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VegasCeliacBuckeye

Then Last Item With Gluten You Ate...

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:P a really good elephant ear should not be greasy--it is like a very a very flat donut--they are ususally dropped into hot oil and removed--if placed on a paper towel and flopped over--then rolled in cinnamon and sugar--ohhhhhhh man--they are very good--sweet and flaky-------------i think probably the last thing i ate was hot ham and cheese on aunt millies buttermilk bread--i loved it---deb

Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Guest vetnurse

The last thing I can remember eating with Gluten was a big salty pretzel and a sabrett hot dog (no bun) at a NY Yankee Game, it was the 4th Inning and I had to fight to stay awake for the rest of the game.

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Kentucky Fried Chicken. I'd been eating normally for 36 years with no symptoms, so the day of my biopsy I decided I'd have a gluteny dinner for the last time and start the next day. Had a heck of a time trying to decide between the chicken dinner or the Big Crunch Sandwich. I kinda wish now I'd had the Big Crunch, lol.


LORI

Dx celiac disease Aug 25/05, ate KFC that night and gluten-free ever since

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Last Xmas, I had some very dense chocolate chip square that was so yummy I had 2! :(

Worse thing about it, it never bothered me except for a little gas the next morning.


France

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Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

LOL! Sometimes I think a cure would be a bad thing for me! I'd probably put on about 300 lbs the first week! I don't even know where I'd start.................


LORI

Dx celiac disease Aug 25/05, ate KFC that night and gluten-free ever since

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I think the last gluten item I ate before becoming gluten free was a Crumbs cupcake at bakery in East Hampton last 4th of July weekend. I happily sat on a bench and ate my devils food cupcake with oreo bits on top knowing this was going to be my last. (I had gotten my blood results back at that point and was still awaiting the biopsy results, so I figured I would live it up until then).


Jillian

Positive Blood test and Biopsy

Inflamed stomach lining

Gluten free since July 6, 2005

Tarrytown, NY

"Sometimes being a b$tch is all a woman has to hold onto." - Dolores Claiborne

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Dinner at Macaroni grill, with pasta and an ENTIRE LOAF of french bread.

I wish I would have gone to KFC, gotten a loaf of french bread on the way home, and a tube of pillsbury cookie dough.


Alright, don't worry even if things end up a bit too heavy

We'll all float on, alright

Well we'll float on good news is on the way...

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a ruth's hemp bar - didn't realize some of the flavors of hemp bar (not flax bar) had barley malt and oats. darnit! it wasn't too bad, but still annoying.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Rubios Health Mex chicken taco combo. I wish it was something like french bread or a soft pretzel...but I don't remember the last time I ate real bread.


"Let food be thy medicine, and let thy medicine be food." - Hippocrates

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I had forgotten - after the fair and the elephant ear, I went home and had a couple of cold beers to wash it down with - if I was going out, I was going out in STYLE!!!

I haven't touched anything with gluten intentionally since!


-Kate

gluten-free since July 2004

Other Intolerances:

Strawberries and Banannas (2007)

Nitrates (April 2006)

Yeast (which includes all vinegar so no condiments) (Oct. 2004)

Peanuts (Nov. 2004)

Soy (Oct. 2004)

Almonds (Sept. 2004)

Corn (Sept. 2004)

Lactose/Casein (1999)

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I was very drunk and said "to heck with it" and chowed down an entire

large bag of Doritos (my favorite junkfood)...

Felt horrible for over a week and now no amount of alcohol can inhibit my gluten-free senses!


Megan

Diagnosed Celiac in Feb 2004

Boston, MA

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15 months ago I went to PF Changs and ordered EVERY gluten filled appetiser they had on the menu. A couple of them I made into double orders. It was really OINK OINK time. I still think of those appetisers. Not a lettuce wrap among them.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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I love beer, so I drank a six pack of Foster's Lager. I drank it throughout the day and cherished every sip!


Positive biopsy, positive blood test in 2/2006

Muscle biopsy in thigh in 2004 to confirm metabolic myopathy (found denervated nerves)

Interstitial cystitis diagnosis 2004

Hysterectomy 2003

3 for c-sections, 2 laparoscopies to remove abdominal adhesions

Abnormal heart beat when tired or glutened

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Elephant ears are made of the same thing as funnel cakes -- puffy dough and loads of powdered sugar. Very common at State/County Fairs

I miss them....

never wanted one in my whole life, would look at those funnel cakes, and think, wow, how utterly vomitous. Now, what I wouldn't give (only half joking...fried dough is somehow really appealing to me now).

my last thing.....the day of endoscopy/colonoscopy, and he told me right then I had advanced Celiac and not one villi, I didn't care, my friend drove me straight to the grocery deli and I ate about six pieces of the most yummy fried chicken. It was SO delicious....

Susan


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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last thing I remember intentionally eating with gluten was cheese fries and a nice, fat cheeseburger from windmill... I was trying to increase my gluten intake that day for an antibody blood test the next morning... not that one day of eating any substantial amount of gluten would matter but I figured why not enjoy a good meal..


