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Is This Neuropathy?

Wolicki

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Wolicki Enthusiast
Wolicki
Posted

WEll, I guess the fun never ends :o So over the last few days, yet another new symptom has appeared. I get this tingly pins and needles feeling in my legs. Mostly it's is my ankles and the sides of my feet. It also gets kinda tingly behind my knees, and it feels hot, like only the backs of my knees have a fever. Is there no end to the crazy things that pop up after going gluten free? Sheesh!

I read somewhere that this can be caused by a deficiency of B12. Mine was checked a month ago and it was in the normal range. But I also read in this forum that even if you are in the normal range, you could need additional supplements? I take a multi and also an additional B Complex daily. My glucose was also normal.

I had a load of blood tests done Friday, so I will have actual numbers to look at tomorrow. If anyone has any ideas, or can direct me to a source for when to supplement, even if you are in the normal range I would appreciate it!

Thanks :D

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tarnalberry Community Regular
tarnalberry
Posted

I do not know if this could be a deficiency (I say that because the tingling is so very targeted), but I certainly won't say no. Given what you say, however, from the outside of the foot to the ankle to the back of the knee - that is the path of the nerve bundle that runs out of S1 (the first vertebra of the sacrum, at the top). Have you had any back pain? OR Have you been doing any housework/yardwork/work-work/exercises/sports that can be very load bearing on the back in a bent over (forwards or backwards) or twisting fashion? Even a fall can cause injury there.

I don't know if it's an option for you, but if there is any possible inciting injury or activity, I'd probably check with my chiropractor first (but *not* all chiropractors are the same, and one that does adjustments and sends you on your way isn't nearly as useful as one who will also give you appropriate exercises to help *keep* the adjustment in place without their intervention). Alternatively, but my experience has varied *greatly* here, I would see an orthopaedist who specialized in back issues. I have seen my regular GP for a herniated disc (thank you 50lb puppy, who needs to be lifted into and out of the car!), and ... it wasn't quite the treatment I would have preferred. But, depending on your GP, and their practice, it may be just fine as well. Anyway, I would *absolutely* get a professional opinion on the matter. If you cannot identify

ANY inciting injury or activity, I'd head right to your GP, since it's now a pretty open ended question.

Juliebove Rising Star
Juliebove
Posted

I have neuropathy. At times it can feel like my feet are asleep. Just sort of numb. At times I can't feel them at all. I have to look down to assure myself they are still there. At times it feels like big hands are crushing them. If I step on something on the floor...anything, could be a sock...it feels like I stepped on a sharp rock. In the beginning, it felt like I had socks on my feet even when I didn't and that there was a big round boulder attached to the bottom of my feet.

darlindeb25 Collaborator
darlindeb25
Posted

What was your B12 level...the normal range is 200-1000...anything below 500 is too low, even if the doctor didn't tell you it is.

Yes, it could be neuropathy. Neuropathy can be text book, or it can be random. We all have different symptoms, and the same symptoms. Tingly, hot spots, cold spots, feelings of bugs crawling on your leg, numbness, burning...there are so many symptoms.

Wolicki Enthusiast
Wolicki
Posted
  • Author
I have neuropathy. At times it can feel like my feet are asleep. Just sort of numb. At times I can't feel them at all. I have to look down to assure myself they are still there. At times it feels like big hands are crushing them. If I step on something on the floor...anything, could be a sock...it feels like I stepped on a sharp rock. In the beginning, it felt like I had socks on my feet even when I didn't and that there was a big round boulder attached to the bottom of my feet.

That does not sound pleasant at all :( I am so sorry you are going through this.

Wolicki Enthusiast
Wolicki
Posted
  • Author
I do not know if this could be a deficiency (I say that because the tingling is so very targeted), but I certainly won't say no. Given what you say, however, from the outside of the foot to the ankle to the back of the knee - that is the path of the nerve bundle that runs out of S1 (the first vertebra of the sacrum, at the top). Have you had any back pain? OR Have you been doing any housework/yardwork/work-work/exercises/sports that can be very load bearing on the back in a bent over (forwards or backwards) or twisting fashion? Even a fall can cause injury there.

I don't know if it's an option for you, but if there is any possible inciting injury or activity, I'd probably check with my chiropractor first (but *not* all chiropractors are the same, and one that does adjustments and sends you on your way isn't nearly as useful as one who will also give you appropriate exercises to help *keep* the adjustment in place without their intervention). Alternatively, but my experience has varied *greatly* here, I would see an orthopaedist who specialized in back issues. I have seen my regular GP for a herniated disc (thank you 50lb puppy, who needs to be lifted into and out of the car!), and ... it wasn't quite the treatment I would have preferred. But, depending on your GP, and their practice, it may be just fine as well. Anyway, I would *absolutely* get a professional opinion on the matter. If you cannot identify

ANY inciting injury or activity, I'd hand ead right to your GP, since it's now a pretty open ended question.

As a matter of fact, I have had some significant low back pain from working out. I have several herniated discs, and it flared up recently. I will call my chiro. Thanks :D

  • 3 weeks later...
momxyz Contributor
momxyz
Posted

(imagine Twilight Zone music now)

I have been gluten free since August 10th (with 2 off the wagon events) and have experienced relief for my rash. I see a direct causal relationship between the two, because when I ate bad stuff, the rash got worse. And improves when I'm gluten free.

I have been happy about the improvement with the rash, but in the last few weeks I have noticed that the tips of the fingers of my right hand have had a subtle tingling and numbness. It is more pronounced when I wake up and lessens during the day (no I'm not sleeping on that arm) but it's still a little bit there.

I had thought about neuropathy. But I am curious, why didn't I experience this before going gluten free?

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Wolicki Enthusiast
Wolicki
Posted
  • Author
(imagine Twilight Zone music now)

I have been gluten free since August 10th (with 2 off the wagon events) and have experienced relief for my rash. I see a direct causal relationship between the two, because when I ate bad stuff, the rash got worse. And improves when I'm gluten free.

I have been happy about the improvement with the rash, but in the last few weeks I have noticed that the tips of the fingers of my right hand have had a subtle tingling and numbness. It is more pronounced when I wake up and lessens during the day (no I'm not sleeping on that arm) but it's still a little bit there.

I had thought about neuropathy. But I am curious, why didn't I experience this before going gluten free?

Quite frankly, I think it's because this stupid disease has no rhyme or reason to it! :o Interesting thing is that mine started about a month ago, and I went gluten-free inJuly. It's at about the same time in recovery as you! Hmmmmmm.

I never had any neuropathy before gluten-free either. some have it before, some have it after. Perplexing!

Did any of the rest of you start getting neuropathy at 2 months or so into the diet? I would be very curious to know.

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