Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Get 9Yr Scoped When Blood Work Was Fine?


missmommy

Recommended Posts

missmommy Contributor

hello all.

my 9yr daughter got her blood tested and the dr said it came back fine. but my son just got diagnosed with celiac through a biopsy. his blood work also came back fine, so fine that the dr was shocked to see anything in his biopsy.

so my question is, should i ask to get my daughter scoped as well? she has been having stomach issues on and off for months. and she has been complaining of little sores on her gums. they hurt but they are gone within a few days. i am a celiac and i have gotten sores like that sometimes after getting glutened.

my daughter used to have all kinds of problems when she was a baby through toddler hood. im starting to wonder if it was all symptoms. she would get hives all the time, we could never figure out why. she was pretty small. and i was always taking her to the dr for diarrhea. they told me sometimes little kids will have chronic diarrhea for years then out grow it. which she did. she also started getting taller and caught up to girls her age.

i didnt get diagnosed till 3 years ago. so im not sure if she could have had symptoms for a few years. then none at all for so long. i dont want to request a scope if its unneeded. so, im stumped :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

This is always one of the hardest questions on this board.

You don't want your child going through undue stress. Are the risks going to out weigh the benefit?

What things can this test rule out or diagnose?

This test can look for Celiac damage, malformations, H. Ployri, parasites, Eosinophils, Barrett's esophagus, and I'm sure many other things that I am not remembering or wasn't a lead suspect in my daughter's case. It can also give you a baseline of what extent of damage has been caused from Celiac (if your daughter does have it as you suspect).

My daughter has Celiac and Eosinophilic Esophagitis.

The test can tell you what you are dealing with. Have a medical diagnoses for school co-operation. When we have to deal with our children as teen agers it is extra proof for them to stay strict on the diet and not cheat because of peer pressure.

Risks

Picking up a bug at the hospital.

Anesthia.

Having an infection or damage from the biopsy.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    Bea71
    Newest Member
    Bea71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.