Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To It All

emc2623

By emc2623
in Coping with Celiac Disease

Recommended Posts

emc2623 Newbie
emc2623
Posted

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Hello, and welcome to the board.

I believe when they do the dairy testing, they only check for casein intolerance (could be wrong? :o ). Anyways, if you have any intestinal damage (the non-specific "spots") you will most likely have destroyed/damaged the ability to digest lactose which is the milk sugar in dairy (the casein being the protein). Give it a try, by cutting out dairy and then eating some hard cheese (contains very little lactose--mostly fat) and see if that is tolerated. If it is just a lactose intolerance you should be able to tolerate yogurt, cheese, sour cream, things that have been cultured, but not milk, ice cream, cream, frozen yogurt (not really yogurt). A quick test for lactose intolerance would be to drink a glass of milk. Most of us have this lactose intolerance at first and then as we heal we can tolerate it again. Before I healed lactose would have me on the loo in 30 minutes. Anyway, it's worth a try.

Unfortunately, sometimes other food problems show up after we have gone gluten free which have been masked by the overwhelming response to the gluten. If eliminating lactose doesn't work for you then I would suggest going back to the basics of meat, fish, fruits, vegetables, rice, nuts and seeds, no processed food at all. Stabilise yourself on that and then you can add in another food every 3-4 days and see how you react to it. Keep a food and symptom diary so you can spot the culprits because sometimes the reactions can be delayed.

Also, be sure you have totally eliminated gluten, from not just your pantry but also from medications, supplements, personal care items, especially toothpaste, lip gloss, chapstick. Also get rid of any cooking utensils harboring gluten, like wooden spoons, cutting boards, scratched nonstick pans, colanders, etc. Get a new toaster. Wash your hands always before handling food and after handling pet food; or after dog slobber and such; don't kiss anyone who has just drunk beer or not brushed their teeth :blink: You probably know all this, but reinforcement doesn't hurt. :)

luvthelake21 Rookie
luvthelake21
Posted

Just wanted to say hello and welcome :)

bluebonnet Explorer
bluebonnet
Posted

welcome! the gi symptoms will get better. just be diligent about gluten patrol. (check your hand lotions too!) it just takes time but hopefully you will see improvements with each week passing. today is exactly 3 weeks for me and while i'm still struggling with acid reflux and a couple of other gi issues here and there, i definitely see significant improvement! but just getting started it will be quite a while before things completely heal. just stick with it and they will heal! good luck! :)

tmbarke Apprentice
tmbarke
Posted

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.

Welcome!

I know it all gets overwhelming, and we've all gone thru the learning stages with trials and errors too.

My first 3 weeks were a 'detox' of gluten and that was tough. I was going to the bathroom 3-4-5-6 times a day...felt drained and dilerious from the withdrawls and then I got reglutened and felt like I had a flu. (it was ham)

I just recently tried something suggested by a homeopathic physician when it comes to testing for food allergies and I'd like to share that with you and everyone else cuz I tried it and it was an almost immediate answer for me.

Take your pulse before you eat.....I time it for 15 seconds and then multiply it by 4.......from the neck or the vein under the thumb....make sure you know where it is when testing.

Eat or consume dairy........after 15 min, take the pulse again........then at 30 min do it again.......even 45 and then 60.

If the pulse goes up .... then the heart is working harder to get it out of the stomach and thru the system, and could be the sign of the allergy or intolreance.

I tried it the first time with a flavored tea..peach/apricot......I took about 4 sips then took my pulse...72...then in 15 min felt strange......so I took my pulse and it was at 112! It went back down to 82 after 30 min but that was a gluten reaction for me....telling me there was in fact gluten in the tea.

I tried it again with cheese. Pulse was 88 before......120 after 30 min and went back to 88 after an hour.

It may be worth a try with many foods to test for an allergy.....it's especially effective with children and their allergies...it's a great way to get a handle on what makes your heartrate spike.

Give it a try and if you have a concern, share that fact with your doctor too and you'll also know what to start avoiding.

Stay with us and stay strong!

  • 2 weeks later...
emc2623 Newbie
emc2623
Posted
  • Author
wub.gif Than you to all of you for the advice and welcoming! Sorry it took so long to reply I just dont check everyday and am new to the whole forum thing! But please know that i appreciate all of you who took the time to reply to my post!! Happy Valentine's Day <3

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      2

      Mallorca Guide

      Forgot to add... Quite a lot of 'tapas' are gluten free. Ones to look for: Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish. Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which...
    2. hjayne19
      - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

      Hi @cristiana Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to ...
    3. cristiana
      - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      2

      Mallorca Guide

      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems...
    4. trents
      - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess.
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety. I had awful anxiety at diagnosis, and that feeling of doom that you describe. My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me. I then got a phobia...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,939
    • Most Online (within 30 mins)
      7,748
    TracyJS
    Newest Member
    TracyJS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • cristiana
      Mallorca Guide

      By cristiana · Posted

      Forgot to add...  Quite a lot of 'tapas' are gluten free. Ones to look for:  Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish.  Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which you should be able to buy for supermarkets.  Until very recently we could not buy it here in the UK but we've managed to find a local source, and Lidl have started to sell it in tubs, too. Here's more info on it: Sobrasada is a soft, spreadable, cured pork sausage from Spain's Balearic Islands (like Mallorca), distinguished by its reddish color from paprika, sweet-spicy flavor, and pâté-like texture, perfect for spreading on toast, cooking into dishes like eggs or pasta, or drizzling with honey. Its unique texture comes from the island's humid climate preventing full drying, resulting in a semi-soft sausage that's gently aged, unlike drier mainland chorizo.
    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Mallorca Guide

      By cristiana · Posted

      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      Insomnia help

      By trents · Posted

      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
    • cristiana
      Insomnia help

      By cristiana · Posted

      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety.  I had awful anxiety at diagnosis, and that feeling of doom that you describe.   My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me.  I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking).  That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines.   In fact I felt so unwell that I didn't even recognise it as 'anxiety'.  I remember googling my various symptoms and it was only that that  made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech.  This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less.  It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you.   And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can.   There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example,  a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan.  When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'.    I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse.  I remember reading on this forum one should take magnesium tablets, and it did really help.  As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin.  But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety,  I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful.  The Depression Cure: The Six Step Programme to Beat Depression Without Drugs.    Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life:  physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness, and meaningful, engaging activity.    The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer.  I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul.  I am so grateful that these books crossed my path.   Anyway, sorry for the length of this post.  I hope something might be of help. Cristiana  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.