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Could I Have Gotten Glutened From A Probiotic?


jasonD2

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jasonD2 Experienced

My doctor suggested I take a strong probiotic so I got some HLC Synbiotic by Pharmax. 20 min after drinking the mixed powder i got tingling in my arms and legs. I still dont know if this is a gluten-related reaction or something else, but I suspect it is gluten.

The company is in the UK and clearly states the product is gluten free. the US distributors also have gluten free listed all over their websites. the only thing suspicious is that they use maltodextrin to dry the flavoring, which is apricot powder. They site says the powder is also gluten free. could my "reaction" be unrelated? I didnt eat anything else different


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mushroom Proficient

Sometimes we react to things whose source we cannot identify. I react to gluten-free sublingual B12 but do not have reactions to any of the ingredients individually. I would say if you react to something, just don't take it and leave it at that. ;)

YoloGx Rookie

Natural flavorings by the way are usually alcohol based and thus not gluten free.

Bea

jststric Contributor

My doc also told me to do the same, but I'm very dairy-intolerant also. It took some doing to find a probiotic that was allergen-free besides the gluten-free. You COULD be reacting to some other food besides your gluten issues.

Wolicki Enthusiast

Jason,

I tend to be leary to things manufactured outside of the US because of labeling laws. Why not go down to Whole Foods and get the stongest ones they have, allergen free, and just take them three times a day?

Keep your chin up!!

jackay Enthusiast

My probiotic states that it does not contain milk, egg, fish, crustacean shellfish, tree nuts, wheat (gluten) peanuts or soybeans. It goes on to say that some straines are fermented in soy and/or milk and that processing elilminates any soy and/or milk residue. I am intolerant to soy and milk. I question if this is a safe product for me.

Can anyone provide the brand name of a product that is definitely gluten, soy and dairy free?

gaingus Rookie

I'm not too sure about other products because I use dairy based probiotics which obviously doesn't work for you.

One thing I have learned, when it comes to allergen labeling (I know it's not an allergy it's a disease but the FDA considers it an allergy for labelling), in the US we only label wheat as an allergen on foods. I have learned to scrutinize each ingredient in a product, and sometimes some do slip through. I know you asked about maltodextrin, once again here in the US, if the maltodextrin is sourced from wheat and it is known to come from wheat it has to be marked on the label.

There are some foods that I purchase that come from other countries through Whole Foods or off the internet that specify were it is sourced from, for example: maltodextrin(corn); maltodextrin(wheat); maltodextrin(rye); et........ Maltodextrin can be sourced from many different grains and if it is from barley, malt or rye in the US it won't be labelled as such unless the manufacturer chooses to put it on there themselves. As of recently, most of the maltodextrin used (especially in the US) is corn so you should be safe there. Now depending on how sensitive your system is, there has been research on cross contact where silos are used for more than one type of grain for example, housed wheat one season and then housed corn the next without being cleaned. This is usually a bigger issue with oats, but could be possible with corn, rice etc.


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jackay Enthusiast

I ran across a product that that lists flavoring. It is Goody's Cool Orange pain relief powder. I contacted the company and was told:

"The maltodextrin in the peppermint flavor is derived from wheat at less than 60 parts per million." That isn't disclosed on the product label. I couldn't taste that there was peppermint flavoring in it.

From now on I will question every product that lists flavoring.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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