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emc2623

By emc2623
in Coping with Celiac Disease

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emc2623 Newbie
emc2623
Posted

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.

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mushroom Proficient
mushroom
Posted

Hello, and welcome to the board.

I believe when they do the dairy testing, they only check for casein intolerance (could be wrong? :o ). Anyways, if you have any intestinal damage (the non-specific "spots") you will most likely have destroyed/damaged the ability to digest lactose which is the milk sugar in dairy (the casein being the protein). Give it a try, by cutting out dairy and then eating some hard cheese (contains very little lactose--mostly fat) and see if that is tolerated. If it is just a lactose intolerance you should be able to tolerate yogurt, cheese, sour cream, things that have been cultured, but not milk, ice cream, cream, frozen yogurt (not really yogurt). A quick test for lactose intolerance would be to drink a glass of milk. Most of us have this lactose intolerance at first and then as we heal we can tolerate it again. Before I healed lactose would have me on the loo in 30 minutes. Anyway, it's worth a try.

Unfortunately, sometimes other food problems show up after we have gone gluten free which have been masked by the overwhelming response to the gluten. If eliminating lactose doesn't work for you then I would suggest going back to the basics of meat, fish, fruits, vegetables, rice, nuts and seeds, no processed food at all. Stabilise yourself on that and then you can add in another food every 3-4 days and see how you react to it. Keep a food and symptom diary so you can spot the culprits because sometimes the reactions can be delayed.

Also, be sure you have totally eliminated gluten, from not just your pantry but also from medications, supplements, personal care items, especially toothpaste, lip gloss, chapstick. Also get rid of any cooking utensils harboring gluten, like wooden spoons, cutting boards, scratched nonstick pans, colanders, etc. Get a new toaster. Wash your hands always before handling food and after handling pet food; or after dog slobber and such; don't kiss anyone who has just drunk beer or not brushed their teeth :blink: You probably know all this, but reinforcement doesn't hurt. :)

luvthelake21 Rookie
luvthelake21
Posted

Just wanted to say hello and welcome :)

bluebonnet Explorer
bluebonnet
Posted

welcome! the gi symptoms will get better. just be diligent about gluten patrol. (check your hand lotions too!) it just takes time but hopefully you will see improvements with each week passing. today is exactly 3 weeks for me and while i'm still struggling with acid reflux and a couple of other gi issues here and there, i definitely see significant improvement! but just getting started it will be quite a while before things completely heal. just stick with it and they will heal! good luck! :)

tmbarke Apprentice
tmbarke
Posted

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.

Welcome!

I know it all gets overwhelming, and we've all gone thru the learning stages with trials and errors too.

My first 3 weeks were a 'detox' of gluten and that was tough. I was going to the bathroom 3-4-5-6 times a day...felt drained and dilerious from the withdrawls and then I got reglutened and felt like I had a flu. (it was ham)

I just recently tried something suggested by a homeopathic physician when it comes to testing for food allergies and I'd like to share that with you and everyone else cuz I tried it and it was an almost immediate answer for me.

Take your pulse before you eat.....I time it for 15 seconds and then multiply it by 4.......from the neck or the vein under the thumb....make sure you know where it is when testing.

Eat or consume dairy........after 15 min, take the pulse again........then at 30 min do it again.......even 45 and then 60.

If the pulse goes up .... then the heart is working harder to get it out of the stomach and thru the system, and could be the sign of the allergy or intolreance.

I tried it the first time with a flavored tea..peach/apricot......I took about 4 sips then took my pulse...72...then in 15 min felt strange......so I took my pulse and it was at 112! It went back down to 82 after 30 min but that was a gluten reaction for me....telling me there was in fact gluten in the tea.

I tried it again with cheese. Pulse was 88 before......120 after 30 min and went back to 88 after an hour.

It may be worth a try with many foods to test for an allergy.....it's especially effective with children and their allergies...it's a great way to get a handle on what makes your heartrate spike.

Give it a try and if you have a concern, share that fact with your doctor too and you'll also know what to start avoiding.

Stay with us and stay strong!

  • 2 weeks later...
emc2623 Newbie
emc2623
Posted
  • Author
wub.gif Than you to all of you for the advice and welcoming! Sorry it took so long to reply I just dont check everyday and am new to the whole forum thing! But please know that i appreciate all of you who took the time to reply to my post!! Happy Valentine's Day <3

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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