Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My First Gluten Free Torture


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

We live by a cute little beachtown with a Main street that has all those adorable shops, etc. So of course there is an amazing little family owned bakery.

I haven't been in there since I got diagnosed, and today my kids wanted cookies. The smell in there is DIVINE. They have the best cupcakes and cinnamon rolls ever ever ever.

I haven't felt deprived so far, but today was definitely a knuckle biter. That smell is heavenly!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I've been gluten-free about 3 weeks. Last Sat, 17 yr old son said "let's get pizza!" Then I think he realized what he was saying because he got a sheepish look & looked at the floor. Weather was bad but Dad said "we can go out boys." Fortunately, I thought of gluten-free Godfathers so all were happy. Then he was going to get burger & fries from local favorite greaseburger place & asked if he needed to eat it there or could bring home. 14 year old hiding stuff like pretzels so I won't want them. After they've been in a 14 year old boys room, would you want them?

Anyway: the point is: I feel you. My guys try but sometimes its hard. I think it will get easier when I don't remember how glutenous stuff tastes.

ravenwoodglass Mentor

It won't be too long before you find great gluten free versions of your favorite 'junk' foods. Gluten Free Pantry makes great cake mixes and has a French Bread mix that makes great pizza dough. Gluten free pretzels surprisingly taste very much like wheat ones. Glutino makes some good ones and I love the Wylde pretzels because they don't have soy and taste great.

If you keep gluten free versions of the treats your family enjoys it can make it easier to feel less deprived.

sandsurfgirl Collaborator

It won't be too long before you find great gluten free versions of your favorite 'junk' foods. Gluten Free Pantry makes great cake mixes and has a French Bread mix that makes great pizza dough. Gluten free pretzels surprisingly taste very much like wheat ones. Glutino makes some good ones and I love the Wylde pretzels because they don't have soy and taste great.

If you keep gluten free versions of the treats your family enjoys it can make it easier to feel less deprived.

Yeah I know. It's a lot about the experience too. It's that particular bakery, at the beach, etc. KWIM? You see couples all the time sitting on the little bench sharing a cinnamon roll on a cold night type of thing. It's romantic and sweet and fun.

Kategrad7 Newbie

We live by a cute little beachtown with a Main street that has all those adorable shops, etc. So of course there is an amazing little family owned bakery.

I haven't been in there since I got diagnosed, and today my kids wanted cookies. The smell in there is DIVINE. They have the best cupcakes and cinnamon rolls ever ever ever.

I haven't felt deprived so far, but today was definitely a knuckle biter. That smell is heavenly!

I am with you! I am not very far into my gluten-free diet but I can already see the social repercussions. I think that is going to be the hardest part. Im still in school, so what do I do when a bunch of friends want to go out for pizza, sit there with nothing to eat? That just makes them feel awkward. I feel like this disease is going to cause social isolation. "Its just food!" That is what I keep telling myself, but really our society bases so many social interactions around food, that its hard not to think of a gluten free diet as social suicide.

lizard00 Enthusiast

I am with you! I am not very far into my gluten-free diet but I can already see the social repercussions. I think that is going to be the hardest part. Im still in school, so what do I do when a bunch of friends want to go out for pizza, sit there with nothing to eat? That just makes them feel awkward. I feel like this disease is going to cause social isolation. "Its just food!" That is what I keep telling myself, but really our society bases so many social interactions around food, that its hard not to think of a gluten free diet as social suicide.

I felt the same way, too, in the beginning. I'm not in school, but I had the same feeling that oh no! I can't go out with my friends to restaurants... but I'm a little over 2 yrs into this. What I've learned: you explain it quickly, in a way that makes sense, and don't make a big deal out of it. Eat before you go, have a drink with them or whatever, and enjoy being with your friends. Which is really what it's about, not eating pizza. Right? In my experience, the less of a deal you make out of it, the less it freaks out your friends. My friends and family know that I will not eat anything that I can't be sure is gluten-free, no matter where I am or what we are doing. So be firm, but don't let it be your focus. Enjoy hanging out with your friends.

