Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wahoo! :) :) :)

Emme999

Recommended Posts

Emme999 Enthusiast
Emme999
Posted

Hey guess what?? There was a cancellation and now I get to have my endoscopy tomorrow morning rather than next Thursday! Wahoo!! Now I can get off gluten and be happy!!! Yay!!!

I just wanted to tell all of you this cool stuff :) I am so happy :D

I don't have to gluten binge anymore! I can start taking care of myself! Yay!!!

I love you guys!!!

- Michelle :wub:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Yay...good luck! :D. We love you, too :lol:;)

KaitiUSA Enthusiast
KaitiUSA
Posted

That's awesome!!! Good luck and keep us all posted. We all love ya 2 :D

flagbabyds Collaborator
flagbabyds
Posted

Good Luck! We love you muchly, and even if the test comes back negative, you know that you have to do gluten free anyway! :)

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Yipie! Good luck from me, too. We all love you! :lol:

Canadian Karen Community Regular
Canadian Karen
Posted

Me too! Good luck and let us know how it goes.......

Luv ya too! :D

Karen

Emme999 Enthusiast
Emme999
Posted
  • Author

Thank you all so much :)

Please send me healing/happy vibes around 8:45 a.m. mountain time ;) That's when I'll be having the procedure done and I will probably need them!

No wait! Don't send them too me until after about 9:30a.m. mountain time - we don't want to screw up the biopsy labs ;) Go ahead and send me nasty intestinal vibes earlier so that we can get a definitive diagnosis!

I talked to a gastroenterologist tonight and he said that (with my symptoms) he would be really surprised if my villi don't present celiac disease. I hope that he's right - just because I want this waiting game to end. That will absolutely suck if they tell me I don't have it after I am so sure that I do!

Those crazy villi. I wonder what's left of them..?

I will let you all know as soon as I find out!

You are wonderful, wonderful, wonderful people. I'm so glad I've had the chance to see that such fabulous people are out there :)

Wish me luck!

- Michelle :wub:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Okay! Right now it's...about 5 your time, so I'll make sure not to think anything until about 11:30 ET... LOL...no good intestinal vibes before, though.

Good luck! Just not intestinal yet :lol:

Emme999 Enthusiast
Emme999
Posted
  • Author

Hi guys,

I am home and it went really well. Thanks for any positive vibes you may have sent me.

It was completely painless and effortless and now it's over and I can go gluten-free! Yay!

Life is wonderful :)

Now I am going to go and pass out in my bed. I'm so so so sleepy! -_-

Thank you again for all of the sweet thoughts you wrote and sent me. I love you all very much :)

- Michelle :wub:

mommida Enthusiast
mommida
Posted

I'm glad to know everything went well. Welcome to the gluten free club.

Laura

celiac3270 Collaborator
celiac3270
Posted

Congratulations :D. Now add to your signature: gluten-free since May 11, 2005! ;)

Emme999 Enthusiast
Emme999
Posted
  • Author

Good idea! Thanks celiac3270 ;)

Guest nini
Guest nini
Posted

glad to hear it went well and you are home and resting. I hope you start feeling better very soon!

egardner Newbie
egardner
Posted

Hey guys- how do I make my signature? On my posts, ya know, where it says how long I've been gluten-free? Sorry-I'm a little computer retarded. Thx- EG

KaitiUSA Enthusiast
KaitiUSA
Posted

Go up to my controls and then hit edit signature and type what you want :D

Canadian Karen Community Regular
Canadian Karen
Posted

Michelle,

So glad you are home and it is over with and now you can start a whole new phase of your life!

Get some rest now!

Karen

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hi Michelle,

I'm glad it went so well, too :) . As soon as you get the results you have to tell us...

Emme999 Enthusiast
Emme999
Posted
  • Author

Hey I just found the outpatient papers that they sent home with my parents (nice that they told me about 'em, eh? <_< ) !

Findings:

- The examined esophagus was normal (yay!)

- The entire examined stomach was normal (yay!)

- Diffuse moderately erythematous and atrophic mucosa without active bleeding and with no stigmata of bleeding was found in the 2nd pare of the duodenum and in the 3rd part of the duodenum. Biopsies were taken with a cold forceps for histology.

Impression: Erythematous atrophic duodenopathy. Consistent with celiac sprue.

Recommendations: Await pathology results.

So, there we go - just waiting for the labs now.

- Michelle :wub:

celiac3270 Collaborator
celiac3270
Posted

Congratulations ;) sorta...I mean, while you'd be better off w/o celiac disease, at least this answers your questions :D

Emme999 Enthusiast
Emme999
Posted
  • Author

Thanks celiac3270 :)

Hey, I am having these really weird pains today. I feel like someone is pinching me *really hard* a little to the right of my belly button. Is this normal?

Am I gonna die??? :o

(If so, please sue the University of Utah hospital as fellow Celiac patients and use the money to get some research done)

(Then put lots of gluten-free flowers on my grave)

- Michelle :wub:

celiac3270 Collaborator
celiac3270
Posted

Waw, are you really scared? :( If so, contact a dr. You'll be fine and we're thinking of you ;)

plantime Contributor
plantime
Posted

Sorry, Michelle, I don't think you are going to die. I had the same kind of pains after my biopsy, I just figured it was because samples were "cut" out of my intestines. Try eating a soft, low-residue diet for a week. It helped me muchly to eat that way!

Emme999 Enthusiast
Emme999
Posted
  • Author

Nope I didn't die ;)

I think I must have some kind of special purpose in this life ... :wacko:

Thanks for caring ;)

- Michelle :wub:

Emme999 Enthusiast
Emme999
Posted
  • Author

Hey my doctor called me today to discuss the biopsy:

Him: "So, you were thinking that you had Celiac Sprue..?"

Me: Yes..

Him: "Well... You're right!"

Me: So how damaged are the villi?

Him: "They're flat."

So, anyway, he told me that his nurse will call me in the next couple of days to set up an appointment so that we can "talk about it for a long time" ;) Then he said, "But you probably already know a lot about it just from the internet, huh?"

I'm lucky I have such educated friends ;)

So - there we go. A definitive diagnosis. Not that I really questioned it, but now no one else can argue with me about it ;)

Thanks guys!!

- Michelle :wub:

ianm Apprentice
ianm
Posted

Now you can finally get on the road to good health.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.