Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Atkins And Celiac Disease


Reba32

Recommended Posts

Reba32 Rookie

Let me preface this by saying I have had gastric symptoms pretty much my entire life. I'm 42 years old. Pain, gas, constipation, nausea etc etc and so on. I'd been diagnosed with "migraine stomach", IBS, allergies, and the ubiquitous "well, we have no idea what's wrong with you. Eat more fibre" :blink:

Around 1998 I started losing A LOT of weight. I went from a size 12 (Canada) to size 2 in about a year. We couldn't figure out what it was, I'd eat, and still kept losing weight. A few years later, I started gaining weight, and gaining and gaining and gaining. Then I moved from Canada to the US after getting married, and had about 2 years without health insurance, or money for doctors. Was literally going crazy from crazy symptoms. And continued to gain weight, despite starving myself on low fat, low calorie, high carb diet plans.

when I finally got a job and some health insurance, during a routine anual physical, they drew blood and found that my thyroid levels were out of whack. (the PA then told me I had hypo thyroid, it was actually hyper thyroid, Grave's disease). I was put on antithyroid meds and yes, I gained some more weight. A LOT more weight! 20 pounds in one month! GAH! And it kept going up and up and up, no matter what I did. Plus, the constipation, gas, pain etc kept getting worse. "well, sounds like IBS, eat more fibre" :blink:

Finally one day when my fairly new jeans that had been loose 2 months prior, were about to snap me in half and they actually had bruised my thigh! I had had enough. I looked up Atkins. I had tried pretty much everything else, short of calling Jenny, so what the heck right?

I read and read and read all I could about Atkins, joined the online community to learn some more, and then got started the week before Thanksgiving 2008. And by Thanksgiving I felt soooooooooooo much better, it was amazing! And why was that you may ask? Because for the first phases of Atkins you don't eat any grains!.

There was a woman on the forums who said she had Celiac Disease, and she described what it was and then I did some more reading and went "hmmmmmm". Then there was a whole bunch more people turning up saying they'd just been diagnosed, or they've had Celiac for years, and Atkins is the best, and easiest diet they've followed!

Now to placate my husband, whose life "had become hell" because I wouldn't eat bread any more, after nearly a year of being gluten free, at the end of October last year, I started a gluten challenge, so I could get the definitive diagnosis. I KNEW I had Celiac, but he wouldn't believe me unless a doctor told him so. SO, I tortured myself for 8 weeks just to shut him up. Didn't work, despite my positive diagnosis, he still bugs me :P

But there ya go. Not only can you lose weight on Atkins, and keep it off, but you can diagnose lifelong diseases finally too!

Anyone else a low-carber or Atkineer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

I've been following the South beach diet. The first two weeks I lost 13 lbs. I didn't eat any grains either. I was already diagnosed for almost a year before starting it, just wanted to loose some of the extra pounds. I have had some issues come up recently so I have not suck to the plan. I attribute my (eventual) diagnosis to my youngest son. He had so many food issues when he was a baby. He reacted to rice and oatmeal cereal and a bunch of other foods through my breast milk. I eliminated dairy, oats, rice, and tree nuts out of my diet. I ate lots of meats, fruits and veggies. I was not gluten free, but probably gluten light.About 4 months after I started adding things back in my diet is when I started with all of the symptoms that started me going to the doctor. I was eventually diagnosed 2 1/2 years after that. Of course I figured the connetion after the fact. I'm glad you figured it out. It is such a relief to know what is wrong after so long.

  • 2 weeks later...
Reba32 Rookie

Atkins has a new book out this week called "The New Atkins for a New You". It's an easy read, and has lots of info on the science of how the plan works.

Even if you don't have to lose weight, following an Atkins whole foods plan just for general good health, and it can even help with a gluten free diet, because it is naturally gluten free until you get to the last rung of on-going weight loss. Then you just don't introduce the gluten grains. I'm too carb sensitive I've learned, so I may never re-introduce rice and corn (just the smell of corn these days makes me ill anyway!), but honestly, I don't miss them at all anyhow!

ksymonds84 Enthusiast

I remember in my 30's I did low carb and swore it cured my IBS :D Actually, my G.I. Dr. Lewey told me that he can't prove it but suspects that being on a strict low carb diet then returning to a regular diet can trigger celiac genes to turn on. Just a theory of his.

Reba32 Rookie

Well, I'm quite positive I've had Celiac/been gluten intolerant pretty much my entire life, and was always just misdiagnosed up until I figured it out myself.

I had done elimination diets several times trying to figure out what was wrong, since I was probably 4 years old, but never gave up wheat, barley and rye all together like I did when I started Atkins. After about a month and I felt better than I could ever remember, I figured it had to be something!

I'm not alone either, there are a few on the forums at the Atkins site who have also discovered gluten intolerance or outright Celiac since starting Atkins.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.