Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To It All


emc2623

Recommended Posts

emc2623 Newbie

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hello, and welcome to the board.

I believe when they do the dairy testing, they only check for casein intolerance (could be wrong? :o ). Anyways, if you have any intestinal damage (the non-specific "spots") you will most likely have destroyed/damaged the ability to digest lactose which is the milk sugar in dairy (the casein being the protein). Give it a try, by cutting out dairy and then eating some hard cheese (contains very little lactose--mostly fat) and see if that is tolerated. If it is just a lactose intolerance you should be able to tolerate yogurt, cheese, sour cream, things that have been cultured, but not milk, ice cream, cream, frozen yogurt (not really yogurt). A quick test for lactose intolerance would be to drink a glass of milk. Most of us have this lactose intolerance at first and then as we heal we can tolerate it again. Before I healed lactose would have me on the loo in 30 minutes. Anyway, it's worth a try.

Unfortunately, sometimes other food problems show up after we have gone gluten free which have been masked by the overwhelming response to the gluten. If eliminating lactose doesn't work for you then I would suggest going back to the basics of meat, fish, fruits, vegetables, rice, nuts and seeds, no processed food at all. Stabilise yourself on that and then you can add in another food every 3-4 days and see how you react to it. Keep a food and symptom diary so you can spot the culprits because sometimes the reactions can be delayed.

Also, be sure you have totally eliminated gluten, from not just your pantry but also from medications, supplements, personal care items, especially toothpaste, lip gloss, chapstick. Also get rid of any cooking utensils harboring gluten, like wooden spoons, cutting boards, scratched nonstick pans, colanders, etc. Get a new toaster. Wash your hands always before handling food and after handling pet food; or after dog slobber and such; don't kiss anyone who has just drunk beer or not brushed their teeth :blink: You probably know all this, but reinforcement doesn't hurt. :)

luvthelake21 Rookie

Just wanted to say hello and welcome :)

bluebonnet Explorer

welcome! the gi symptoms will get better. just be diligent about gluten patrol. (check your hand lotions too!) it just takes time but hopefully you will see improvements with each week passing. today is exactly 3 weeks for me and while i'm still struggling with acid reflux and a couple of other gi issues here and there, i definitely see significant improvement! but just getting started it will be quite a while before things completely heal. just stick with it and they will heal! good luck! :)

tmbarke Apprentice

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.

Welcome!

I know it all gets overwhelming, and we've all gone thru the learning stages with trials and errors too.

My first 3 weeks were a 'detox' of gluten and that was tough. I was going to the bathroom 3-4-5-6 times a day...felt drained and dilerious from the withdrawls and then I got reglutened and felt like I had a flu. (it was ham)

I just recently tried something suggested by a homeopathic physician when it comes to testing for food allergies and I'd like to share that with you and everyone else cuz I tried it and it was an almost immediate answer for me.

Take your pulse before you eat.....I time it for 15 seconds and then multiply it by 4.......from the neck or the vein under the thumb....make sure you know where it is when testing.

Eat or consume dairy........after 15 min, take the pulse again........then at 30 min do it again.......even 45 and then 60.

If the pulse goes up .... then the heart is working harder to get it out of the stomach and thru the system, and could be the sign of the allergy or intolreance.

I tried it the first time with a flavored tea..peach/apricot......I took about 4 sips then took my pulse...72...then in 15 min felt strange......so I took my pulse and it was at 112! It went back down to 82 after 30 min but that was a gluten reaction for me....telling me there was in fact gluten in the tea.

I tried it again with cheese. Pulse was 88 before......120 after 30 min and went back to 88 after an hour.

It may be worth a try with many foods to test for an allergy.....it's especially effective with children and their allergies...it's a great way to get a handle on what makes your heartrate spike.

Give it a try and if you have a concern, share that fact with your doctor too and you'll also know what to start avoiding.

Stay with us and stay strong!

  • 2 weeks later...
emc2623 Newbie
wub.gif Than you to all of you for the advice and welcoming! Sorry it took so long to reply I just dont check everyday and am new to the whole forum thing! But please know that i appreciate all of you who took the time to reply to my post!! Happy Valentine's Day <3

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      14

      Related issues

    2. - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      2

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

    3. - Theresa2407 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    4. - Known1 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    5. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,471
    • Most Online (within 30 mins)
      7,748

    Rita Erickson
    Newest Member
    Rita Erickson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine  and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value.   Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus?  Atopic Dermatitis and dermatitis herpetiformis share symtoms and atopic dermatitis patients have higher risk of dermatitis herpetiformis.  dermatitis herpetiformis is a symptom of Celiac diagnosis. When I had the carotid artery stent, the hospital put down "wheat allergy" for the food service.  I guess allergy puts the fear of god in them more than the misunderstood Celiac Disease.  Whatever keeps me alive in this world.   
    • Theresa2407
      You are correct.  Same place.  I have used their site for so long and have it bookmarked.  Still living in past.  Our support group was affiliated with them.
    • Known1
      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
    • knitty kitty
      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.