- Charlie

- gluten free since January, 2006

- multiple food intolerances temporarily from leaky gut and candida

- positive test for lyme disease - April, 2007

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When I went on my gluten challenge for six weeks, I ate Big Macs (someday I WILL go to Findland for a gluten-free one), McGriddles, scones, pizza. All I remember is that they were making me so sick that it was all I could do to choke them down after a while. It certainly made me not want to cheat, even after my tests were all inconclusive! (I was eventually diagnosed by Enterolab)


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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I haven't cheated at all since being diagnosed. I remember my "last supper" well, however. It was a Friday nite and dh called and said, "Why don't I pick up some ribs from..... on my way home?" Now, I'd been having gi issues for months, and was dropping 5 lbs a week without knowing why. All tests were coming back negative. This place is well known for its ribs, so I thought, yeah, what the heck, it sounded good. I had ribs, slaw, baked beans, and a roll. Yummy! In less than 20 minutes I was 10 x sicker than the sickest I had ever been. This lasted on through the nite, and by Sat a.m. I was in the hospital. There wasn't much left to test me for, so they decided to test me for e coli....negative of course. 3 days later, still in the hospital, a dr. said, "Gluten!" when I told him that for several months I'd not even been able to eat toast without getting sick. Do I even need to tell you what tests finally came back overwhelmingly positive???? Complete villous atrophy.

Although I'd been on a fast downhill slide, I suppose that 1 roll and possibly rib seasoning was my final tipping point.

Life insists you have a sense of humor; everyday coming home from work, I pass the billboard advertising those ribs :wacko:

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Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

I do that too...it's in the back of my Day Planner. :ph34r:


Jennifer Anderson

Celiac Disease-since 2003

Asperger's Disorder/OCD

Daughter-11- Asperger's Disorder

Son-7-Celiac Disease

Husband-Normal

Now allergic to eggs, dairy, peanuts, corn, rice, tomatoes, potatoes, and soy (11/2009)

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I did not really have a "last supper". I was so sick, when my doctor gave me the blood tests...my levels were so high that he told me to start the gluten-free diet right away, that he did not think a week would make a difference with my endoscopy (as he had it scheduled for one week later)..

Everything I was eating at that point made me feel awful, so nothing was enjoyable.

I think that is why I had my drunken breakdown with the doritos...I had finally started enjoying food again and was craving those yummy chips!

If I could have my last hoorah, I really think I would go to Outback and get a no rules burger with everything and a double order of cheesefries!


Megan

Diagnosed Celiac in Feb 2004

Boston, MA

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I'm answering for my six year old son. I know that the night we found out we were having Chicken Caesar salad and sourdough bread. I had to scramble to find a gluten-free Caesar dressing, but I did - he didn't have the bread or croutons. I'll bet it was Honey Nut Cheerios. He lived on those things. He probably had two bowls for breakfast, I don't know about lunch...we found out after lunch. He still looks at the box of Honey Nut Cheerios at the store from time to time and sighs and says I loved Honey nut. Then he walks away.


Linda, Mom to Ty (11 years old)

Ty was diagnosed by blood test June 7/05

biopsy Aug 11/05, diagnosis confirmed Aug 18/05

Mom, Dad and big brother Celiac-free.

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Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

I do that too...it's in the back of my Day Planner. :ph34r:

My sister and I use to sit on our couch and talk about what our last hoorah meal would be if a meteor was coming and the world was going to end....

And also if the meteor was coming and we could only go to one aisle of the grocery store, what aisle would it be ?(yes we have problems and are obsessed with eating!). At the time I never even thought I would be restricted from so much food....

My sister has celiac too, so now our discussions are "what we would eat if we could have gluten"...


Megan

Diagnosed Celiac in Feb 2004

Boston, MA

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Beer (was eating Brisket, potato salad and baked beans, so you have to have beer), sliced white bread with brisket and fixins, and cheesecake for dessert.


Natalie

Multiple allergies since 2 years old - 1979

Diagnosed with Endometriosis - February 1998

First visit to Gastroenterologist - 4/4/06

Negative Bloodwork - 4/4/06 (only IgG & TtG)

Gluten Free since 4/17/06

Colonoscopy - 5/8/06

Diagnosed Gluten Intolerant - 5/22/06

Celiac Disease suspected, but not confirmed due to going gluten free before biopsy

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I was like megzmc3611. I was told to go on the gluten-free diet about two weeks before the endo. The doctor was hopeful that she would see some villi. Unfortunatly, not a one was found. So my "last supper" (I even called it that) was some crappy leftovers :angry: I was too tired to make dinner. Had I known then what I know now I would have gone out to dinner at least! The reality was that I was so sick food was not enjoyable. If I could do the day over I would eat out for breakfast, lunch and dinner with oreos and krispy kremes for a snack.

Hez

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