Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We'Ll All Be Eating Gluten In About 15 Minutes...Sorry

camprunner

By camprunner
in Coping with Celiac Disease

Recommended Posts

gabby Enthusiast
gabby
Posted

Thermos! Thermos! Thermos! I have several in various sizes (tall, thin, wide, short, big, little) and I take one or two along whenever I go to a dinner or someone's house. I fill it with whatever I feel like eating: sometimes it has hot soup, or hot stew or hot risotto, chili, creamy polenta and sauce, gluten-free noodles and sauce, etc. Everything will stay hot and delicious for around 8 hours. I will also bring a smaller thermos that has my own hot coffee or hot tea in it. I always explain ahead of time to people that I'm bringing my own food.

If I want to eat something cold, then I bring my lunch-sized thermos bag that will keep things cold for a good 4-6 hours. In there I'll stash cold drinks, or cold chicken salad/tuna salad/gluten-free noodle salads, veggies and dip, etc.

I always carry a knapsack with me that is always stuffed with things I might need including: fresh washed fruit, nuts, safe popcorn, etc. Plus I always carry my own little stash of cutlery, small plastic plates, safe packets of salt/pepper/condiments/sugar, a bottle of water. If I need any of these things, I just get them out. If I don't need these things, I leave them in the bag and use them at a later date. The point is that I'm always prepared. The first 2 or 3 times people see you drag out your knapsack, they'll comment on the strangeness of it. But by the 4th or 5th time, they won't even blink an eye. Seriously.

Hope this helps!

  • 1 year later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted

I do not necessarily expect the world to revolve around my diet, however I do expect people to consider my feelings.

Mostly just hurt that these are all people who are supposed to love me and don't understand.

camprunner, Your issues with pizza & other foods at home are issues that can be worked out... On the other hand, going out to visit friends and family can create issues... Trveling to visit can cause bigger issues... I have 2 simple rules; True Friends and Loving Family Members will accept me to judge their food, "As safe for me to eat or allow me to bring my own food" or stay at home... True Fiends and Family will miss you and then work out the food issue with you... I find that people who ask what they need to do to prepare a meal for me, are usually ill equipped or lack the ability to comprehend the total picture of details.. So Rule #2; If they need to ask how to prepare a gluten free dish or meal, I just assume they can't pull it off and offer to just bring my own food... I suffered way to many years to chance eating food prepared by someone trying to accommadate my diet without knoweledge of gluten free food prep... I will trust my Daughter's cooking...

Elizabeth5220 Apprentice
Elizabeth5220
Posted

I like to use analogies...and I while allergy is not quite accurate, for many uneducated, non-celiacs, it makes sense. Tell your family that while some people are allergic to peanuts, you are allergic to wheat. You get sick if you eat it. Ask them if they would give booze to an alcoholic? It's not quite the same thing, but you get the picture... :)

Cathey Apprentice
Cathey
Posted

I'm sorry your having such a hard time with family and friends understanding your health. Remember NO ONE can take advantage of you unless you let them. Take as much pre-made food as you can with you to eat, make meals and freeze them, pack in ice and travel keeping in mind your health is the most important thing and have an enjoyable Holiday.

I was just speaking today to my son, Christmas Eve has been moved to my brothers instead of my sisters. My sons response "guess you have to bring me a meal". He and my niece are Vegetarians, where ever we go I always bring several dishes for them. Last time my SIL had nothing for them to eat. That's why I always bring my own for them. This year Christmas Eve my sons girlfriend is flying in and she is also gluten-free. She is revealed to know our home is gluten free. Amazing how accommodating some family members can be, Thanksgiving my other sister when above and beyond to make sure I would not be CC in her home.

Have a wonderful holiday and plan ahead, don't worry about how they will feel if you don't eat their food, you are the most important one.

Cathey

mamabear272 Explorer
mamabear272
Posted

I have to say that this post infuriates me! :angry: My family isn't very understanding of my disease but they NEVER tell me I can't bring gluten-free things to functions. My friends are really goo about making sure they have plenty of gluten-free items for me and in my house, my hubby (when he makes dinner) makes it gluten-free. I just can't imagine friends and family being quite that un-accepting. You have to take care of you and if your family doesn't get that then I wouldn't visit them!

IrishHeart Veteran
IrishHeart
Posted

Hey guys,

This post is from January 2010--and the OP may not see your replies.

Just so you know. :)

Cheers, IH

Katrala Contributor
Katrala
Posted

I don't bring things that I can't eat. Period.

If my family said I couldn't bring my own food, I wouldn't go. In-laws or not.

I don't think you have to have what they are eating, though. I mean, it's nice, but part of having dietary restrictions is knowing that there are times that you don't get to eat what everyone else is eating. It sucks, but it happens.

There have been a few evenings here and there where I've picked up a gluten pizza for the kids because I was too exhausted to really cook anything. I think I had a bowl of popcorn for dinner. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamabear272 Explorer
mamabear272
Posted

I don't bring things that I can't eat. Period.

If my family said I couldn't bring my own food, I wouldn't go. In-laws or not.

I'm with you. If I can't eat it, I'm not bringing it. I will either buy a gluten-free alternative or make a gluten-free alternative. Don't like it? Don't eat it! It's probably not that different from yours anyway! :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748
    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.