Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kissing


jackay

Recommended Posts

Ahorsesoul Enthusiast

notkuroda,

Five stars to you!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I asked him if he has done any research on gluten or if he'd be willing to do any. He responded "Not at this point." That pretty much says it all. He is staying ignorant so I am staying away. Not the best grounds for a marriage but than what is a marriage if it puts one health is at stake?

I say call him out on this. Literally, "If you care about me, you should care about my health. If you care about my health, you should care about me staying healthy and not harming my health. So why the refusal to learn how I can best stay healthy?" And don't take p%$#@#foot "I don't have time" answers - that means "I don't have time to prioritize you over myself". I'm not actually suggesting that he doesn't care; I'm suggesting that he's avoiding the issue and doesn't realize that he's coming across as an inconsiderate boob.*

I don't require my husband to brush his teeth, but it'll be awhile after he eats before I kiss him. (Amylase will help break down starches so they can be washed away by saliva. That's been good enough for me, but I realize it is NOT good enough for everyone.) Heck, he'll warn me *not* to kiss him if he's recently eaten something evil. At first, he also thought it was overreacting, but came to understand that even if it's a bit of paranoia that makes me worry about such "small amounts of contamination" (please note the sarcasm intended by those quotation marks), it's probably better to be paranoid and safe, than careless and sick all the time. It's the tradeoff.

I would have a serious discussion with him, trying to make sure you guys UNDERSTAND each other. Not yet agree. Not blame, not suggest, not tell, not anything but "help me understand your side" from both of you. Talk about solutions again another day, after you've both had time to ruminate on what's going on in the other person's brain.

*Side note - with a new mom and a bunch of preggies in the friend's circle, breasts have been a topic of discussion. (Dear lord, will they stop getting bigger?! Breastfeeding isn't exactly easy! Ow, stop biting me! :) ) So, the phrase "inconsiderate boob" strikes me as hilarious. Is it the one that grows way faster than the other? The one the baby keeps mauling? Do they really have minds of their own?! Sorry for the thread drift, but it's really kind of hilarious. :D

jackay Enthusiast

My dh is definitely not the nurturing type. Hasn't been in the past and I don't see it coming in the future. I always considered him hard on our kids, too, but they were able to handle it.

The night before last, I gave my dh a peck on the lips. Scared me, but I did sleep that night. Yesterday is when I said no more kissing for the time being. He has given me the cold shoulder ever since. Hopefully this will pass in time.

Anyway, I slept again last night. I can't remember when I have gotten a significant amount of sleep two nights in a row. Also no diarrhea this morning. :)

If everyone had the same reaction to gluten it would be so much easier. It is hard for others to believe that food can cause anxiety and insomnia. It goes into the stomach so the symptons should relate to that. If only it were that simple! In fact, if it were that simple, I think the last 15 years would have greatly improved. It wasn't until I started in with diarrhea that my doctor suspected gluten.

tarnalberry Community Regular
My dh is definitely not the nurturing type. Hasn't been in the past and I don't see it coming in the future. I always considered him hard on our kids, too, but they were able to handle it.

Oh, I don't mean you should be asking him to nurture you. He should just respect you. Ignoring your health needs and putting his convenience over your physical health is showing distinct DISRESPECT, regardless of "nurturing".

(Yeah, I feel kind of strongly on the issue of basic respect for other people's decisions. :D )

KikiUSA Explorer
Hi all, new around here, thought I would give the other perspective.

My wife was diagnosed about a year ago. She is also hypothyroid and has neurocardiogenic syncopy(fainting spells). The time leading up to her diagnosis was a very painful one. She had no energy, and frequently broke out in painful rashes(dh). The gluten free diet has helped her a lot, but she still gets contaminated. Our whole family has gone gluten free(I have two daughters from my previous marriage that is with us on weekends and vacations). We just don't want to take the risk of anything getting in her system. We don't eat out anymore and rarely eat as guests of friends and family.I still drink beer, but understand I definitely can't kiss her when I do, usually not until the next day and some vigarous cleaning. Her contamination cycle is heartbreaking. When she gets it, she breaks out in dh. Then she has about a week where her energy is completely sapped, and she gets depressed. Our nutritionist confirmed that when she's contaminated, she can't absorb her thyroid medicine, so she has no metabolism. Every time the dh comes back, we know we're in for a rough week.

