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Not Just What You Eat But Where


esammarie

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esammarie Newbie

Three times now, since going gluten-free after the diagnosis of DH and celiac, my "plague" or DH has erupted after eating lunch at work. Each time I had a super-yummy completely gluten-free lunch: a gluten-free Applegate Farms turkey dog on Kinnikinnik gluten-free brown bread with gluten-free mustard and some fresh lettuce. Today it was a GlutenFreeda's gluten-free dairy free veggie burrito with canned organic peaches in their own juice. I was worried. What was it??? What had I eaten? I carefully heated things in the office microwave that I cleaned and then washed my hands then my stuff was heated in the packaging I had made for them in my own kitchen.

I had heated food in the microwave before..........and then I realized what it was. My keyboard!!! I usually eat lunch at my desk, often working on the computer. Have done it for years. Of course there are crumbs in the keyboard. I can see them. I tried to clean them out and wipe down the keyboard regularly but here's the thing. Most other lunches I ate with a fork or spoon. The past two lunches were finger food. Gross, I know that, too. I got a new toaster and other things but this is the same old keyboard!!!

Lessons learned: stop eating over the keyboard (it's just not a good idea no matter what I'm eating); get a new keyboard; stop eating with my fingers, even if it's a sandwich!

Kind of funny, but not really. My own sloppiness made me sick. Dumb dumb dumb. On the bright side, these new foods really taste yummy!


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angieInCA Apprentice

I had my keyboard and mouse replaced with new at work and NO ONE is allowed to touch it by orders of my boss :D

ang1e0251 Contributor

You can also buy a skin for your keyboard to protect it and you.

esammarie Newbie
You can also buy a skin for your keyboard to protect it and you.

Oh, that's really good to know! I will look into it. Thank you so much!

esammarie Newbie
I had my keyboard and mouse replaced with new at work and NO ONE is allowed to touch it by orders of my boss :D

I am so glad to hear someone else had this experience and I love your boss's decree! Thank you so much for sharing. It really helps!

angieInCA Apprentice
I am so glad to hear someone else had this experience and I love your boss's decree! Thank you so much for sharing. It really helps!

It helps that his son is Austic and Gluten free, he really understands the need to keep my work area clean. People walk around the office eating gluten stuff all the time and he tells them to keeep it away from my area.

Jonbo Apprentice
It helps that his son is Austic and Gluten free, he really understands the need to keep my work area clean. People walk around the office eating gluten stuff all the time and he tells them to keeep it away from my area.

I wish my Boss was somewhat like yours. He's still yet to fully grasp my situation when he offers to bring in food for us on occasion. He's getting better about it, but considering the last Saturday I worked, he asked what I could have, and off top of head fast food wise, I wasn't sure. He said "What about Pancakes?". I just gave him this dumbfounded look and gave a sarcastic response (in a funny way) about what Pancakes are made from. But as said, he's learning but I just bring my own food every day so I don't have to bother him/others.


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angieInCA Apprentice

My work is geting ready for their Holiday Feast that they have catered for our whole company (70 employees). The office manager came to me on Thursday and asked me to help with the Menu so she could make sure there were pleanty of Gluten free options. She had already contacted the caterer and they assured her they would be very careful and make sure the gluten-free foods were truly gluten-free and they would set up the food so that the gluten-free foods had their own table to help avoid cross contamination throught serving utinsils. The only food that will have gluten is the stuffing and most desserts. They said all gravies and sauces will be thickened with corn starch.

I offered to bring in a Gluten free cake and pumpkin muffins. :)

I just started working there in August and since I have been there 3 other employees have come and told me that they are gluten free due to health issues. They had never said anything to the bosses before but since i have made it known about my Celiac they felt free to let their conditions known.

The result has been that the owners of the company has decided to redo our kitchen/break room with a new counter and small fridge, toaster oven and microwave all to be designated Gluten Free :D

cmom Contributor

Wow, that is awesome! Not a chance of that happening where I am...they love their doughnuts...There are a couple of people who do try to see that I have something at a pitch-in though :huh:

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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