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KahleFamily

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KahleFamily Apprentice
My symptoms showed up out of the blue after my second daughter was born (at age 34). I never had a single issue (digestive or otherwise) until I began feeling a dull, tight ache right between my ribs. I was diagnosed with celiac three months later.

Wow, I have problems with that too! That's why I went to the doctor in the first place wondering if I had gall bladder issues. A friend of mine had her gall bladder removed and that was one of her tell-tale symptoms (supposedly). I went in for that and really bad stomach problems, we tested and NOPE. wasn't gall bladder issues.


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lovegrov Collaborator
My symptoms showed up out of the blue after my second daughter was born (at age 34). I never had a single issue (digestive or otherwise) until I began feeling a dull, tight ache right between my ribs. I was diagnosed with celiac three months later.

You might have been told this before, but pregnancy is one of those suspected triggers for people who already have the celiac gene.

richard

momxyz Contributor

I am wondering if menopause is also a trigger.... another life event representing significant hormonal shifts. Any women "of a certain age" care to comment? (Or supportive partners of the same...)

KahleFamily Apprentice
My doctor has told me I may have celiac disease (amoung a lot of other things). I occassionally have allergic reactions, but I don't know what to, Constant diarhea and constipation, constant headaches (I have a dull one now which becomes severe every evening lasting weeks), hair loss, abdominal pain, etc. I just tell everyone that I occassionally feel like I am in an Alien movie and an alien is going to burst out of my stomach.

Anyway, my husband doesn't believe that it could be Celiac disease because it is hereditary and I have just been getting these symptoms in the last couple years, and progressively worse the last few months. He says "if it's hereditary, why are you just getting it now?"

Is there a reason it may just "suddenly pop up"?

Alright, here is a complete list o my symptoms:

I have been gluten free for the last two and a half weeks, and I am still getting symptoms; although they are a little less painful. I do not think it is early enough to really tell if the diet is working, just because for the last year that I have had stomach problems I have had times which I felt so good I could run marathons, and this could last for weeks until suddenly WHAM! I was throwing up, having stomach cramps, headaches and fatigue.

So, I have a quick question.

How long do people normally have to go without gluten before the symptoms go away? Do they ever go away? Will I ever feel like I can do 150 sit-ups ever again?

Also, am I wasting my time in cutting it anyway? My doctor insists that I probably have ulcers. (I am about to try someone else)

These are my symptoms:

These happen all the time:

Headaches

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    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
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    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
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