Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those That Had A Biopsy.

Jeffiner

Recommended Posts

Jeffiner Apprentice
Jeffiner
Posted

How detailed of a result did you get? Did the doctor just look for the celiac disease or did they look for other conditions associated with it at the same time? Did you just get a simple, "you have celiace disease" ? What kind of information did you get?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

How detailed of a result did you get? Did the doctor just look for the celiac disease or did they look for other conditions associated with it at the same time? Did you just get a simple, "you have celiace disease" ? What kind of information did you get?

Here is my pathology report from my small bowel biopsy:

DIAGNOSIS

Duodenum, 3rd part, biopsy:

1. Duodenal mucosa with acute and chronic inflammation and villi blunting. See comment.

2. Negative for parasites and malignancy.

Comment

The boipsy demonstrates lamina propria expansion with predominately chronic inflammation consisting of lymphocytes and plasma cells. Neutrophils are also present within the lamina propria and crypts. Villi blunting with focal crypt hyperplasia is seen. Increased intraepithelial lymphyocytosis is mild and is below that which woud be expected in celiac disease. However, serologic testing may be warrented if there is clinical suspicion of a gluten sensitive enteropathy as serologic changes precede clear cut histologic changes. No evidence of parasites is seen. Clinical correlation is required.

This was Oct. 24, 2008. When I had the egd they also took a biopsy in the stomach for H pylori and it was negative. I was also told I had distal esophagitis and a small hiatal hernia. I had already had a positive tTg a month before this and the GI doctor called to tell me that the duodenal biopsy was consistent with early celiac sprue. I've been gluten free since.

plantime Contributor
plantime
Posted

When I got my diagnosis, the doctor was looking for ulcers. He found red inflamed patches, so he took biopsies from them. The only report I got was the referring doctor reading me the lab's conclusions, that the villi were blunted, indicating celiac disease. By that point, however, I had been telling doctors that I have celiac disease, and I had been following a glutenfree diet. I think the doctor figured all I needed to know was that I was right, and that I needed to keep following a glutenfree diet.

Reba32 Rookie
Reba32
Posted

I got color photo print outs of everything from my throat on down! Each photo is captioned to explain what it is, and what the doctor saw in it. I've got a medium hiatal hernia, atrophy and erythmea in the second part of the duodenum and erosions in the antrum and distal body.

No ulcers though! :D

At my follow up, the PA said that all of it was positive for Celiac Disease, but on the 1 to 5 scale that they normally use, I was only a 2 for intestinal damage. However, that was after a 7 or 8 week gluten challenge, after I'd been gluten free for about 9 or 10 months!

So yes, I'd say gluten can do it's damage quite quickly and quite handily!

Jeffiner Apprentice
Jeffiner
Posted
  • Author

Thank you for the replies. I forgot to subscribe to my thread so I didn't realize anyone had replied yet. :) I am just hoping that he checks for everything while he is in there.

Peace41 Rookie
Peace41
Posted

Thank you for the replies. I forgot to subscribe to my thread so I didn't realize anyone had replied yet. :) I am just hoping that he checks for everything while he is in there.

Hope he does for u too. For my experience I went to an ENT first to make sure there was no obstruction in my throat and the Ent said everything was fine along with the tests, but the Gastro guy, told me I had dysphagia, along with the endo and dilatation they did the biopsy, and told me he would take a good look at my throat and everything. He then said, that he hoped the dilatation would not make it worse, that didn't make me feel very good. But I had it, and and I first got a photo with a written out quick report with a diagram and that they will then follow up with a more detail report to my GP. When I went back the week later, he told me that something came back from the biopsy, but I had to wait a moment to know what it was. And then he said I am gluten intolerant, and I said like Celiac diseas and he said yes. And then told me I had bacteria and we couldn't do anything about that right now. He also told me I had lining damage but I forget in which part of the digestive system, probably the bowels. And on the written report it came back with Esophgigitis and Gastritis, to go along with the gerds I already have and IBS and everything else. He did not go thrugh it thoroughly with me, but I am going to leave that for me to go through it throughly with my doctor, who is excellent. And said that we are only going to de the dilatation and diet at present, I can't have antibiotics. And deal with it, very slowly, one thing at a time. But I am also going ahead to get allergy tested as well.

Its worry before u go through it, but afterwards its good to know exactly what u r dealing with, and then u can work with that. So hope it all goes well with u, if u feel up to sharing, u can update us.

I am having another dilatation of friday and they got written down and endo, so I have to make sure they just do the dilatation.

Peace 4 1

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.