Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afraid To Try Foods

Diva1

By Diva1
in Coping with Celiac Disease

Recommended Posts

Diva1 Enthusiast
Diva1
Posted

Hi

Does anyone feel like this..anxious when eating out or trying new foods even though there listed as gluten free (from internet)... I'm gluten free for only one month now it took almost 2 to 3 weeks to feel better...and when i gluten myself by mistake it takes almost 4 to 5 days to recuperate...

I dont want to have a phobia about food....but i get real anxious after new foods...will this get better in the months to come....

Diva :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


digmom1014 Enthusiast
digmom1014
Posted

Give yourself a break!

You are still so new to this. At 6 mo. I really started to feel better and also started to get a handle on the gluten-free lifestyle. Also, the cravings for non-gluten-free foods started to get better. I am almost 2 yrs. gluten-free and still occasionally gluten myself at restaurants. Fortunately, you will have an arsinal of self help treatments in a few months. Keep reading and asking questions on the board-there are so many others much more knowledgable about this than I am.

As far as restarants go, you are doing the right thing by researching them beforehand. Be sure to make the server and even the chef aware of your gluten-free statis. I am in sales and I kept a notebook in my trunk that I printed out. The book had a gluten-free menu for a lot of the restaurants in my area, etc. That was very helpful in the beginning.

Remember, it is trial and error for all of us. Keep researching and asking questions and you'll do great!

Diva1 Enthusiast
Diva1
Posted
  • Author
Give yourself a break!

You are still so new to this. At 6 mo. I really started to feel better and also started to get a handle on the gluten-free lifestyle. Also, the cravings for non-gluten-free foods started to get better. I am almost 2 yrs. gluten-free and still occasionally gluten myself at restaurants. Fortunately, you will have an arsinal of self help treatments in a few months. Keep reading and asking questions on the board-there are so many others much more knowledgable about this than I am.

As far as restarants go, you are doing the right thing by researching them beforehand. Be sure to make the server and even the chef aware of your gluten-free statis. I am in sales and I kept a notebook in my trunk that I printed out. The book had a gluten-free menu for a lot of the restaurants in my area, etc. That was very helpful in the beginning.

Remember, it is trial and error for all of us. Keep researching and asking questions and you'll do great!

Thanks for the responce you are right ...patience and trial and error....

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Yes, it does happen even when being extremely careful. At home, at a friends and in the community. Just know it will happen, do the best you can and enjoy what you eat even if it's just a plain baked potato.

My favorite thing to do is to go out to eat. Since it's hard to find a restaurant that is totally gluten free I decided to just make my favorite 'out to eat' dishes at home. I can have them more often and at less cost than if I went to a restaurant. When I go out to eat now I order something that I know (or hope) is gluten free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,201
    • Most Online (within 30 mins)
      7,748
    Karen LK
    Newest Member
    Karen LK
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.