It took me awhile to figure out the lifestyle changes that we would both have to make in order for her to get healthy. She's about to turn 40, and she's had this all her life. Her doctor told her it would take a couple of years to repair all of the damage that's been done to her system. It's difficult for me, although not nearly as difficult as it is for her. I think people need to come to the realization that this is not an allergy, or a digestive problem. This is a DISEASE, like cancer. It needs to be treated with the same kind of vigilance. It's tough, sometimes I wonder if I have the strength to deal with it the rest of my life. But she's the best thing to ever happen to me, so we keep pushing onSo please, cut your SO's a little slack. Explain what you're going through in no uncertain terms, and let them know that this is a lifestyle change. I don't know that everyone needs to live in a gluten free household, but I know that I would do everything in my power to help make sure she never gets contaminated again. But when she does, I summon all the strength that I have to help her get through it.

Hope you don't mind if I post this in the "families" section as well.

Amazing, thanks so much for sharing this. Totally has given me hope notkuroda :) I am on day 9 of trying to be gluten free but I am still in pain even though we have cleaned out the kitchen and given me seperate cupboards and pots and pan's and I wash my stuff seperatly, I'm still doing something wrong and probably still having contamination issues but reading this gives me hope!

Thanks again

jackay Enthusiast

Right now I could use both respect and nurturing!

Jean'sBrainonGluten Newbie

I know you're hurting and sick. You can hope he'll eventually come around but in the meantime could you try something like scratching his back? My husband just really likes to be touched and I found if I got a skin scrubber thing (like for exfoliating the legs or something) and scratch it over his back he's very happy and feels loved and it doesn't tire me out the way scratching or rubbing with my hands does.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

My DH is coming around. We talked about it last night. He listened as I quoted information from books and looked at my test results showing my food intolerances. Before this he wasn't interested in learning anything about it. He asked how he could help me. I asked him to be super careful because of gluten contamination and to be patient with me. I am hoping after a couple of months this will all be routine for the both of us. For now, no kissing. I don't want to chance it until healed. I know the toothpaste I use is gluten free but I haven't checked yet if his is. Hopefully, in the future kissing is back. :)

tarnalberry Community Regular

Whoohoo! Congrats on the first step. If he's not opposed to hugs (and other forms of physical affection), I'd vote for replacing ever temptation for a kiss (right now, until you're back on to that) with a hug or something along those lines.

As for toothpastes, I know that anything by Crest or Colgate is gluten free. Tom's of Maine is too. Sensodyne has some outsourced ingredients that they won't say are gluten free.

YoloGx Rookie
My DH is coming around. We talked about it last night. He listened as I quoted information from books and looked at my test results showing my food intolerances. Before this he wasn't interested in learning anything about it. He asked how he could help me. I asked him to be super careful because of gluten contamination and to be patient with me. I am hoping after a couple of months this will all be routine for the both of us. For now, no kissing. I don't want to chance it until healed. I know the toothpaste I use is gluten free but I haven't checked yet if his is. Hopefully, in the future kissing is back. :)

Hooray for you!!

Bea

Ahorsesoul Enthusiast
My DH is coming around.

I am so glad for you.

Jean'sBrainonGluten Newbie

Yay!

ang1e0251 Contributor

I'm glad you could talk it out. That's always the best way.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,129
    • Most Online (within 30 mins)
      7,748

    Raz
    Newest Member
    Raz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
    • jessicafreya
      I'd like to make tamales and wonder if anyone has recs for corn husks free of cross contact for a sensitive celiac little boy. Thks!
    • knitty kitty
      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.