Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Any 1 Tell Me What Symptoms Cleared After Going Gluten And Or Casein Free?


Internal-Disaster

Recommended Posts

Internal-Disaster Rookie

I have lots of lifetime issues that have never been resolved. I am nervous about some of the issues resemble lyme. I am just now being told to go gluten and casein free and will be doing so but I am finding myself saying " is is really possible that all these strange lifelong symptoms can be from gluten and casein or both"

Can anyone give me a list of symptoms they had that cleared after going either gluten or casein free or both?

1)swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

2)I have headaches every day I wake

when I sit down tingling in my foot (but may be a back issue thats unknown)

swollen glands throughout my whole life on and off sometimes chronic but sometimes it doesnt come for months

3) hormone issues

4)insomnia

5) specks of white stuff that comes and goes in my throat in the tonsils

6) DEPRESSION

7) chronic extrem fatigue especially after eating

8) dark under eye circles and often wake with puffiness-dr sayd adrenal related but unsure about that but I do have adrenal issues

9) sinus mucus all the time

well there is more but I will leave these for now

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



homemaker Enthusiast

For me...going Gluten Free...solved my constipation, chronic headaches and joint pain

Internal-Disaster Rookie
For me...going Gluten Free...solved my constipation, chronic headaches and joint pain

really? and I see it had been about 2 months you have been gluten free. I am looking for some hope!

Thanks

GottaSki Mentor

For me the first improvement was no more bloating...just prior to diagnosis I was severely bloated every afternoon/evening -- looked about 8 months pregnant that would deflate by the next morning.

Other improvements were all digestive - gas, constipation, heartburn.

I still have many other symptoms -

stiff/sore upon rising in the AM - improves once moving

3-4pm extreme fatigue/fog/joint pain/stiffness - basically can't function after 4pm

insomnia

severe heat intolerance

I was recently diagnosed with Fibromyalgia, but am hopeful for more improvement as more time passes gluten-free.

Good Luck and best wishes for quick healing.

-Lisa

  • 2 weeks later...
kayo Explorer

When I got my enterolab results back I was shocked to see I had a soy intolerance as well as gluten. I didn't know anything about soy intolerance so I searched for symptoms. This is when I had a big aha! moment.

I stopped gluten the end of July and while I felt some great improvements I still had inexplicable weight gain (after loosing initially when going gluten-free), big D, cramps, brain fog, insomnia, headaches, dehydration, rashes, tingles in my hands and feet. Plus a persistent sore/scratchy throat, raspy voice, a voice that would disappear, and mucusy sinus issues. This one is weird: sometimes my tongue just can't make words. It feels weak. The fatigue is awful. My RA has been acting up as well.

Search for soy intolerance and see if it describes your issues, I think it does but you would obviously know best. :)

The other Aha! moment for me is how soy can mess up your menstrual cycle. My periods are 7-10 days long and it's been this way for 5+ years. Docs kept telling me, this is just you. Well, it looks like it may be soy related as well.

Good luck!

nmlove Contributor

So my boys are the gluten-free ones. My test came back negative though now that I'm mostly gluten free too (they're young and most processed gluten-containing foods that I would eat has soy or dairy in it). But I'm starting to notice reactions to the times I eat gluten. Like when we order pizza after the kids go to bed. :)

But casein free, that I can address. I actually found out about my intolerance or whatever you want to call it - nothing's official - when I had to take it out for my baby girl. I've been casein (and soy) free since July and I most definitely react to casein. Soy I'm not sure as my daughter reacted so strongly I'm not ready for a challenge. But once the dairy was gone I realized how much it affected me. The big symptoms? Migraines, sinuses/throat filled with mucous, fatigue, some bloating/gas but the worst thing for me was the constant cramping. I felt like I was on my period or ovulating ALL the time. I felt so yucky. Also caused a bit of discharge. And cravings? Completely gone. Amazing!

Lynayah Enthusiast

Check out my signature, below. All symptoms improved - except for white cell count which I have not had checked. :)

Also, years back, I suffered from almost a full year's worth of chronic fatigue with swollen glands every day and a strep-like sore throat every morning and night. I don't know if gluten-sensitivity had anything to do with it, but since you mentioned the swollen glands, I thought I'd mention it, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.