Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Call Companies To Ask About Ingredients?


mytummyhurts

Have you called a company to find out more about questionable ingredients?  

28 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

mytummyhurts Contributor

I'm wondering how many people on here have actually called companies to find out what questionable ingredients are. I have yet to call and I'm not looking forward to having to do it. Is it a pain in the butt? Are they usually friendly and helpful or are they annoyed? Also, how do you word your question? Do you just have to ask if gluten is in an ingredient and they automatically know what you are talking about? Or do you have to explain what gluten is and how it can be a hidden ingredient?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

I have called at least one company - the company that makes a medicine called Mucinex when I had a really bad cold this winter. I usually email companies, though. A couple have been bad about returning emails - the Peelu company is the worst so far (they make a gum you can find in the health food store - 3 emails and two calls with no answer).

There was another supplement company I had trouble with initially, Planetary Formulas - several emails and phone calls (voice mail). Finally someone responded. But it turns out that while the ingredient I was concerned about is gluten-free, the other herbs are Chinese herbs and they can't guarantee their status, as the guy I contacted doesn't know Chinese. I can understand the idea that they couldn't control the ingredients but that they can't find out what they are because the guy doesn't know Chinese? How do they even know then they are getting the right herbs??? I found that response to be a little lame.

Despite all that, I do take some of their supplements and have not had any negative reaction to them. They are the only ones who make some of the formulas I like to take so I'm currently stuck there.

When I called the Mucinex company, I was prepared to have to go into detail and explain what gluten was but the woman on the phone immediately knew what I was talking about and could clearly explain that their product was gluten free. So I'd say it depends on the company and some will be easier to deal with than others.

Stephanie

mytummyhurts Contributor

I had e-mailed a company once too and they never got back to me. I explained in my e-mail how important it was that I found out and apparently they didn't care. That makes me really mad though. It's like, I'm giving you my money and you don't care enough to type out a couple words. E-mail's an easy way for people to get off without answering, so I'm sure it's better to call.

Guest nini

I carry my cell phone with me in the grocery store and I have called companies right from the store. Frito Lay Co. was extremely helpful and took my name and address info and sent me lots of coupons as well as a current gluten free list. Malt O' Meal also sent coupons. Kroger is pretty helpful on a case by case basis, but they don't provide a list of all of their store brand gluten-free products. I've called Seeds of Change and Cedar Lane and they've been really helpful too.

tarnalberry Community Regular

Not a pain the butt at all. Some places need a little more guidance than others when asking, some know what you're talking about right away. I think I've called about 5 places and emailed another 10 or so. I've never had anyone get annoyed, but one or two who just couldn't help because they didn't have the information.

KaitiUSA Enthusiast

I do the same as Nisla and always have my cell with me in case I need to call a company. I think the companies would know me by name now :lol:

judy05 Apprentice

I've called several, McNeil(tylenol), Campbell's, several local companies. They all knew what gluten is, were very courteous, one got back to me 2 weeks late but I appreciated that she did get back to me. As others have said they thank you for calling and usually send a bunch of coupons. I called Tropicana and they said any juices with a code number starting with the number 48 means that it was made in a gluten free facility. Most companies put someone out there in a contact position who knows about gluten and other allergens. Don't be afraid to call, thats how we get the message out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Always call with the rare exception that many people verify that a product is gluten-free within a recent timeframe...then I might just read the label. It's not a big deal at all...but if you want to get a direct answer, sometimes you need to call...otherwise it can take awhile to get your answer.

I had to exchange e-mails with Baskin Robbins for days about a candy thing that they made. They kept saying it's gluten-free, but it might be contaminated and such, so it took awhile to get to the bottom of it ;)

skbird Contributor

Ahhhh, now that's a good reason for a cell phone. I don't have one yet (I can't believe the personal calls you hear when you're in the store!!! mortifying to me if obviously not to the perpetrator!!!) but when I do finally get one, that's one thing I'll use it for.

As for emailing, I felt it was wimpy but I'd say I have about a 95% response rate. One or two got back to me nearly a month later and another got back to me within a week and then replied again, same info, 4 months later!!! I thought that one was funny.

Also, many company web sites will give you info about whether or not their food is gluten-free. I really liked the Chicken of the Sea website - very obvious!

Stephanie

mytummyhurts Contributor

Well, my other problem is that I have social anxiety disorder. So thinking about calling people really stresses me out and I put it off for a long time. E-mail is impersonal so that doesn't bother me. But it also isn't as effective and takes a while to get answers from what it sounds like.

calico jo Rookie

I've called so many companies I can't even remember how many now. Once I got it established that a company would not hide a gluten containing ingredient in their labeling, I stopped calling that particular company.

Most are very helpful, but sometimes not very knowledgeable. The only negative experience I had was with Land O Lakes. They said they couldn't assure me that their products weren't exposed to cross contamination and that NOBODY should be guaranteeing me of this, because of how things are shipped. (but gosh, if things are sealed up, even if they're sitting next to an item with gluten in the back of a truck gluten isn't going to seep through a sealed container!) Whatever!!

skbird Contributor

Abby - my problem exactly. I totally have anxiety especially about calling people/companies. It has improved but is still a factor of my life. That's what I love about email. I have found it to work pretty well, too, so don't worry about calling if you're not up to it. I have only called maybe two places. The rest were email and I got 90% of the info I wanted.

Take care

Stephanie

mytummyhurts Contributor

Thanks, Stephanie. I'll try to start e-mailing more often and see if that works. :)

flagbabyds Collaborator

One time I wasn't sure about the ingredients so we asked a worker in Whole Foods to find it and then he called the company and told us that it wa gluten-free! I was so amazed! But my family has probablt called over 500 companies over the years, and their knowledge has gotten better as the years have progressd, there are still some companies who don't know anything, but there are some who are much better. I always go to their website first and see if they have it on their website or else we call them.

mytummyhurts Contributor

Okay, I just found something I don't like about e-mailing companies. I tried to write the people who make Hot Tamales and they wanted me to give them my address and birth date and almost every private thing I don't like to just throw out there. I don't like that at all. :angry:

KaitiUSA Enthusiast

I love hot tamales...we have 2 brands alot ...what brand are you looking to find out about I may know the answer. If I don't someone else here might

celiac3270 Collaborator

I don't think I have social anxiety disorder or anything, but I just strongly dislike talking on the phone :D. I e-mail unless I need a quick answer or the company seems to dance around the topic in their e-mail response.

KaitiUSA Enthusiast
but I just strongly dislike talking on the phone :D. I e-mail unless I need a quick answer or the company seems to dance around the topic in their e-mail response.

Yep typical guy not liking to talk on the phone :lol: They think a long coversation is 2 minutes :lol:;):P

celiac3270 Collaborator

lol :lol: ...nah, I can last three or four. :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,131
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.