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Then Last Item With Gluten You Ate...


VegasCeliacBuckeye

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JenAnderson Rookie

Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

I do that too...it's in the back of my Day Planner. :ph34r:

Hey this is me!!! I need to figure out what my name and password is!!! How cool.


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JenAnderson Rookie

Hey this is me!!! I need to figure out what my name and password is!!! How cool.

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Nor-TX Enthusiast

Just last weekend the strangest thing happened again, as it happens every few weeks. We live in a development near a shopping mall. Outside the mall is a Chinese food buffet. This yummy buffet has these invisible tentacles that snake out every few Sundays and grab me out of my house, sometimes right off the sofa and drag me into the restaurant. I don't want to go, after all I am on a gluten free diet and I know I can't eat that stuff... but these tentacles are very strong and I cannot fight them. So I do my best to eat the sushi, mussles, shrimp, baked salmon but it's funny how those spring rolls and those little crispy triangles with cream cheese find their way onto my plate. Even their sweet and sour chicken has a tendency to drop onto my plate. Well it is usually Wednesday before I feel better. Today is my Remicade infusion so I most likely won't be subject to those temptations this weekend.

My cravings are for: Big, greasy, juicy, bacon cheeseburger with fries and brown gravy (I'm Canadian), or a Harvey's burger, or donuts from Tim Hortons, or Poutine, or a real Canadian Jewish bagel with cream cheese and lox, or ketchup potato chips, or a huge order of Swiss Chalet...*sigh*

Roda Rising Star

I had a month from my positive blood work until my biopsy, so I know I was eating lots of gluten things. But the thing that sticks into my head was our halloween party Oct.25, 2008. We had cupcakes and we made a sandwich in the shape of a snake with lots of yummy cheese and lunch meat inside. I had already had the biopsy a couple of days before this, and since the party had been planned for months, I decided I was eating what I wanted until they called me with the results. I found out about 3 days later that I had villi blunting. I went gluten free after that next morning. I accidently ate milky way bite size candy bars this past halloween not realizing they had barley malt in them until after the fact.

jerseyangel Proficient

I couldn't find it.. I found this one though. Hmmmm wonder when I made this one. Anyone know how to delete an account on here. I'd like to have just one. :)

Hi Jennifer,

I remember you--welcome back :D

Your best bet would be to contact Scott Adams, the site owner. Just go to the board index and click on 'admin' to PM him.

JenAnderson Rookie

Hi! I remember you too! I contacted Scott Adams and he combined the other 2 into this account.

OMG these days I'm so tempted to have a slice of pizza or maybe some KFC. That new "double" thing they came out with is really calling my name. I have so many other allergies that it would be a real doozy if I did decide to buy one though.

RideAllWays Enthusiast

I don't remember the last thing I ate... but after my GI appointment I was very disappointed because I had made an amazing sandwich in the morning to eat on the way home and I couldn't eat it... But the GI didn't tell me anything about the disease (seems to be the running trend) so I just took the stuff off the bun and ate it anyways...


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twe0708 Community Regular

I have to give credit to Erratic - -she mentioned animal crackers as her last "gluten" item she intentionally ate.

What was the last Gluten-Item you INTENTIONALLY ate?

For me, it was a mug full of beer. Around the summer of 1998 at Ohio State...it was wonderful, for a few hours... :o

Pizza on a cruise and will never have it again. I did have a about a month ago and had no problems. Had one again the following weekend to see and still not problems. I know, I know...please do not respond to my drinking these beers because I know you all will say that still doesn't mean it was good for you even though you didn't have symptoms. Just imagine if we could still drink beer and were only affected by food that contains wheat. I just don't understand how one little rice chex with a smidgen of p-nut butter could make me bloated and a beer did nothing to me that I could feel.

Lynayah Enthusiast

My gluten challenge made me so sick, I was beyond relieved when the time came to give up gluten, but . . .

I DREAM ABOUT EATING GLUTEN ALL THE TIME!

I'll be at a party and take a bite or two of crackers, cake or a cookie before remembering I shouldn't eat it.

Then I freak out. Then I wake up. Fun.

  • 4 weeks later...
Kelynn Apprentice

My "last supper" was fettuccini Alfredo and tons of bread at our favorite Italian place, the night before my endoscopy.

And, I agree with others- if there ever is a cute for Celiac's, I'm going to gain some serious weight stuffing my face with all the foods I miss! :rolleyes:

luvs2eat Collaborator

My last intentional glutening was about a year after I was diagnossed. I'd always loved making yummy loaves of beautiful bread and made several different kinds for a party. It smelled so danged good, I cut off a big hunk, slathered it w/ tons of butter, and chowed it down, while my daughter was yelling, "NOOOOOOOOOOOOO!!" It was absolutely delicious.

And I had NO repurcussions... none. I started making a list, thinking that maybe I could plan a "cheat" once a month or so. Subway Tuna hoagie, Pizza Hut stuffed crust pizza, a bagel w/ tons of cream cheese and lox, a Philly cheese steak, a Big Mac, any pasta dish in an Italian restaurant...

I realized that I wasn't 100% gluten-free in my everyday diet... peeps here set me straight! My symptoms were fairly mild. The next time I was accidentally glutened, my reaction was way more severe and now I wouldn't put gluten in my mouth for anything!!

But, holy cow... was that bread good!!

Lynayah Enthusiast

And I had NO repurcussions... none.

I wonder how many others have experienced similar situations: Healed . . . screw up . . . everhthing is fine . . . but when you try it again, WHAM! I would love to know.

I agree: I wouldn't put gluten in my mouth for anything. Nothing tastes as good as being healthy feels.

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    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
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