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Accelerating Accidental Glutening

Mom of a Celiac toddler

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Mom of a Celiac toddler Apprentice
Mom of a Celiac toddler
Posted

I was in Fred Meyer the other day looking for some probiotics, when I came across a product that said it helps aid the digestion of gluten. The main ingredient was glutanese powder. We are very diligent about our two year old not getting gluten, but he does go to daycare three days a week and accidents happen! My doctor just has so little experience with Celiac's that I have to go to a specialist far away...sometimes I think this website is a faster better source for me! I am just wondering if it could really help, and if anyone has any experience with it?

Thanks!!

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lillysmama08 Newbie
lillysmama08
Posted

I was in Fred Meyer the other day looking for some probiotics, when I came across a product that said it helps aid the digestion of gluten. The main ingredient was glutanese powder. We are very diligent about our two year old not getting gluten, but he does go to daycare three days a week and accidents happen! My doctor just has so little experience with Celiac's that I have to go to a specialist far away...sometimes I think this website is a faster better source for me! I am just wondering if it could really help, and if anyone has any experience with it?

Thanks!!

i would call your specialist first but it doesnt sound good to me. My daughter is also two and when she gets sick its only brief so I would just deal with it i guess. I know it sucks but i dont think anything is really proven yet so I would just say ask your specialist. Thats just my opinion. lol Hope it was a little helpful:)

GFinDC Veteran
GFinDC
Posted

I take DPP-IV (DPP-4) enzyme sometimes. It is supposed to help digest gluten. There are some people who don't think it helps though. Glutenease contains DPP-4. You can get DPP-IV from other sources though, and usually less expensive. My experience is it reduces the length of time my symptoms last, but it does not totally eliminate them. Like I said, you hear varying opinions about DPP-IV here. Personally, i think it would be worth trying for cc issues. It won't allow a person to eat large amounts of gluten without problems. I figure a little help is better than no help though.

ciavyn Contributor
ciavyn
Posted

I don't have a personal experience with this product. However, while I was away at school, the woman next to me at lunch ended up having celiac's disease too. However, she was eating items I suspected had gluten, so I steered away. She takes "country life gluten-zyme" and says it prevents any CC issues, and allows her to eat small amounts of gluten. I'm NOT attempting the gluten, but anything that might help prevent cc issues that you can't control is interesting to me. Again, NO PERSONAL EXPERIENCE here. Just a suggestion, because that is tough when they are so little and in an environment that is very hard to regulate.

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      Help

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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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      By Silk tha Shocker · Posted

      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
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      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
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      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
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