Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Something To Be Concerned About?


Frances03

Recommended Posts

Frances03 Enthusiast

lately I keep having this dizzy feeling I will try to describe. it feels like I'm dizzy, and that my field of vision is getting smaller, like darkness closing in from the outer field of vision, and like I can't see well, or focus well on anything, and then my head feels very fuzzy like, it's hard to exlain it! if it happens while I'm standing up I feel like I need to sit down or I will pass out or something. it's happened several times over the past week I'd say. I also get headaches, and sort of difficult walking when this happens, like my feet are dragging. And it's very difficult to think, like confusion. Does anyone know what this might be, or if I should be concerned about it??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Could you be anemic? I was for years before having it resolve on the diet and I recognize those symptoms as the same as what I experienced.

amberlynn Contributor
lately I keep having this dizzy feeling I will try to describe. it feels like I'm dizzy, and that my field of vision is getting smaller, like darkness closing in from the outer field of vision, and like I can't see well, or focus well on anything, and then my head feels very fuzzy like, it's hard to exlain it! if it happens while I'm standing up I feel like I need to sit down or I will pass out or something. it's happened several times over the past week I'd say. I also get headaches, and sort of difficult walking when this happens, like my feet are dragging. And it's very difficult to think, like confusion. Does anyone know what this might be, or if I should be concerned about it??

I'm going through this right now!

I was out for the count with a migraine yesterday, and I am experiencing much of what you described, but mine is mostly on the left side of my Head (it always is...).

I'm beginning to think I got glutened, but I can't be sure. Either that or I'm getting sick! Hopefully someone might know what causes this.

I am not anemic either, according to my last blood draw... They checked all of that, and my thyroid, etc... everything came back normal. Only thing out of the ordinary I've eaten was 2 tiny tootsie rolls Saturday night.

jerseyangel Proficient
Only thing out of the ordinary I've eaten was 2 tiny tootsie rolls Saturday night.

No worries about the Tootsie Rolls--they are gluten-free and the last I checked they don't use gluten in the facility at all.

Hope you feel better soon :)

Frances03 Enthusiast

Yes, I am anemic, and am currently taking two 5gr tablets of ferrous sulfate a day. Do you think that is what is causing it? Is there anything else I could do to make it go away? It seems to happen most when I haven't eaten.

Jestgar Rising Star

Have you had your blood pressure checked? Are you dehydrated?

jerseyangel Proficient
Yes, I am anemic, and am currently taking two 5gr tablets of ferrous sulfate a day. Do you think that is what is causing it? Is there anything else I could do to make it go away? It seems to happen most when I haven't eaten.

If it's the anemia, it took a little while for it to abate for me. I felt better gradually over a few months. Have you been supplementing for long? It also takes the intestine some time to heal and begin absorbing well again.

If it's happening when you haven't eaten, maybe try not going more than 3 hours or so without eating something that includes some protein.

Have you had your blood pressure checked? Are you dehydrated?

Good ideas....low blood pressure can also cause you to feel dizzy especially when standing up from sitting or laying down.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

First thing that comes to mind is a atypical migraine. You don't have to have blinding, debilitating pain for it to be a migraine.

Second thing that comes to mind is low blood pressure - of course, this just means low for you, not necessarily "text book" low.

Third, though unlikely, is mini-strokes. Don't freak out; I'm no doctor, and it almost certainly isn't this, but the reason I thought of it were the following symptoms:

1) sudden vision changes including blurred vision

2) headache

3) weakness in your leg

4) forgetfulness/cognitive difficulties

5) dizziness

Given that these things go together, I would call the doctor's office, tell them your symptoms, and schedule an appointment as soon as you can get in. If you don't have a doctor, find one you can go to - recommendations from friends if possible. I'd certainly start with a GP, and certainly wouldn't panic, but I would investigate what's going on.

BloatusMaximus Rookie

you describe the classic description of low blood sugar. eat some protein when you feel dizzy and spaced out.

homemaker Enthusiast

I have experienced those type of symptoms...usually when I have not eaten for over a long period of time...like overnight...

Mostly when I first get up in the morning....

Frances03 Enthusiast

I have no idea what my blood pressure is, I haven't had it checked lately.

No I haven't been taking the iron for long, just a couple weeks.

I am probably always dehydrated because I am never thirsty and drink maybe 2 cups of liquid a day. I try to drink more but I just can't.

I dont think it's migraines because I dont always have a headache when this happens, and I used to have migraines and they were nothing like this.

Yes I do feel faint when I stand up from a sitting position, but I thought that was normal.

I do have a feeling it has someting to do with not eating or missing something but I will try to see if it ever happens when I have eaten. I know I am not eating enough but I am still gaining weight so that has me upset. I haven't been very hungry and it's been difficult for me to figure out what to eat, not because there aren't plenty of choices out there, but because I just don't seem to have the mental energy required to think about what I can eat, while trying to homeschool 3 boys, and deal with my seizure disorder, and a house on the market, and only having one vehicle for the past 3 months because some idiot screwed up our transmission and won't cover his own warranty. PHEW boy did I just run on and on! LOL. I guess I just wanted to emphasize that I am NOT feeling sorry for myself for having celiac disease, it just does require a lot of mental energy in the beginning and I dont have any to spare!!! Therefore, I am not eating enough.

tarnalberry Community Regular

dehydration can cause those symptoms too.

with the additional information in this most recent post... blood sugar and/or blood pressure issues seem pretty likely. maybe you can make a lesson plan with the kids that includes cooking/shopping? there's some creative problem solving involved in the diet, and maybe that can both help and learn from it? (especially in the aspect of teaching nutrition, when trying to come up with *balanced*, and not carb-laden meals.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.