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Then Last Item With Gluten You Ate...

VegasCeliacBuckeye

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JenAnderson Rookie
JenAnderson
Posted

Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

I do that too...it's in the back of my Day Planner. :ph34r:

Hey this is me!!! I need to figure out what my name and password is!!! How cool.

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JenAnderson Rookie
JenAnderson
Posted

Hey this is me!!! I need to figure out what my name and password is!!! How cool.

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Nor-TX Enthusiast
Nor-TX
Posted

Just last weekend the strangest thing happened again, as it happens every few weeks. We live in a development near a shopping mall. Outside the mall is a Chinese food buffet. This yummy buffet has these invisible tentacles that snake out every few Sundays and grab me out of my house, sometimes right off the sofa and drag me into the restaurant. I don't want to go, after all I am on a gluten free diet and I know I can't eat that stuff... but these tentacles are very strong and I cannot fight them. So I do my best to eat the sushi, mussles, shrimp, baked salmon but it's funny how those spring rolls and those little crispy triangles with cream cheese find their way onto my plate. Even their sweet and sour chicken has a tendency to drop onto my plate. Well it is usually Wednesday before I feel better. Today is my Remicade infusion so I most likely won't be subject to those temptations this weekend.

My cravings are for: Big, greasy, juicy, bacon cheeseburger with fries and brown gravy (I'm Canadian), or a Harvey's burger, or donuts from Tim Hortons, or Poutine, or a real Canadian Jewish bagel with cream cheese and lox, or ketchup potato chips, or a huge order of Swiss Chalet...*sigh*

Roda Rising Star
Roda
Posted

I had a month from my positive blood work until my biopsy, so I know I was eating lots of gluten things. But the thing that sticks into my head was our halloween party Oct.25, 2008. We had cupcakes and we made a sandwich in the shape of a snake with lots of yummy cheese and lunch meat inside. I had already had the biopsy a couple of days before this, and since the party had been planned for months, I decided I was eating what I wanted until they called me with the results. I found out about 3 days later that I had villi blunting. I went gluten free after that next morning. I accidently ate milky way bite size candy bars this past halloween not realizing they had barley malt in them until after the fact.

jerseyangel Proficient
jerseyangel
Posted

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Hi Jennifer,

I remember you--welcome back :D

Your best bet would be to contact Scott Adams, the site owner. Just go to the board index and click on 'admin' to PM him.

JenAnderson Rookie
JenAnderson
Posted

Hi! I remember you too! I contacted Scott Adams and he combined the other 2 into this account.

OMG these days I'm so tempted to have a slice of pizza or maybe some KFC. That new "double" thing they came out with is really calling my name. I have so many other allergies that it would be a real doozy if I did decide to buy one though.

RideAllWays Enthusiast
RideAllWays
Posted

I don't remember the last thing I ate... but after my GI appointment I was very disappointed because I had made an amazing sandwich in the morning to eat on the way home and I couldn't eat it... But the GI didn't tell me anything about the disease (seems to be the running trend) so I just took the stuff off the bun and ate it anyways...

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twe0708 Community Regular
twe0708
Posted

I have to give credit to Erratic - -she mentioned animal crackers as her last "gluten" item she intentionally ate.

What was the last Gluten-Item you INTENTIONALLY ate?

For me, it was a mug full of beer. Around the summer of 1998 at Ohio State...it was wonderful, for a few hours... :o

Pizza on a cruise and will never have it again. I did have a about a month ago and had no problems. Had one again the following weekend to see and still not problems. I know, I know...please do not respond to my drinking these beers because I know you all will say that still doesn't mean it was good for you even though you didn't have symptoms. Just imagine if we could still drink beer and were only affected by food that contains wheat. I just don't understand how one little rice chex with a smidgen of p-nut butter could make me bloated and a beer did nothing to me that I could feel.

Lynayah Enthusiast
Lynayah
Posted

My gluten challenge made me so sick, I was beyond relieved when the time came to give up gluten, but . . .

I DREAM ABOUT EATING GLUTEN ALL THE TIME!

I'll be at a party and take a bite or two of crackers, cake or a cookie before remembering I shouldn't eat it.

Then I freak out. Then I wake up. Fun.

  • 4 weeks later...
Kelynn Apprentice
Kelynn
Posted

My "last supper" was fettuccini Alfredo and tons of bread at our favorite Italian place, the night before my endoscopy.

And, I agree with others- if there ever is a cute for Celiac's, I'm going to gain some serious weight stuffing my face with all the foods I miss! :rolleyes:

luvs2eat Collaborator
luvs2eat
Posted

My last intentional glutening was about a year after I was diagnossed. I'd always loved making yummy loaves of beautiful bread and made several different kinds for a party. It smelled so danged good, I cut off a big hunk, slathered it w/ tons of butter, and chowed it down, while my daughter was yelling, "NOOOOOOOOOOOOO!!" It was absolutely delicious.

And I had NO repurcussions... none. I started making a list, thinking that maybe I could plan a "cheat" once a month or so. Subway Tuna hoagie, Pizza Hut stuffed crust pizza, a bagel w/ tons of cream cheese and lox, a Philly cheese steak, a Big Mac, any pasta dish in an Italian restaurant...

I realized that I wasn't 100% gluten-free in my everyday diet... peeps here set me straight! My symptoms were fairly mild. The next time I was accidentally glutened, my reaction was way more severe and now I wouldn't put gluten in my mouth for anything!!

But, holy cow... was that bread good!!

Lynayah Enthusiast
Lynayah
Posted

And I had NO repurcussions... none.

I wonder how many others have experienced similar situations: Healed . . . screw up . . . everhthing is fine . . . but when you try it again, WHAM! I would love to know.

I agree: I wouldn't put gluten in my mouth for anything. Nothing tastes as good as being healthy feels.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
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      Thanks for sharing this!
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