Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About The Mental And Emotional Side


whyme

Recommended Posts

whyme Newbie

I am new to the site. I am 37 and battled "food poisoning" symptoms for a year and a half. I would be up all night in sever cramping, nausea, headache, etc. I went to three doctors. Two of them told me I had acid reflux. I went on two diferent medicines and nothing helped. After a week of eating granola bars only because I had ZERO appetite, going thru shakes and other listed side effects, I truly thought I was losing my mind. I met with a new doctor, an internal doc. I told her everything and she immediately said, "go Gluten free". So I did and man what a life changing result. However, I would cheat and it would kick me in the butt. Anyway on to my question, why does this bring on such bad depression, anxiety, such emotional stress. I cry and i feel like I should be on pression/anxiety medicine. it is so hard for me to describe how I feel. Not just my stomach, diahrrea, TIRED, headaches, but the emotional stuff is a killer. After my body settles down, I am mentally fine. Any help with this? I really don't want to go on medicine for depression/anxiety, it seems like it flares up with gluten attacks. I am OBVIOUSLY done cheating!! The last 24 hrs have been terrible!!!

Thanks,Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I have been gluten-free for almost 2 weeks. I'm still a bit emotional because it is a big life change, could effect my kids, could result in other illness, etc. I keep getting headaches but good high cacao chocolate helps a little. It supposedly works on endorphins in the brain (so does exercise). Try to find something happy. I bought red spoons, spatulas,toaster, etc. That was fun. You'll get thru. Good luck.

ciavyn Contributor

Hello! And welcome to your (our) new world! It does get easier - I promise.

Re: depression and mental issues. I'm diagnosed ADD, minor OCD, depression, PTSD and have issues with anxiety. I have never been medicated, by choice. Here's what I've learned.

Depression feeds on our belief that nothing will ever get better. We are useless, helpless, no one really cares about us, etc. Anyone with depression knows the little chorus that feeds your brain when you are sinking into depression. But here's what the rest of you -- the non-depressed part -- knows after your first bout of it: this too shall pass. And that is what you have to focus on. The only reason I managed to go without meds is because I clued in that 1. I have control over how I behave and react to things. I do NOT control my emotions. 2. Tomorrow is another day, and I know from experience that things will improve. Maybe not this moment, maybe not tomorrow, but they will soon. 3. It is okay to take a mental health break. For some reason we often feel like we should be able to shake everything off and go back to being "normal." You've got to give yourself permission to take a mental health break, relax, pull yourself together, and then get back out there. I'm not saying take a week, but allow yourself a couple of hours doing something you enjoy that doesn't demand too much of you. Then the next day, pull yourself back up and get out there. And for the grand finale, 4. Everyone has issues. You aren't alone and you aren't "special" because this is your issue. We've all got them, and you are entitled to work through yours the best way you can. So don't be so hard on yourself! Give yourself time and space to work through this, and request the same of those around you. If you don't take care of you and respect YOU, why should those around you?

Hang in there -- this does get easier. I promise.

ravenwoodglass Mentor

However, I would cheat and it would kick me in the butt. Anyway on to my question, why does this bring on such bad depression, anxiety, such emotional stress. I cry and i feel like I should be on pression/anxiety medicine. it is so hard for me to describe how I feel. Not just my stomach, diahrrea, TIRED, headaches, but the emotional stuff is a killer. After my body settles down, I am mentally fine.

Hello and welcome. The reason why gluten is having the 'mental' effects that it is having with you when you get glutened is because for you the antibodies are "attacking" the brain. Your not alone in this effect. For me it helps that I know it is gluten induced and that the emotional stuff will pass. As long as I don't keep reglutening myself.

Gluten can really do a lot of damage to the nervous system and the brain so hopefully you'll be able to find ways to avoid 'cheating' soon.

whyme Newbie

I have been gluten-free for almost 2 weeks. I'm still a bit emotional because it is a big life change, could effect my kids, could result in other illness, etc. I keep getting headaches but good high cacao chocolate helps a little. It supposedly works on endorphins in the brain (so does exercise). Try to find something happy. I bought red spoons, spatulas,toaster, etc. That was fun. You'll get thru. Good luck.

