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Anyone In Florida?


simplyconfused

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simplyconfused Newbie

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

  • 2 weeks later...

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K.Darling Rookie

hi, i live in florida and im 20 and very confused as well? have you been diagnosed?

twe0708 Community Regular

I live in Tampa and was diagnosed about 6 months ago.

laurelfla Enthusiast

I was in Florida but have moved. There is a great support group in Orlando! Look them up and try to go to a meeting, if you can. :)

  • 1 month later...
taylor- Rookie

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

  • 1 month later...
RideAllWays Enthusiast

Sarasota has an amazing gluten free bakery!

GF Traveling Dude Newbie

I'm moving to Florida in a couple years; seeking friends in the meantime. I'm 30 and travel there often.


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  • 5 months later...
glutenfreemamax2 Enthusiast

HI! I"m 28 in the Daytona Beach area. Have a 3 year old, and a 5 year old. Waiting on test results to come back next week. Have been gluten-free for 2 weeks now. Was also on Dr. Phil in Sept, and if it wasn't for all his show has done for me, I would have NEVER known!

I can't find any support groups in the area and thinking about starting one.

  • 2 months later...
jparsick84 Rookie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

cO-ol Explorer

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

I'm from the Tampa Bay area too! Still live here as well. :)

  • 1 month later...
laurelfla Enthusiast

jparsick84, you don't have to be that paranoid in my opinion -- of course, we all have differing levels of sensitivity and you will hear of people that do not worry about such things and people that would never dream of kissing someone who had had a beer. I make my husband rinse his mouth out after beer, and brush his teeth after eating gluten. I haven't ever gotten sick from kissing him. :)

  • 4 weeks later...
scuzy Rookie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

I can vouch for the kissing thing, IT SUCKS!!!!!!!!!!!!, I guess everyone is different though, but one night I kissed a guy after he had eaten pizza a few hours earlier and I still got glutened... I read in a book somewhere that if you are dating a not gluten free person make sure they brush there teeth before you ever kiss them to avoid the horrible consequences.

  • 1 month later...
NolesChick Newbie

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

  • 3 weeks later...
taylor- Rookie

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

Hey Christy! I live in Tallahassee too! Welcome :)

  • 8 months later...
lsteward68 Newbie

Hi, My name is Laura I live in Cocoa Fl. My Son who is 14 almost died of type 1 Diabetes, I went to the library to get info on Diabetes and a cook book, in the same area I found a book for ADHD & Autism cookbook going gluten free and casein free which my second son is very hyper with low concentration? So I picked up that book too, to my realization all the symtoms that were described in the book was what I myself was feeling... So being un-employed with no insurance I went on an internet scout of my own and found some very interesting and scary facts about type 1 Diabetes and Celiac Disease. After a day of information overload, I went to my cabinet and filled three boxes full of food and frozen foods that I imediately gave away went to the store to see what I and my family can eat. I bought bread flour and all the other things that I could imediately eat and fix for dinner. From that day on which has been two weeks now, I can get out of bed without feeling bad and I have eaten food that does not make my stomach hurt, and I do remember things now. Not sure if I am Coeliac or not but the whole Me is much better. I told my ex to take my oldest son to the Dr. to get the test ( he has insurance for him ) hopefully he will, have not heard or not. Thanks for the vent session. If there is anyone out there with input or more info that will help feel free to let me know...

Mike Menkes Newbie

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

I have lived in Florida off and on since 1970. I have found gluten-free foods to be more accessible than ever.

Mike Menkes Newbie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

IrishHeart Veteran

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

Just so you know, you are replying to a post that is old---(Dec. 2010) and the person may not see your reply.

  • 2 weeks later...
TravelnVal Newbie

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

IrishHeart Veteran

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

MarilynR mentioned it to me. PM her! :)

kareng Grand Master

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

Looks like several forum members will be there:

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
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    • Samanthaeileen1
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