Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Do.....


1morething

Recommended Posts

1morething Explorer

when you're in pain from getting glutened? I have the worse stomach cramps I've ever had, to the point where I cannot eve stand straight. Work ordered out chicken yesterday for lunch and I'm thinking I got glutened by either the chicken or the C/C from the bun being in the box. Who knows.

Is there any special remedy to get rid of these cramps?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



soulcurrent Explorer

Really really hot showers help me, at least until I'm out of the water. Car rides also help me too so I drive around sometimes if I'm in pain.

jststric Contributor

Sometimes Extra-Strength Tylonol helps me.

Swimmr Contributor

chamomile tea...loose leaf though if you can find it.

hannahp57 Contributor

tylenol and a hot bath and then your fave pjs, a blanket and pillow, the tv remote and curl up in the fetal position. it'll pass! i promise, but the tylenol usually takes the edge off

tarnalberry Community Regular

hot tea (mint, ginger, green); lots of water; lots of sleep

I treat it similarly (but not quite the same) to being sick - my body sees it as an immune system fight anyway.

twe0708 Community Regular

I am amazed at how much discomfort people have from getting glutened. I have been (I hope) gluten free for about 3 months now, so if I was to get glutened would I feel the pain by now? I almost want to have a gluten meal to see what it's like. If I am getting gluttend then I am certainly not feeling it like the rest of you. Thank God! :) The only thing I have experienced maybe once or twice is feeling bloated which goes away within an hour. Never any pain! Is this because I haven't been gluten-free long enough? :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1morething Explorer
I am amazed at how much discomfort people have from getting glutened. I have been (I hope) gluten free for about 3 months now, so if I was to get glutened would I feel the pain by now? I almost want to have a gluten meal to see what it's like. If I am getting gluttend then I am certainly not feeling it like the rest of you. Thank God! :) The only thing I have experienced maybe once or twice is feeling bloated which goes away within an hour. Never any pain! Is this because I haven't been gluten-free long enough? :huh:

I was like you. I've been gluten free for a year now. If I did get glutened, I wouldn't feel it, maybe the occasional bloating but that's about it. BUT it all started 2 weeks ago while I was on a business trip and I ate a McDonalds Southwest salad with Grilled chicken. The chicken was full of gluten (wheat & barley). Well Even though I only had 2 bites of the chicken, the salad was C/C'd by it and I got sick. Never thought it would affect me the way it did. The day after I ate it, I had bloating and pain. Then for a week after, I had D & vomiting. Now yesterday I had chicken & fries from a restaurant (delivery) and there was a bun in there. I took the bun out and ate the rest. WELL again like I said in my initial post, never have I felt such pain in my life. I was bent in 2 from the pain, I couldn't stand straight.

My thoughts is that my intestine is so damaged from the C/C which I never paid attention to, that I'm paying the price today if I eat anything that could have touched gluten. Beware.

I was under the impression that the longer you were gluten free, the better you'd be if you

did get glutened. It doesn't seem to be the case.

Rachel

AKcollegestudent Apprentice

I get more sensitive the longer I'm gluten free, not less. I figure out when I've been glutened a lot more quickly too.

That said, for the pain, I take activated charcoal and/or a blisteringly hot shower and then I curl up and ride out the pain.

MikeyD Newbie

I'm new to the gluten-free life, but twice in my month living gluten free I have eaten something I was unsure about and suffered as a result. I've found that drinking hot water, taking fish-oil capsules and laying down with pillows covering my abdomen helps ease the pain.

Apart from that I just have to wait it out.

Hope you feel better soon.

foodiegurl Collaborator

chamomile tea + pepto + fetal position :)

Northern Celiac Newbie
when you're in pain from getting glutened? I have the worse stomach cramps I've ever had, to the point where I cannot eve stand straight. Work ordered out chicken yesterday for lunch and I'm thinking I got glutened by either the chicken or the C/C from the bun being in the box. Who knows.

Is there any special remedy to get rid of these cramps?

Holy Crap,

The first thing you have to do is start bringing your own lunches to work. You glutened yourself from your lunch. Unless you can absolutely guarantee that your food has suffered no cross contamination I'd bring my own lunch.

To answer your question , NO there isn't. You just have to stick to the gluten-free diet

  • 1 month later...
avceliacmom Newbie
I get more sensitive the longer I'm gluten free, not less. I figure out when I've been glutened a lot more quickly too.

That said, for the pain, I take activated charcoal and/or a blisteringly hot shower and then I curl up and ride out the pain.

My daughter is a college student home on Christmas break and just got sick (vomits until everything is purged) after foolishly eating something at a potluck that someone assured her was gluten-free. I feel soooooo bad for her when this happens because she is in so much pain and feels so terrible. Can you tell me more about the activated charcoal that you take?

  • 4 weeks later...
AKcollegestudent Apprentice

My daughter is a college student home on Christmas break and just got sick (vomits until everything is purged) after foolishly eating something at a potluck that someone assured her was gluten-free. I feel soooooo bad for her when this happens because she is in so much pain and feels so terrible. Can you tell me more about the activated charcoal that you take?

I did the same thing while I was home, so I have empathy for your daughter. I use CharcoCaps--I buy them at Rite Aid; I attempted to use regular charcoal supplements while I was home and it just didn't work as well. But it's very much I have to take the caps right after I think I've been affected; I'm lucky in that I can tell that something's happened quickly. (I have neuro effects that show up very soon after being glutened and then everything else shows up a bit later.) If I take it quickly enough, the charcoal has the chance to neutralize the "poison" before it actually reaches my intestine. Is it the best solution? No. Is it preventing the damage? No, but it is mitigating it, which after an awful meal and an accidental glutening is about all I can ask for.

Hope that helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      I have a lot to learn!  Thank you
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.