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Then Last Item With Gluten You Ate...


VegasCeliacBuckeye

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JenAnderson Rookie

Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

I do that too...it's in the back of my Day Planner. :ph34r:

Hey this is me!!! I need to figure out what my name and password is!!! How cool.


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JenAnderson Rookie

Hey this is me!!! I need to figure out what my name and password is!!! How cool.

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Nor-TX Enthusiast

Just last weekend the strangest thing happened again, as it happens every few weeks. We live in a development near a shopping mall. Outside the mall is a Chinese food buffet. This yummy buffet has these invisible tentacles that snake out every few Sundays and grab me out of my house, sometimes right off the sofa and drag me into the restaurant. I don't want to go, after all I am on a gluten free diet and I know I can't eat that stuff... but these tentacles are very strong and I cannot fight them. So I do my best to eat the sushi, mussles, shrimp, baked salmon but it's funny how those spring rolls and those little crispy triangles with cream cheese find their way onto my plate. Even their sweet and sour chicken has a tendency to drop onto my plate. Well it is usually Wednesday before I feel better. Today is my Remicade infusion so I most likely won't be subject to those temptations this weekend.

My cravings are for: Big, greasy, juicy, bacon cheeseburger with fries and brown gravy (I'm Canadian), or a Harvey's burger, or donuts from Tim Hortons, or Poutine, or a real Canadian Jewish bagel with cream cheese and lox, or ketchup potato chips, or a huge order of Swiss Chalet...*sigh*

Roda Rising Star

I had a month from my positive blood work until my biopsy, so I know I was eating lots of gluten things. But the thing that sticks into my head was our halloween party Oct.25, 2008. We had cupcakes and we made a sandwich in the shape of a snake with lots of yummy cheese and lunch meat inside. I had already had the biopsy a couple of days before this, and since the party had been planned for months, I decided I was eating what I wanted until they called me with the results. I found out about 3 days later that I had villi blunting. I went gluten free after that next morning. I accidently ate milky way bite size candy bars this past halloween not realizing they had barley malt in them until after the fact.

jerseyangel Proficient

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Hi Jennifer,

I remember you--welcome back :D

Your best bet would be to contact Scott Adams, the site owner. Just go to the board index and click on 'admin' to PM him.

JenAnderson Rookie

Hi! I remember you too! I contacted Scott Adams and he combined the other 2 into this account.

OMG these days I'm so tempted to have a slice of pizza or maybe some KFC. That new "double" thing they came out with is really calling my name. I have so many other allergies that it would be a real doozy if I did decide to buy one though.

RideAllWays Enthusiast

I don't remember the last thing I ate... but after my GI appointment I was very disappointed because I had made an amazing sandwich in the morning to eat on the way home and I couldn't eat it... But the GI didn't tell me anything about the disease (seems to be the running trend) so I just took the stuff off the bun and ate it anyways...


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twe0708 Community Regular

I have to give credit to Erratic - -she mentioned animal crackers as her last "gluten" item she intentionally ate.

What was the last Gluten-Item you INTENTIONALLY ate?

For me, it was a mug full of beer. Around the summer of 1998 at Ohio State...it was wonderful, for a few hours... :o

Pizza on a cruise and will never have it again. I did have a about a month ago and had no problems. Had one again the following weekend to see and still not problems. I know, I know...please do not respond to my drinking these beers because I know you all will say that still doesn't mean it was good for you even though you didn't have symptoms. Just imagine if we could still drink beer and were only affected by food that contains wheat. I just don't understand how one little rice chex with a smidgen of p-nut butter could make me bloated and a beer did nothing to me that I could feel.

Lynayah Enthusiast

My gluten challenge made me so sick, I was beyond relieved when the time came to give up gluten, but . . .

I DREAM ABOUT EATING GLUTEN ALL THE TIME!

I'll be at a party and take a bite or two of crackers, cake or a cookie before remembering I shouldn't eat it.

Then I freak out. Then I wake up. Fun.

  • 4 weeks later...
Kelynn Apprentice

My "last supper" was fettuccini Alfredo and tons of bread at our favorite Italian place, the night before my endoscopy.

And, I agree with others- if there ever is a cute for Celiac's, I'm going to gain some serious weight stuffing my face with all the foods I miss! :rolleyes:

luvs2eat Collaborator

My last intentional glutening was about a year after I was diagnossed. I'd always loved making yummy loaves of beautiful bread and made several different kinds for a party. It smelled so danged good, I cut off a big hunk, slathered it w/ tons of butter, and chowed it down, while my daughter was yelling, "NOOOOOOOOOOOOO!!" It was absolutely delicious.

And I had NO repurcussions... none. I started making a list, thinking that maybe I could plan a "cheat" once a month or so. Subway Tuna hoagie, Pizza Hut stuffed crust pizza, a bagel w/ tons of cream cheese and lox, a Philly cheese steak, a Big Mac, any pasta dish in an Italian restaurant...

I realized that I wasn't 100% gluten-free in my everyday diet... peeps here set me straight! My symptoms were fairly mild. The next time I was accidentally glutened, my reaction was way more severe and now I wouldn't put gluten in my mouth for anything!!

But, holy cow... was that bread good!!

Lynayah Enthusiast

And I had NO repurcussions... none.

I wonder how many others have experienced similar situations: Healed . . . screw up . . . everhthing is fine . . . but when you try it again, WHAM! I would love to know.

I agree: I wouldn't put gluten in my mouth for anything. Nothing tastes as good as being healthy feels.

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    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
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