Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Do To Help Speed Recovery?

sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator
sandsurfgirl
Posted

Just like most of you on this board I have been misdiagnosed for my entire life and just got my diagnosis at the ripe "young" age of 40. I had an attack of dizzy spells, vomiting, chest pain and stomache pain that landed me in the E.R. last Sunday (4 days ago) and the E.R. doc happened to be a celiac disease patient himself. When he looked at my history, he said "You need to be tested for celiac disease and if the test is negative go on a gluten free diet anyway."

So I immediately called my doc Monday, got the test and went gluten free that day. I got my results today and they are positive without a doubt.

This attack, after eating pizza and cake at my nephew's birthday party has been the most severe and long lasting one I've had. I'm still feeling nauseous. I'm having many bowel movements per day, especially in the morning, like 5 of them within 2 hours this morning, and when I have to go I'm having dizzy spells right before. I had dizzy spells all morning, but started feeling better around noon. Also I'm alternating between C and D.

I am being ridiculously careful about my diet and I'm taking probiotics (gluten free of course). What else can I do to speed healing of my poor digestive tract? I'm seeing an acupuncturist but I don't have an appointment until Saturday with him and I don't know how much he knows about this disease and the diet, etc.

Maybe this is gross and TMI but do enemas help or do they cause more irritation? I used them in the past for C, but I don't want to make things worse with that at this point.

I have a 2 and 5 year old, and it's tough caring for them with these dizzy spells and the need to stay near a bathroom.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Just like most of you on this board I have been misdiagnosed for my entire life and just got my diagnosis at the ripe "young" age of 40. I had an attack of dizzy spells, vomiting, chest pain and stomache pain that landed me in the E.R. last Sunday (4 days ago) and the E.R. doc happened to be a celiac disease patient himself. When he looked at my history, he said "You need to be tested for celiac disease and if the test is negative go on a gluten free diet anyway."

So I immediately called my doc Monday, got the test and went gluten free that day. I got my results today and they are positive without a doubt.

This attack, after eating pizza and cake at my nephew's birthday party has been the most severe and long lasting one I've had. I'm still feeling nauseous. I'm having many bowel movements per day, especially in the morning, like 5 of them within 2 hours this morning, and when I have to go I'm having dizzy spells right before. I had dizzy spells all morning, but started feeling better around noon. Also I'm alternating between C and D.

I am being ridiculously careful about my diet and I'm taking probiotics (gluten free of course). What else can I do to speed healing of my poor digestive tract? I'm seeing an acupuncturist but I don't have an appointment until Saturday with him and I don't know how much he knows about this disease and the diet, etc.

Maybe this is gross and TMI but do enemas help or do they cause more irritation? I used them in the past for C, but I don't want to make things worse with that at this point.

I have a 2 and 5 year old, and it's tough caring for them with these dizzy spells and the need to stay near a bathroom.

Sorry, you just have to let it ride. Drink lots of water, whole foods, nothing processed, and stay away from additives and gluten replacement foods. Fruits, veggies and lean protein, and lay off the dairy for a while. Enzymes with your meals might help some. I hope you feel better soon.

runningcrazy Contributor
runningcrazy
Posted

Well i think enemas might be harsh especially for the healing body :huh:

Stick to bland foods-rice, vegetables, and other easy simple foods. Stick to whole foods. Avoid dairy. Drink lots of water and stay away from all soda or other drinks other than water and tea.

Keep a food diary and try to see a connection between symptoms and the food you are eating. Be easy on your stomach and try to get enough fiber but dont be harsh on your body.

Also, get some gluten free enzymes, these help a bunch!

I was terribly constipated for years and my doc had me on 6 laxatives daily, i went to the ER once and they just told me to use an enema. Neither of these worked :(

After going gluten free, it took a few months to get regulated. Also, im 5 months into it and still not fully recovered.

sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

Well i think enemas might be harsh especially for the healing body :huh:

Stick to bland foods-rice, vegetables, and other easy simple foods. Stick to whole foods. Avoid dairy. Drink lots of water and stay away from all soda or other drinks other than water and tea.

Keep a food diary and try to see a connection between symptoms and the food you are eating. Be easy on your stomach and try to get enough fiber but dont be harsh on your body.

Also, get some gluten free enzymes, these help a bunch!

I was terribly constipated for years and my doc had me on 6 laxatives daily, i went to the ER once and they just told me to use an enema. Neither of these worked :(

After going gluten free, it took a few months to get regulated. Also, im 5 months into it and still not fully recovered.

What are gluten free enzymes and where do I get them? I swear this is the only message board where you can freely talk about constipation and nobody thinks you are weird. LOL!!

Wolicki Enthusiast
Wolicki
Posted

What are gluten free enzymes and where do I get them? I swear this is the only message board where you can freely talk about constipation and nobody thinks you are weird. LOL!!

There are many gluten free enzymes. I use NOW brand plant enzymes. Whole Foods, Natural Health Stores, maybe through a naturopath if you don't have those, but you can certainly get them on line.

mushroom Proficient
mushroom
Posted

There are many gluten free enzymes. I use NOW brand plant enzymes. Whole Foods, Natural Health Stores, maybe through a naturopath if you don't have those, but you can certainly get them on line.

