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Dealing With Rude Family Members


ReneeBTX

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minniejack Contributor

I just saw my old post and comments. It's kind of funny in the past two weeks--this is August now--six months after my sister telling my DD that she didn't have problems--my dear sister has called me 2x. the first to tell me about the gluten free bisquick at Kroger and that they had King Arthur gluten free flour, too. And 2 days ago, to tell me that Sam's club has this gluten free chip called Rissotto that was good.

What's gotten into her? :P


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ravenwoodglass Mentor

I just saw my old post and comments. It's kind of funny in the past two weeks--this is August now--six months after my sister telling my DD that she didn't have problems--my dear sister has called me 2x. the first to tell me about the gluten free bisquick at Kroger and that they had King Arthur gluten free flour, too. And 2 days ago, to tell me that Sam's club has this gluten free chip called Rissotto that was good.

What's gotten into her? :P

Maybe some learning and compassion? Whatever it was it was good. Glad she is coming around. :)

  • 1 month later...
glutenfreemamax2 Enthusiast

I just wanted to chime in here. I've just been diagnosed, and I'm going to have the lab work done in 10 minutes. Testing my 3 year old also due to symptoms.

I went to my inlaws last weekend. They told me it was all in my head. The told me that I "Over medicate" my son. He has asthma, and reflux. I had given him a breathing treatment sice he was up ALL night, and his belly hurts (as he tells me every day) But they think that he's doing it for attention. When my kids say they are full, they still make them clean their plates.

Ok, getting to P.O. ed about it. I totally understand!

eKatherine Apprentice

But they think that he's doing it for attention.

There is a significant part of the population that thinks that celiac/gluten intolerance do not exist, and we're only doing it to make us feel "special". Therefore they feel morally obligated to trick us into eating stuff we falsely (so they think) claim we cannot, to prove we are wrong.

This is why I don't feel safe eating in restaurants. Any one worker in even the most enlightened restaurant could still sabotage you. Asking questions in a place where the management feels this way could make the experience much worse.

Even my sister the anesthesiologist thinks it's all in my head.

Emilushka Contributor

Even my sister the anesthesiologist thinks it's all in my head.

No disrespect meant to your sister, but the Celiac research and medical knowledge is new stuff. I'd bet money she has no idea what she's talking about when it comes to GI stuff and any recent developments, so in terms of Celiac Disease knowledge, she's no better than a dude walking down the street. Docs don't keep up with areas of medicine that aren't their specialty and it's hard to get farther from anesthesiology than poop and guts.

glutenfreemamax2 Enthusiast

My husband even thinks that my 3 year old's never sleeping is "habbit". He insists on sleeping in my bed. He plays with my hair ALL night. Yes it gets old. But when I lay with him at night, no matter what bed he is in(he can start in his bed, but he never lasts) he always tells me his belly hurts. He points to his belly and his throat. Once or twice, ok. EVERY SINGE NIGHT....there is something going on. I don't think it's for attention. My motherly instinct tells me that there is something else going on. That's why we had the blood work done this morning for him AND me. I have been gluten free for 1 week, and I can't tell you how much better I feel. My husband sees a difference in me. We agreed that if the baby's (yes, he's 3, but he's my baby), the WHOLE house is going gluten free, not just me. My 5 year old, who shows NO symptoms, said this morning at the lab "Mommy! I ate your gluten free cereal this morning. It was soo yummy! Can I eat gluten free too?" It was so cute. I wish my inlaws could have heard that.

My MIL has chrons. She said she has functioned with a hemoglobin under 7. She said that the symptoms are all in your head, and you can make yourself sick or not. I disagree. Yes, it could be in my head. The first week i thought that. I glutened myself, and was sick for days. I am a firm believer that its not in my head!

I took cows milk otu of my 3 year old's diet, and he seems to be getting better with this never ending cold. Ihave not needed the nebulizer.

Ok, sorry to be long winded. I am finally talking to people who understand, and it feels GREAT!

  • 1 month later...
RESO Apprentice

My cousin just glutened me 3 days ago to prove that my doctor was wrong. I don't know how I'll trust her again- never, ever with food- but even generally. My lower half is broken out in dh now and I wish I could "share" it with her!

The rest of my family and in-laws have been very good about it, though.

Go over to her place, lie on her couch, and tell her you're going to roll around on it in your undies so she'll get your rash, then do it(of course we all know it isn't contagious, but she probably doesn't lol)


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  • 1 month later...
Brookesmom Newbie

If your relatives admit that you have celiac. They have to consider that they may also have it. If you're wrong then they are safe and can keep eating junk.

yes, yes, yes! They feel threatened. Their problem, not yours... :)

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    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
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      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
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      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
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      The substance you're likely thinking of is "mannitol," which is a sugar alcohol, and it is indeed used as a sweetener in some "sugar-free" products. However, for an MRI, the drink is almost certainly "Mannite," which is a brand name for a laxative preparation used to cleanse the bowel before the scan. Its primary purpose is not to sweeten but to create a clear image by distending the bowel and stimulating a bowel movement. While the names sound similar, the function and formulation are very different from a small-quantity sweetener. That said, your concern is valid and should be addressed with your healthcare team. The most important step you can take is to call the MRI department or your referring doctor directly. Explain your specific reaction to sweeteners in detail—mentioning the throat and ear sensations is crucial as it could indicate a more significant sensitivity. They can confirm the exact drink they use, check its full ingredient list for you, and determine if an alternative prep is available or if pre-medication is recommended to ensure your safety and comfort during the procedure.
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