Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Found Part Of The Problem


Lexi

Recommended Posts

Lexi Enthusiast

I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AKcollegestudent Apprentice
I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.

Call them back and ask them this question: "Do you use barley or rye at any point in your process?" The answer, unless something has changed in two and a half months, (which was when I called them in tears from exhaustion and a migraine) will be yes. They remove the barley in the process so they don't have to list it. I remember being about five seconds away from screaming when I hung up.

I use West Soy's Rice Milk now and love Good Karma's brown rice milks. I also use Coconut So Delicious which is fine, but semi-expensive where I am. (It also requires refrigeration at all times, which isn't always helpful.) I also like making hot chocolate, and Good Karma and West Soy are better for that. So Delicious leaves a slight weird taste. I know others like Hemp Milk, but I am not a fan of Hemp Milk to be perfectly honest.

Lexi Enthusiast

I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

jnclelland Contributor
I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

NewGFMom Contributor

Try lite coconut milk. WAY less calories and I can't taste the difference. You can get it at Trader Joes. I also saw some coconut milk in the organic section at Stop & Shop in a big container. It's made by the same company that makes the coconut milk ice cream.

AKcollegestudent Apprentice
For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

jnclelland Contributor
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

So far I've only found it at Whole Foods, but I've been meaning to request it at other stores that carry other Pacific nut milks.

Jeanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

P.S. - And yeah, I didn't like Hemp Dream either.

SillyBoo Newbie

I use the Whole Foods 365 brand Rice Milk, and haven't had any problems with it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748

    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.