These are the basic digestive enzymes, like protease, lactase, lipase, some have bromelain and papain. Often you will find that your pancreas needs a bit of help producing these at first. I found them very helpful.

butterfl8 Rookie
butterfl8
Posted

L-glutamine has helped me too. Apparently it is supposed to help rebuild the cells of the intestines! Sounds perfect, no? The nutritionist I saw when first diagnosed recommended 2000 mg, 3x per day. Don't think it will speed anything up, healing wise, but it does help the healing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Eat very simply to give your digestive track time to heal. May want to try some Immodium to stop some of your symptoms, too. Unfortunately, there is no one magic bullet.

mysecretcurse Contributor
mysecretcurse
Posted

Girl, its been years for me and I'm still healing. It takes time. A lot of time. Even healing to where you feel better in a few weeks wont compare to the healing you see overall in the next months, years of your life! Its amazing, but a hard journey too. For some immediate relief I suggest eating mostly green smoothies for a couple days, with some food fat in them like avacado.

The things that have helped me the most are more good fat in my diet (avacado, coconut oil, flax) and more meat. Try not to eat too much grain, even safe grain like rice. For me, the best things I did were eating fatty cuts of meat and yummy vegetable fats. Maybe its just my blood or body type though, I can't really say, just do what works for you. Sorry I don't have a lot of better advice, I just wanted to give you hope of all the good healing you have to look forward to. :)

Fields Newbie
Fields
Posted

Just like most of you on this board I have been misdiagnosed for my entire life and just got my diagnosis at the ripe "young" age of 40. I had an attack of dizzy spells, vomiting, chest pain and stomache pain that landed me in the E.R. last Sunday (4 days ago) and the E.R. doc happened to be a celiac disease patient himself. When he looked at my history, he said "You need to be tested for celiac disease and if the test is negative go on a gluten free diet anyway."

So I immediately called my doc Monday, got the test and went gluten free that day. I got my results today and they are positive without a doubt.

This attack, after eating pizza and cake at my nephew's birthday party has been the most severe and long lasting one I've had. I'm still feeling nauseous. I'm having many bowel movements per day, especially in the morning, like 5 of them within 2 hours this morning, and when I have to go I'm having dizzy spells right before. I had dizzy spells all morning, but started feeling better around noon. Also I'm alternating between C and D.

I am being ridiculously careful about my diet and I'm taking probiotics (gluten free of course). What else can I do to speed healing of my poor digestive tract? I'm seeing an acupuncturist but I don't have an appointment until Saturday with him and I don't know how much he knows about this disease and the diet, etc.

Maybe this is gross and TMI but do enemas help or do they cause more irritation? I used them in the past for C, but I don't want to make things worse with that at this point.

I have a 2 and 5 year old, and it's tough caring for them with these dizzy spells and the need to stay near a bathroom.

Fields Newbie
Fields
Posted

Try Align Probiotics and use 3 times a day. This will help with the bathroom trips. Find a good Nutritionist to ensure you're getting the amount of protein you need for energy. Fresh fruits and vegetables along with lean meats are key. It's a long journey. I wish you well especially with having small children. You should also have them tested.

sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

Try Align Probiotics and use 3 times a day. This will help with the bathroom trips. Find a good Nutritionist to ensure you're getting the amount of protein you need for energy. Fresh fruits and vegetables along with lean meats are key. It's a long journey. I wish you well especially with having small children. You should also have them tested.

Having the kids tested is my next step. My sister is also getting tested because she has symptoms bad, and other autoimmune disorders that could be linked.

My 5 year old gets violently ill if he eats anything whole wheat, not so much with white flour, but I think he might have symptoms such as asthma and allergies that are not gastro. He's a great kid, but he can also get very agitated and upset at times for something minor and I think that it's a celiac symptom.

SaraLynnMusic Newbie
SaraLynnMusic
Posted

I'm going through the same thing with the D and having to take Imodium just to be able to leave my house. What has helped me is Aloe Vera Gel that you ingest, Calcium Magnesium (believe it or not that helps your bowels), and Acidophilus. These things calm your stomach and help internal healing to go faster. I have been on the gluten-free diet 2 months and these things are helping me a lot. Also, for the emotional and anxiety side of things try an infrared sauna at a nearby spa. A fellow Celiac recommended it to me that the heat will help you sweat out the toxins that are still in your body much faster. It did help and also made me relax which assists in calming the D. Also, if you can manage a massage it does aid in digestion problems. That's only if you've made it to a point where you're able to take an Imodium and make it through the appointment. As for the emotional side of things you may want to look into meditation and yoga. I've just started and I do feel better.... good luck to you. There seem to be lots of people here who can empathize.

  • 2 weeks later...
Tigercat17 Enthusiast
Tigercat17
Posted

Sorry you found out after so not feeing good for so long. Believe me I know how you feel! Like most of us, I too, found out I had celiac disease after lots of health problems. It does take a while to heal. I've been gluten free for almost five months & I'm just starting to feel better. I was so skinny, but I gained all my weight back & I can finally have dairy! :D It was a tough road.

What really helped me was yogurt (1-2 a day with live cultures), eating whole unprocessed food (lots of variety), exercise (circulation helps the body heal, but, don't over do it). Stay away from the gluten free products for a while. Don't eat anything that bothers your tummy. Also, keep a food diary. It really helps to sort out the foods that bother you. Then you can add them back one at a time after you healed some.

Also, make sure you're drinking enough fluids like Gatorade, especially since you're having dizzy spells & you're going to the bathroom a lot. You might need some electrolytes.

Happy Healing! You Will get better! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.