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Then Last Item With Gluten You Ate...


VegasCeliacBuckeye

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JenAnderson Rookie

Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

I do that too...it's in the back of my Day Planner. :ph34r:

Hey this is me!!! I need to figure out what my name and password is!!! How cool.


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JenAnderson Rookie

Hey this is me!!! I need to figure out what my name and password is!!! How cool.

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Nor-TX Enthusiast

Just last weekend the strangest thing happened again, as it happens every few weeks. We live in a development near a shopping mall. Outside the mall is a Chinese food buffet. This yummy buffet has these invisible tentacles that snake out every few Sundays and grab me out of my house, sometimes right off the sofa and drag me into the restaurant. I don't want to go, after all I am on a gluten free diet and I know I can't eat that stuff... but these tentacles are very strong and I cannot fight them. So I do my best to eat the sushi, mussles, shrimp, baked salmon but it's funny how those spring rolls and those little crispy triangles with cream cheese find their way onto my plate. Even their sweet and sour chicken has a tendency to drop onto my plate. Well it is usually Wednesday before I feel better. Today is my Remicade infusion so I most likely won't be subject to those temptations this weekend.

My cravings are for: Big, greasy, juicy, bacon cheeseburger with fries and brown gravy (I'm Canadian), or a Harvey's burger, or donuts from Tim Hortons, or Poutine, or a real Canadian Jewish bagel with cream cheese and lox, or ketchup potato chips, or a huge order of Swiss Chalet...*sigh*

Roda Rising Star

I had a month from my positive blood work until my biopsy, so I know I was eating lots of gluten things. But the thing that sticks into my head was our halloween party Oct.25, 2008. We had cupcakes and we made a sandwich in the shape of a snake with lots of yummy cheese and lunch meat inside. I had already had the biopsy a couple of days before this, and since the party had been planned for months, I decided I was eating what I wanted until they called me with the results. I found out about 3 days later that I had villi blunting. I went gluten free after that next morning. I accidently ate milky way bite size candy bars this past halloween not realizing they had barley malt in them until after the fact.

jerseyangel Proficient

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Hi Jennifer,

I remember you--welcome back :D

Your best bet would be to contact Scott Adams, the site owner. Just go to the board index and click on 'admin' to PM him.

JenAnderson Rookie

Hi! I remember you too! I contacted Scott Adams and he combined the other 2 into this account.

OMG these days I'm so tempted to have a slice of pizza or maybe some KFC. That new "double" thing they came out with is really calling my name. I have so many other allergies that it would be a real doozy if I did decide to buy one though.

RideAllWays Enthusiast

I don't remember the last thing I ate... but after my GI appointment I was very disappointed because I had made an amazing sandwich in the morning to eat on the way home and I couldn't eat it... But the GI didn't tell me anything about the disease (seems to be the running trend) so I just took the stuff off the bun and ate it anyways...


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twe0708 Community Regular

I have to give credit to Erratic - -she mentioned animal crackers as her last "gluten" item she intentionally ate.

What was the last Gluten-Item you INTENTIONALLY ate?

For me, it was a mug full of beer. Around the summer of 1998 at Ohio State...it was wonderful, for a few hours... :o

Pizza on a cruise and will never have it again. I did have a about a month ago and had no problems. Had one again the following weekend to see and still not problems. I know, I know...please do not respond to my drinking these beers because I know you all will say that still doesn't mean it was good for you even though you didn't have symptoms. Just imagine if we could still drink beer and were only affected by food that contains wheat. I just don't understand how one little rice chex with a smidgen of p-nut butter could make me bloated and a beer did nothing to me that I could feel.

Lynayah Enthusiast

My gluten challenge made me so sick, I was beyond relieved when the time came to give up gluten, but . . .

I DREAM ABOUT EATING GLUTEN ALL THE TIME!

I'll be at a party and take a bite or two of crackers, cake or a cookie before remembering I shouldn't eat it.

Then I freak out. Then I wake up. Fun.

  • 4 weeks later...
Kelynn Apprentice

My "last supper" was fettuccini Alfredo and tons of bread at our favorite Italian place, the night before my endoscopy.

And, I agree with others- if there ever is a cute for Celiac's, I'm going to gain some serious weight stuffing my face with all the foods I miss! :rolleyes:

luvs2eat Collaborator

My last intentional glutening was about a year after I was diagnossed. I'd always loved making yummy loaves of beautiful bread and made several different kinds for a party. It smelled so danged good, I cut off a big hunk, slathered it w/ tons of butter, and chowed it down, while my daughter was yelling, "NOOOOOOOOOOOOO!!" It was absolutely delicious.

And I had NO repurcussions... none. I started making a list, thinking that maybe I could plan a "cheat" once a month or so. Subway Tuna hoagie, Pizza Hut stuffed crust pizza, a bagel w/ tons of cream cheese and lox, a Philly cheese steak, a Big Mac, any pasta dish in an Italian restaurant...

I realized that I wasn't 100% gluten-free in my everyday diet... peeps here set me straight! My symptoms were fairly mild. The next time I was accidentally glutened, my reaction was way more severe and now I wouldn't put gluten in my mouth for anything!!

But, holy cow... was that bread good!!

Lynayah Enthusiast

And I had NO repurcussions... none.

I wonder how many others have experienced similar situations: Healed . . . screw up . . . everhthing is fine . . . but when you try it again, WHAM! I would love to know.

I agree: I wouldn't put gluten in my mouth for anything. Nothing tastes as good as being healthy feels.

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    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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