Exercise has always been a big part of my life, however, I herniated a lower disc in my back last year and have been recovering from that. It has been a bad 2009 and hoping 2010 is nuch better!! :) thanks for the reply.

whyme Newbie

Hello! And welcome to your (our) new world! It does get easier - I promise.

Re: depression and mental issues. I'm diagnosed ADD, minor OCD, depression, PTSD and have issues with anxiety. I have never been medicated, by choice. Here's what I've learned.

Depression feeds on our belief that nothing will ever get better. We are useless, helpless, no one really cares about us, etc. Anyone with depression knows the little chorus that feeds your brain when you are sinking into depression. But here's what the rest of you -- the non-depressed part -- knows after your first bout of it: this too shall pass. And that is what you have to focus on. The only reason I managed to go without meds is because I clued in that 1. I have control over how I behave and react to things. I do NOT control my emotions. 2. Tomorrow is another day, and I know from experience that things will improve. Maybe not this moment, maybe not tomorrow, but they will soon. 3. It is okay to take a mental health break. For some reason we often feel like we should be able to shake everything off and go back to being "normal." You've got to give yourself permission to take a mental health break, relax, pull yourself together, and then get back out there. I'm not saying take a week, but allow yourself a couple of hours doing something you enjoy that doesn't demand too much of you. Then the next day, pull yourself back up and get out there. And for the grand finale, 4. Everyone has issues. You aren't alone and you aren't "special" because this is your issue. We've all got them, and you are entitled to work through yours the best way you can. So don't be so hard on yourself! Give yourself time and space to work through this, and request the same of those around you. If you don't take care of you and respect YOU, why should those around you?

Hang in there -- this does get easier. I promise.

I do tell myself that eryone has problems and this one is all mine. I do a good job throwing a pitty party for myself. usually alone in my bedroom bawling my head off with no one around. I do need to remember that is shall pass. I really need to do a better job and just cutting out Gluten. It is hard to believe that I have ate bread and pasta all my life and then this flares up out of no where. But since going gluten-free I have felt much better. Thank you for your response. Lisa

whyme Newbie

Hello and welcome. The reason why gluten is having the 'mental' effects that it is having with you when you get glutened is because for you the antibodies are "attacking" the brain. Your not alone in this effect. For me it helps that I know it is gluten induced and that the emotional stuff will pass. As long as I don't keep reglutening myself.

Gluten can really do a lot of damage to the nervous system and the brain so hopefully you'll be able to find ways to avoid 'cheating' soon.

That is very helpful to know this. I really was htinking maybe I need medicine, which i HATE to take. I have battled the idea for months. Now I feel like I don;t have to battle that one anymore. There really is a reason and I CAN control it. Thank you so much!!

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

AS hard as it is, you must stop cheating on the diet and be extra clean with your kitchen, beauty products, etc. It's not worth it. No food is worth suffering and you can make anything gluten free at home anyway.

In addition to the antibodies attacking the brain, there is also a connection between the brain and intestines where inflammation in the intestines directly affects the parts of the brain that control anxiety, depression, etc. I don't know all the scientific terms for it, but the GI doc that misdiagnosed with IBS did have a lot of knowledge about the brain/intestines connection.

Anxiety attacks and depression were the first thing to go away within days of being gluten free.

whyme Newbie

AS hard as it is, you must stop cheating on the diet and be extra clean with your kitchen, beauty products, etc. It's not worth it. No food is worth suffering and you can make anything gluten free at home anyway.

In addition to the antibodies attacking the brain, there is also a connection between the brain and intestines where inflammation in the intestines directly affects the parts of the brain that control anxiety, depression, etc. I don't know all the scientific terms for it, but the GI doc that misdiagnosed with IBS did have a lot of knowledge about the brain/intestines connection.

Anxiety attacks and depression were the first thing to go away within days of being gluten free.

That is very interesting to me. I had no idea there was such a connection between the intestines and brain. I am definitely committed now. This was an eye opener and reminder of how bad this can be. I was ALOT worse last summer and this incident was a quick reminder of that time. Thank you fro responding. And you are right, when I start feeling better, the anxiety and depression is the first to go. It is the first to come on and first to leave. Thank you!!

jerseyangel Proficient

I had no idea there was such a connection between the intestines and brain.

The majority of serotonin is in the intestine. My GI describes the intestine as a "second brain".

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.