Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Blood Work


homemaker

Recommended Posts

homemaker Enthusiast

A few weeks ago I had a negative Celiac Panel Done and I have read on this forum that one must be consuming

at least 3 slices of bread a day to have positive results.

Is it possible, if I was not consuming that level of breads or pasta for my results to be inaccurate?

I had been on Weight Watchers and was only having 2 slices a day...very rarely more than that.

Pasta was consumed infrequently.

These were my results below...

Celiac IgA Serum Units mg/dL Ref Range (68-378) 209

Tissue Transglutaminase Ab IgA Units (0-19) 10

Gliadin Antibody IgA Units 3

I have ordered enterolabs complete stool panel with gene testing and free dairy test...

Should receive them soon in the mail to send back out to them....

I have gone Gluten Free for about 3 weeks now and other than withdrawal type stuff

my symptoms of constipation, bloating etc are gone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I can't answer your specific question, but it's evident by your improving symptoms on the gluten free diet, that you either have a gluten allergy, gluten sensitivity or Celiac.

Enterolabs will not be able determine which of those three you suffer from. They may determine that you have selective sensitivities to various foods.

I am not a fan of the gene test, because 30% of the non-Celiac population also carry the genes, and possession of the gene is in no way diagnostic of Celiac, in itself.

Good luck with your search and if you feel better on the gluten free diet, continue on :D

OptimisticMom42 Apprentice

The blood tests come back negative for a lot of obvious celiacs. Screw the blood tests just stick to the diet :D

Now I know I'm getting better, my sas is back!

homemaker Enthusiast

Thanks everyone...my decision to try enterolab was made more for my children and anything else....When I really think about it...

I have 2 kids 22 and 24 and my sister has diagnosed celiac which was very severe when finally diagnosed.

I would be good to know whether what genes I carry, but irregardless of the results I am staying gluten-free!

ang1e0251 Contributor

Gene test cannot dx celiac disease but they can be a valuable tool to evaluate the bigger picture. A positive gene test along with your family history and a positive response to the gluten-free diet are all puzzle pieces to a tricky dx.

homemaker Enthusiast
Gene test cannot dx celiac disease but they can be a valuable tool to evaluate the bigger picture. A positive gene test along with your family history and a positive response to the gluten-free diet are all puzzle pieces to a tricky dx.

Yes, Thank You ....I know that by having the gene does diagnose Celiac, but you are right, it is just another puzzle piece to help

in the process of coming to a diagnosis...and it would be helpful for my children, who have not had children of their own yet, to know

if their mother has the gene...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.