Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be Celiac?


klmitchell

Recommended Posts

klmitchell Newbie

I've had some weird symptoms for a long time, but lately have gotten worse. Ever since I was young, I had a sour stomach (usually after lunch). I've been a vegetarian for years, so have relied on pastas, breads etc. to fill me up. When I was in college, I started getting sharp abdominal pains followed by awful diarrhea. This symptom has continued, but over the years I have gotten more symptoms. These include hearburn, joint pain, fatigue, headaches, repeated sinus infections and UTIs and more. About 4 months ago, I got a horrible pain in my left side followed by diarrhea and the pain hasn't really stopped since. The stomach/intestinal symptoms have gotten worse and more frequent. Can anyone tell me if they've experienced similar symptoms? Do you think it could be Celiacs? Thanks so much for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

I've experienced the sharp stomach pains, diarrhea, bloating, gas, low weight...all symptosm of celiac disease. Fatigue is the most common symptom associated w/ celiac disease and diarrhea is thought of as the most classic symptom. Joint pain is another symptom. You could definitely have celiac disease--after all, 1 in 133 Americans do and your symptoms match up. Definitely get tested. ;)

Oh, and welcome to the boards :D:P !

-celiac3270

ianm Apprentice

If after eating breads and pastas you start experiencing these symptoms it is a good sign that somethings not right. All of your symptoms are the most common ones for celiac.

KaitiUSA Enthusiast

There are over 200 symptoms with celiac and everyone can experience different ones or none at all. The symptoms you are describing do sound like celiac. I experienced nausea, anxiety, and weight loss.

anewsprue Newbie

I would get checked .... sounds like most of the symptoms expressed here. Welcome and good luck.

klmitchell Newbie

Thanks everyone! I am going to see a specialist on Friday and we'll see how it goes. Is there anything specific I should be asking him? This is my first trip to a gastroenterologist and I'm not quite sure what to expect.

I'll let you know what he says!

celiac3270 Collaborator

Umm...if you want to ask about the results on here, it would be good to know which tests he is running...there should be five if he's doing all of them, but he may not.

You don't really need to ask anything--just explain your symptoms, suggest celiac, and maybe have an article or two or a symptom list to...educate him about it if he doesn't really know about celiac disease. Oh, the tests...Anti-tissue transglutaminase (tTG) IgA, the total serum IgA, the anti-endomysial (EMA) IgA, Anti-Gliadin (AGA) IgA and the anti-gliadin (once again, AGA) IgG. I guess you could also ask what tests were run when you get your results back.

There's nothing you really need to ask. Your doctor will probably be doing most of the asking, at least on the first visit :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lesliean Apprentice

You have to be on gluten for any testing unless it is through Enterolab.

She should be tested for the following:

-Anti-Gliadin (AGA) IgA

-Anti-Gliadin (AGA) IgG

-Anti-Endomysial (EMA) IgA

-Anti-Tissue Transglutaminase (tTG) IgA

-Total Serum IgA

You would benefit from a gene test too.

Some of your symptoms also sound a lot like lactose intolerance which can be independent or along with Celiac/gluten sensitivity because of temporary intestinal damage.

Does gluten sensitivity run in your family. Do family members have diabetes, thyroid disorder, neuropathy, IBS, migraines to name a few of the immunodiseases that go along with Celiacs often?

Good luck on Friday and keep us posted. I think internet sources are a great way to help guide doctors.

Leslie

klmitchell Newbie

Thanks! I'm going to print this and take it with me to be sure I get tested for everything. Bowel trouble does run in my family, I think much of it has gone undiagnosed. My aunt has ulcerative colitis, which I understand may result from a gluten intolerance.

I'll let you all know what happens Friday. It's great to have the support offered in this group! Thanks to all!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,955
    • Most Online (within 30 mins)
      7,748

    AnnaLousGFBakery
    Newest Member
    AnnaLousGFBakery
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.