Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take For You To Notice A Difference?


AJSmom

Recommended Posts

AJSmom Rookie

My son is 3.5. I'm curious to find out how long it took you to notice a difference.

My son also has a speech delay so he can't communicate is needs very well. He will cry when in pain but not really be able to tell me what is wrong.

I have notice a slight change in his bowel movements..to a more "normal" colour, not a huge change just slightly. Just wanting to make sure it's not just me wanting a change to happen right away...??

So, in your experience how soon did you see changes?

Tracy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sandi Explorer

I noticed changes right away and 8 weeks of being careful still seeing some changes.

I do know when I by accident ingest gluten, It is much worse then when I was eating regularly.

Is your son in early intervention? They are a blessing.

AJSmom Rookie
I noticed changes right away and 8 weeks of being careful still seeing some changes.

I do know when I by accident ingest gluten, It is much worse then when I was eating regularly.

Is your son in early intervention? They are a blessing.

We have infant development..I think that's what you are referring to. Yes! he's had that since 12 months old. He also has speech, physio therapist and OT.

I'm seeing so many changes in him. He's SLEEPING!!! that's a big one...he's sleeping in!! Huge changes with his diapers..he has been on medication since he was 6 months. He never had lose stools, he's always had the constipation. I've decreased his does today and that is our goal to get him completly off this medication. But his stomach was always distended, I think it'll be awhile till we notice that change. I can tell he's feeling better....it has been hard these few days.

lizbeth93099 Rookie

My daughter has been gluten free about a month now. The first week was rough I would say. The second week I would say I started noticing changes. The third week I think she got gluten somewhere and her symptoms were bad...but over all I do see a difference in her. She's 9 and has even made comments that she has noticed changes too.

elle's mom Contributor
My son is 3.5. I'm curious to find out how long it took you to notice a difference.

My son also has a speech delay so he can't communicate is needs very well. He will cry when in pain but not really be able to tell me what is wrong.

I have notice a slight change in his bowel movements..to a more "normal" colour, not a huge change just slightly. Just wanting to make sure it's not just me wanting a change to happen right away...??

So, in your experience how soon did you see changes?

Tracy

My dd was 2 1/2 when she started the diet and I remember at 2 weeks we were astounded. The main difference was in her mood, she was just much happier and more playful. She also never had diarrhea, but rather suffered with constipation. It has been almost 2 years and we've recently taken her off her fiber supplement so that was a slow-go, but it's a journey.

AJSmom Rookie
My dd was 2 1/2 when she started the diet and I remember at 2 weeks we were astounded. The main difference was in her mood, she was just much happier and more playful. She also never had diarrhea, but rather suffered with constipation. It has been almost 2 years and we've recently taken her off her fiber supplement so that was a slow-go, but it's a journey.

I'm very interested to hear this, because the med student that was with the ped the first time gluten-free diet and celiac disease came up she said he has to have diarrhea as an indicator!! I'm finding that's not always the case.

elle's mom Contributor
I'm very interested to hear this, because the med student that was with the ped the first time gluten-free diet and celiac disease came up she said he has to have diarrhea as an indicator!! I'm finding that's not always the case.

No, it's definately not. Apparently that med student needs to study a little more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mama Ruthies Rookie

Hi Tracy,

Our son (a little over 5 and gluten free for almost 2 years) also has speech delays which we now know were caused by gluten. We noticed that first month or so was hard (our allergist also had him off milk, egg, yeast and soy) and our son had loved bread, bagels, yogurt, etc. ---all stuff he all of a sudden couldn't have.

His speech really started to improve around 6 months gluten free. At about 7 months gluten free, he got a piece of gluten pizza and his speech regressed for 8 weeks. We've found out that if he gets some gluten, it takes about 8 weeks and then the speech still isn't as clear as before.

I would suggest having your son's iron level checked. We found out last year our son was anemic.

A great resource for language delays is a book called Play to Talk by Dr. James D. MacDonald. Dr. Jim has many great ways to change how we interact with our kiddos (take turns, "play with words----imagine them being a ping pong ball", matching our kids, reducing questions). We have had such a change since using Dr. Jim's ideas---he really empowers parents. We had our son evaluated by Dr. Jim, and he has such a huge heart for these kids. We also saw another leader in the country for late talking kids who within 20 minutes said that our son presents just as kids with celiac. He said that some day down the road our son will tell us that there was a time when he really hurt. Broke our hearts, but we know it's true. Our son has also struggle with allergies and sleep apnea (we had his adeonoids out in the spring and it made a world of difference).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.