Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To It All


emc2623

Recommended Posts

emc2623 Newbie

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hello, and welcome to the board.

I believe when they do the dairy testing, they only check for casein intolerance (could be wrong? :o ). Anyways, if you have any intestinal damage (the non-specific "spots") you will most likely have destroyed/damaged the ability to digest lactose which is the milk sugar in dairy (the casein being the protein). Give it a try, by cutting out dairy and then eating some hard cheese (contains very little lactose--mostly fat) and see if that is tolerated. If it is just a lactose intolerance you should be able to tolerate yogurt, cheese, sour cream, things that have been cultured, but not milk, ice cream, cream, frozen yogurt (not really yogurt). A quick test for lactose intolerance would be to drink a glass of milk. Most of us have this lactose intolerance at first and then as we heal we can tolerate it again. Before I healed lactose would have me on the loo in 30 minutes. Anyway, it's worth a try.

Unfortunately, sometimes other food problems show up after we have gone gluten free which have been masked by the overwhelming response to the gluten. If eliminating lactose doesn't work for you then I would suggest going back to the basics of meat, fish, fruits, vegetables, rice, nuts and seeds, no processed food at all. Stabilise yourself on that and then you can add in another food every 3-4 days and see how you react to it. Keep a food and symptom diary so you can spot the culprits because sometimes the reactions can be delayed.

Also, be sure you have totally eliminated gluten, from not just your pantry but also from medications, supplements, personal care items, especially toothpaste, lip gloss, chapstick. Also get rid of any cooking utensils harboring gluten, like wooden spoons, cutting boards, scratched nonstick pans, colanders, etc. Get a new toaster. Wash your hands always before handling food and after handling pet food; or after dog slobber and such; don't kiss anyone who has just drunk beer or not brushed their teeth :blink: You probably know all this, but reinforcement doesn't hurt. :)

luvthelake21 Rookie

Just wanted to say hello and welcome :)

bluebonnet Explorer

welcome! the gi symptoms will get better. just be diligent about gluten patrol. (check your hand lotions too!) it just takes time but hopefully you will see improvements with each week passing. today is exactly 3 weeks for me and while i'm still struggling with acid reflux and a couple of other gi issues here and there, i definitely see significant improvement! but just getting started it will be quite a while before things completely heal. just stick with it and they will heal! good luck! :)

tmbarke Apprentice

:unsure: I just found this board from a web address that i got from the nutrionist I went to see after my GI doctor had me go for a blood test, which was positive. I have not had a scope done because about a month prior they had done one for other symptoms i was having. I dont believe they checkd for anything related to Celiac.

I was diag. on Jan 8 have been doing the diet since then. I am having other issues that i never had before. Which seems similar to another poster here.

Iam having etreme bowel issues ( Iknow Gross) which before I hardly ever went.

I was told that if I had no dairy problems/soy i shouldnt have to worry about that. So i havent been . I feel as though i am being diligent with the diet but the bowel issues are scaring me!!

Just wandering if you all had any ideas.

Gallbladder removed in 6/20/09

symptoms that brought me to the GI: bloating,chest pain,burning in the chest and stomach

endosco. done found hiatel hernia and some non specific "Spots" and also GERD.

PHEW!!!!!!

diag. w/celiac disease on 1/08/10 blood test positive.

Welcome!

I know it all gets overwhelming, and we've all gone thru the learning stages with trials and errors too.

My first 3 weeks were a 'detox' of gluten and that was tough. I was going to the bathroom 3-4-5-6 times a day...felt drained and dilerious from the withdrawls and then I got reglutened and felt like I had a flu. (it was ham)

I just recently tried something suggested by a homeopathic physician when it comes to testing for food allergies and I'd like to share that with you and everyone else cuz I tried it and it was an almost immediate answer for me.

Take your pulse before you eat.....I time it for 15 seconds and then multiply it by 4.......from the neck or the vein under the thumb....make sure you know where it is when testing.

Eat or consume dairy........after 15 min, take the pulse again........then at 30 min do it again.......even 45 and then 60.

If the pulse goes up .... then the heart is working harder to get it out of the stomach and thru the system, and could be the sign of the allergy or intolreance.

I tried it the first time with a flavored tea..peach/apricot......I took about 4 sips then took my pulse...72...then in 15 min felt strange......so I took my pulse and it was at 112! It went back down to 82 after 30 min but that was a gluten reaction for me....telling me there was in fact gluten in the tea.

I tried it again with cheese. Pulse was 88 before......120 after 30 min and went back to 88 after an hour.

It may be worth a try with many foods to test for an allergy.....it's especially effective with children and their allergies...it's a great way to get a handle on what makes your heartrate spike.

Give it a try and if you have a concern, share that fact with your doctor too and you'll also know what to start avoiding.

Stay with us and stay strong!

  • 2 weeks later...
emc2623 Newbie
wub.gif Than you to all of you for the advice and welcoming! Sorry it took so long to reply I just dont check everyday and am new to the whole forum thing! But please know that i appreciate all of you who took the time to reply to my post!! Happy Valentine's Day <3

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.