Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Nerve Problems=healing?


hammer44

Recommended Posts

hammer44 Newbie

Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

THe same thing happened to me! I developed neuropathy and restless legs AFTER going gluten-free. Doc is fairlysure thatthe neuropathy is from low B12 and RL from low Iron. Have you had yours checked?

Korwyn Explorer
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I developed neuropathy and myoclonus after going gluten-free. Turned out I developed an allergy to Soy which was causing CNS inflammation and damage. Refined sugars in any form cause my RLS to reappear.

ravenwoodglass Mentor
For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

Have you made sure that all of those are for sure and for certain gluten-free?

hammer44 Newbie
Have you made sure that all of those are for sure and for certain gluten-free?

Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

Eric-C Enthusiast
Absolutely, Im pretty careful now about what I feed my body. Many of the products do have soy in them.

Same thing.

Take B12, D3, and Candex for yeast, all went away. I have no problems with soy or any other allergy thankfully.

Alphawave Rookie
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast
The others are absolutely correct as to the B vitamins. I suggest that you try sublingual B-12 (you can get these anywhere, even Walgreens). You cannot overdose on B vitamins, and you are going to have trouble until you heal to absorb nutrients. By the way, a recent study, (the Haines Study), says 42% of Americans are vitamin b-12 deficient. Also, you MUST take Magnesium. Your "gut" won't handle much right now. I heartily suggest magnesium oils, gel, or even Epsom salt baths. I am an older nurse, and it used to be that epsom salt baths were ordered by doctors for anyone at risk for magnesium deficiency (Diabetes, thyroid issues, auto-immune diseases). A magnesium deficiency will NOT show up in regular lab work. Magnesium will draw from your bones and tissues to "go" to your bloodstream. Topical magnesium DOES work well. Without magnesium you cannot absorb calcium well and thus your bones will become porous (osteopenia). Magnesium also relaxes the muscles and arteries of the blood system. It helps you sleep and rest and prevent backaches, etc. Let me know how you are doing.

Alphawave,

This is interesting about magnesium. I stopped taking it because my blood levels were normal. Do you have any links to any articles on this? Thanks!

one more mile Contributor

soy makes me feel like crap, runs, restless leg, body achs. ( I no longer eat it)

Amber M Explorer
Gluten Free for about a month now. I really dont miss the brain fog or gluten hangovers and all the other things that were going on but now Ive developed alot of nerve problems.

Numbness in my fingers, cold/hot spots, snakebite like feelings in my pecs and arms, restless legs.

Diet has been very consistent...Limited to steak/chicken, potatos and eggs, juice and hemp milk. For supps Im taking Promote (a prescription drink) multi, l-gluatmine, machta, fish oil and a probiotic and an occasional soy protein drink after workouts (3x week).

The pains are more annoying and worrying than anything else, no tremors or balance issues yet.

I have been gluten free for over a year now and still have problems with Gluten Ataxia which includes some of your stuff. After finally tapping into the "Candida" issue, thanks to you people, I have been on mega doses of probiotics and am getting some relief. I researched to discover that the outside of the cell of the yeast infection produces the exact same protien as gluten and will attack the same as gluten! Shock! I had a white tounge, thats it, but obviously (after several rounds of antibiotics), ya, I had an overgrowth. My Ataxia was at its worst during both of the last 2 rounds of atibiotic. But the overgrowth of yeast has been there for a lot longer than that. No wonder I haven't been well.

But another issue has cropped up. The Doc thinks there may be an "underlying" issue that brought the imulogical gluten issue out to begin with since I was genetically pre-disposed for it. Upon further research, I disscovered that they now think the over growth of yeast brings out our pre-dispossed for diseases! They are testing me for "Lymes" and "Heavy Metals" too (I work with 7 types). What ever brought the gluten issue to the surface, it is here for life now, just like diabetes, etc. I don't try to fool myself into to thinking I can eat the stuff again, but maybe corn?, or the many other food allergies that have cropped up since the gluten issue.

I guess also part of what I'm saying is this journey I have been on is sometimes a drag, but the one thing that has helped me the most is this sight. It leads me to go further researching every aspect of this gluten issue. It's the thing that has saved me because I have Doctors that know nothing about this. My PA is doing research now, thanks to the "mystry" I have presented to her.

Best of Luck, check out the "National Ataxia Foundation" as well as the neuropathy things.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,891
    • Most Online (within 30 mins)
      7,748

    RyanDunn
    Newest Member
    RyanDunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.