Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Very Careful, But Still Feel Like I Got Glutened!

haleym

By haleym
in Coping with Celiac Disease

Recommended Posts

haleym Contributor
haleym
Posted

Hi everyone!

Ive been doing really great on the diet- barely any Sx since starting (only the times that Ive gotten glutened! :( ) But this is wierd. Ive been feeling that familiar ''someone is sandpapering my guts'' for a day and a half now and Im wondering what I could have done. The lactose feeling is different, thats more bloating.

Ive been very, very careful about cooking ingredients, checking labels, etc. Cross contamination shouldn't be an issue as I have a gluten-free kitchen with ONE cabinet that has some gluten cookies and flour in it. In this same cabinet are canned items only, which are gluten-free and I think I may have used one in the last day or so. And, I have been eating peanut M and Ms at work (just a little handful, like 6 or 7) on Thursday and Friday.

There have been a few things with natural flavors in it that havent been labeled explicitly gluten free but that have non-gluten ingredients as far as I know.

My gluten symptoms usually come on up to 12 hours after eating something, so this seems hard to pin down. If anyone has advice on how to root out whatever is getting me, that would be great!

Thanks guys!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

Food diary. Could be that you have other food intolerances? I didn't discover my soy problem until I'd been gluten-free for a year.

freeatlast Collaborator
freeatlast
Posted

Are peanut M&Ms gluten free? That may be your problem if they're not.

haleym Contributor
haleym
Posted
  • Author
Are peanut M&Ms gluten free? That may be your problem if they're not.

Yep, according to some of the other gluten free websites, they are OK.....

AKcollegestudent Apprentice
AKcollegestudent
Posted

Are you on any medications by any chance? I'm the middle of a reaction to an antibiotic that is identical to my glutened reaction. (It's a toss up as to whether it's gluten or my body's issues with antibiotics that are causing the reaction.) But there are meds that have wheat starch or other problem ingredients, and they don't always list them.

GFinDC Veteran
GFinDC
Posted

The peanut M+M's probably have dairy in them, if that bothers you. It bothers me. Not that the you eat them, but the dairy bothers me. :D:-) Many of us celiac types have problems with dairy. I know I have a dairy reaction that gets worse if I eat it for a few days running.

Natural flavors scare me. There is a list of companies that will disclose gluten in their products on the Open Original Shared Link

web site. So if their products say natural flavors you are ok. But others you would need to call the company or search the web to find out their gluten-free status.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.