Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! I'm Starving To Death

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

So im sitting in my dumpy hotel in France eating rice cakes and apples for dinner. I walked around for 2 hrs going in and out of restaurants and not one of them could accommodate my diet. the ones that had potential were either completely booked or too expensive. last night i found a place with a great manager who worked her ass off to make my meal gluten free and I still got a reaction from it after.

i have also been on a candida diet and am now forced to load up on the food that I brought with me in my luggage just to survive..protein bars rice cakes, corn chips...all high in carbs and sugar. im feeling like crap cause im not getting any protein and all the sugar is causing my candida to flare up. i have an important company meeting this week and dont know how im gonna get thru it. i feel helpless! i went to the market to pick up a few things but not enough; they are all closed on sunday so i wont have stuff for during the week. i passed so many amazing restaurants & the food looked so good and everyone was eating, drinking and enjoying life while I was walking around like a helpless loser.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chasbari Apprentice
chasbari
Posted

Can you tolerate eggs? If so, can you gain access to some means to hard boil a bunch. I know when I am running a protein deficit and am too weak or tired to fix fish or burgers I just resort to eggs and it helps me to get to a point of functioning a bit better. Good luck. I hope you find something that works quickly and that you have plenty of strength for the upcoming meeting.

CS

elle's mom Contributor
elle's mom
Posted
So im sitting in my dumpy hotel in France eating rice cakes and apples for dinner. I walked around for 2 hrs going in and out of restaurants and not one of them could accommodate my diet. the ones that had potential were either completely booked or too expensive. last night i found a place with a great manager who worked her ass off to make my meal gluten free and I still got a reaction from it after.

i have also been on a candida diet and am now forced to load up on the food that I brought with me in my luggage just to survive..protein bars rice cakes, corn chips...all high in carbs and sugar. im feeling like crap cause im not getting any protein and all the sugar is causing my candida to flare up. i have an important company meeting this week and dont know how im gonna get thru it. i feel helpless! i went to the market to pick up a few things but not enough; they are all closed on sunday so i wont have stuff for during the week. i passed so many amazing restaurants & the food looked so good and everyone was eating, drinking and enjoying life while I was walking around like a helpless loser.

Sounds like you are in a bad predicament. What about nuts? I have relied on nuts many times to get me through while traveling. You've got to get some meat though!! Just go somewhere and order plain chicken or fish with some steamed veggies & rice. Get yourself a good meal-it doesn't have to be anything fancy. You'll feel mentally better once you EAT!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Europe is far ahead of the US in providing gluten free food. I'm surprised you are having such problems. Did you research for places to eat before going?

Lisa Mentor
Lisa
Posted

Jason, I just googles Gluten Free Dining in Paris and I got lots and lots of hits. I don't know if you're in Paris or not, but give that a try.

Europe is so much more progressive that in the US. You should have no problem. Do you have dining cards. They are basic items to have when traveling.

There is no reason to starve to death.

GlutenGuy36 Contributor
GlutenGuy36
Posted

I agree with the poster that said Europeans are far ahead of us in their knowledge of people with Celiac Disease and having lots of places to accomodate folks like us. What about peanuts butter for protein? If you can tolerate the nuts. I eat all natural peanut butter with no added sugars.

I hope you find things that work for you Jason. I know how you feel buddy. You are already limited in what you can eat, then when you take out the foods for Candida its like you are really restricted. Good luck to you my friend. -Ted.

jerseyangel Proficient
jerseyangel
Posted

Jason, I actually thought about you the other day and was wondering how you were making out over there. Is there no way one of the restaurants there can make you a piece of meat in a clean pan with nothing but a little oil and some salt and pepper? On a grill wrapped in foil or baked in parchment? A baked potato that you cut into yourself?

Nuts are a great idea--the protein would help offset some of those carbs.

I hope you get something substantial to eat soon :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa16 Collaborator
Lisa16
Posted

Jason-- I found this hotel in Cannes:

Open Original Shared Link

The person who rated it said they could do a gluten free breakfast. The address is there. Perhaps they can help you out.

Hit the grocery stores today if you can.

Good luck.

Lisa

Lisa16 Collaborator
Lisa16
Posted

I thought of something else-- try going to a pharmacy. They might keep the gluten free food there. Plus, they can give you a probiotic to help with the candida issues. Try explaining your dilemma and perhaps they can help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748
    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.