you're lucky!

Wolicki Enthusiast
Hi, I think I need to stop eating rice as well as all other grains.

I just need to come up with a replacement food first. I think I am going to try bean flours by Bob's Red Mill.

What was the difference from before to after for you? I still feel out of it and it has been about 6ish months gluten free I am pretty sure eliminating rice will make a difference. Did eliminating rice make you feel with it again?

Thanks, Riv

Hi Riv,

Yes, I discovered that grains were the culprit in the terrible bloating and gas were I got after going gluten-free. I looked 8 months pregnant for about 2 months and grains (all kinds, rice, quinoa ammaranth) were the culprit. I have an occassional rice cake now (mostly air) and it doesn't cause problems. I have also eliminated dairy, cashews, beans and anything processed. Feeling much better. Hope it works for you!

Crimson Rookie

I'm off ALL grains right now. I used to be able to tolerate rice. But that's not working out for me these days. So, no grains for me either.

lonewolf Collaborator
Hi, I think I need to stop eating rice as well as all other grains.

I just need to come up with a replacement food first. I think I am going to try bean flours by Bob's Red Mill.

I've been on the Specific Carbohydrate Diet for 6 weeks and it's going well. I'm doing it with my 14 year old son, who has Ulcerative Colitis. It's a bit of a challenge, but do-able.

I would suggest that you try nut flours - especially almond or pecan - and coconut flour rather than bean flours. The beans are harder to digest. There are lots of good recipes for nut and coconut flours available online. The flavor is good - MUCH better than bean flours.

AliB Enthusiast

Oh yes. I have the dubious privilege of starting the SCD thread. It has worked well for me over the last 18 months, but I still have a few issues.

Those, I think are because I have not been as disciplined with it as I should have been, but particularly as far as taking probiotics and especially the yogurt.

After a long period of research and investigation over the last 18 months, although many of my health issues have gone I still have some digestive issues - but more to do with uncleared toxins. I have now come to the conclusion that, although I have now gained control of Candida pretty well, I am still battling with SIBO (small intestine bacterial overgrowth) which does seem to be a problem for those with many health problems including gluten intolerance and diabetes, both of which I have.

I was reading a thread on an IBS forum about SIBO, and one chap said that he got rid of his and keeps it at bay by taking Kefir. He had to take it for about a year before he felt that he was really rid of it. I would suspect that pretty much any fermented/cultured food would help - live plain yogurt (especially the SCD 24-hour home-made, which has a much higher concentration of bacteria), Kefir, Kvass, Kombucha, Sauerkraut, fermented cabbage juice - you name it.

It struck me that whilst I do feel that those cultures in the World that are still relatively healthy don't eat anything like the carbs we do, and certainly no processed rubbish, what most, if not all of them have in common is that they daily consume some kind of fermented food. Even the Inuit, as I am fond of quoting, eat their putrid fermented fish. So all these cultures get good forms of probiotic cultures.

The little pathogenic beggars though, not only shouldn't be in the upper intestine, they are also capable of converting and switching off enzymes, changing and interfering with processes in the digestive tract, producing any amount of different toxins and by-products that affect us in different ways, and can even turn genes on and off! Candida alone can apparently produce under different circumstances at least 70 different toxins!

I am sure the high-grain, high-starch, high-sugar Western Diet encourages their population, whilst things like antibiotics, especially when they are used unnecessarily, kill all the gut defenders and leave it wide open to pathogenic infestation. The, until recently, uninhibited use of antibiotics has caused a major surge of resistant bacteria - a surge that Medical Science is extremely concerned about as we have the scenario of pathogenic bacteria with nothing to control them with. Antibiotics seem to have been a double-edged sword. But then don't most drugs create the same problem? Giving with one hand, but taking away with the other!

The reason I have posted this is because I feel that yes, whilst we do have issues with grains and starches, I am convinced that is due to the gut bugs. I am really going to knuckle down with the probiotics and yogurt now. It will be interesting to see if I cope better with grains and starches if I get these little beggars under control.

ang1e0251 Contributor

I agree about the bean flours. I've ditched the grains except rice but I have cut down on that. I have noticed that I have a problem with other carbs like beans and squash. It really slows down my digestion and my weight goes up. I will reserve those for ocasional days along with potaoes.


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nasalady Contributor

I went grain free just a couple of days ago, and I have to say I feel better....less bloating!

Also, I've lost 5 pounds!! :)

JoAnn

jerseyangel Proficient
I went grain free just a couple of days ago, and I have to say I feel better....less bloating!

Also, I've lost 5 pounds!! :)

JoAnn

That's great! The same think happened to me when I started cutting them out at the beginning of August :)

  • 1 month later...
woodnewt Rookie

Yes. Rice (both brown and white rice) gives me the most terrible migraines, and I was suffering from debilitating headaches non-stop until I finally figured out it was the rice. Even the smallest amount of rice will trigger it, so I cannot consume anything with any rice ingredients.

I eat quinoa, potatoes, tapioca, banana and buckwheat for starch.

chasbari Apprentice

I have gone grain free since January and have found that it makes gluten-free compliance so much easier. I pretty much stick with the antiinflammatory recommendations of the Paleo diet to help lessen my rheumatoid arthritis and it has worked quite nicely. I, too, tried rice and alternative grains initially and only felt less worse. When going grain free and legume free as well I began to feel MUCH better almost overnight.

CS

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    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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