Shannonlass Apprentice

This happened me last week. I was only a few days into my gluten-free diet and trying my hardest when into the staff lunch room arrives a huge black forest gateau, a chocolate cake and a box of dunkin' donuts. I felt really sorry for myself but I didn't give in but boy it was tough. Prior to my positive diagnosis I'd have had all 3!!!

I felt the same way, too, in the beginning. I'm not in school, but I had the same feeling that oh no! I can't go out with my friends to restaurants... but I'm a little over 2 yrs into this. What I've learned: you explain it quickly, in a way that makes sense, and don't make a big deal out of it. Eat before you go, have a drink with them or whatever, and enjoy being with your friends. Which is really what it's about, not eating pizza. Right? In my experience, the less of a deal you make out of it, the less it freaks out your friends. My friends and family know that I will not eat anything that I can't be sure is gluten-free, no matter where I am or what we are doing. So be firm, but don't let it be your focus. Enjoy hanging out with your friends.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yeah I know. It's a lot about the experience too. It's that particular bakery, at the beach, etc. KWIM? You see couples all the time sitting on the little bench sharing a cinnamon roll on a cold night type of thing. It's romantic and sweet and fun.

Yea I do know what you mean. It is hard but it will hopefully get better in time. It is great to feel better but I do think we go through a 'mourning' period when we realize how much is having to change in everything we do. My DD is getting married soon and when I asked her if she had asked about gluten free options for me at the reception she said no. I was really hurt at first until she explained that as sensitive as I am she would not trust the place not to CC me. I still feel a little sad that I won't even be able to taste a piece of her wedding cake. Maybe I will bring a little gluten-free cake for myself but it just won't be the same.

Roadki11 Newbie

You could always ask if they do any gluten free stuff! A local butcher does gluten-free sausages to order (done at the start of the day on a clean machine with the standard rusk filled sausages done later minimum 5Kg order). Although I imagine controlling the contamination in a bakers would be far trickier than in the butchers.

plantime Contributor

I tell my family and friends not to worry about what I will eat, just tell me where we are going and when. Then I take care of/make arrangements for myself. I feel better knowing that I have control, and they have one less thing to worry about. Sometimes it means carrying my food with me, sometimes not. You will go through the mourning period, and it will get easier.

Until then, {{{hugs}}}

Nightingale8472 Rookie

I am with you! I am not very far into my gluten-free diet but I can already see the social repercussions. I think that is going to be the hardest part. Im still in school, so what do I do when a bunch of friends want to go out for pizza, sit there with nothing to eat? That just makes them feel awkward. I feel like this disease is going to cause social isolation. "Its just food!" That is what I keep telling myself, but really our society bases so many social interactions around food, that its hard not to think of a gluten free diet as social suicide.

Most pizza places have salad...what about a green salad with just oil and vinegar, or bring your own salad dressing?

Something I've noticed when eating out with my friends is that they tend to feel less uncomfortable digging into the rolls or bread basket at the table if I've ordered a salad and asked the waiter to bring it at the same time as the bread. As a society, we've been conditioned that it's polite not to eat unless everyone has their food, so it's awkward when one person isn't eating anything, especially if people know it isn't because you don't want to, it's because you can't.

jenngolightly Contributor

Sprouts has mini salad dressing packets that you can throw in your bag for times like these. I love them. I used to carry around the spritz kind of salad dressing, but it was so inconvenient and my checkbook smelled like balsamic vinaigrette all the time. Almost all the places that friends/coworkers suggest we eat on the spur of the moment have lettuce, so if I can't order something gluten-free, I just order a plain salad and whip out my handy-dandy salad dressing packet. I also whip out craisins, nuts, and other goodies that I ALWAYS carry. They either act as snacks, or they go into my salad to spice it up a little. My bag is like a mini shopping bag with tuna (the bag kind) and fork, craisins, salad dressing, nuts, energy bars, Glutino pretzels, orange (they don't bruise like an apple does), dry herb mixes(for when the restaurant insists on making your meal absolutely plain because they don't know how else to alter a recipe that's got gluten in it - I just sprinkle the herbs over my food to jazz up the flavor)...

I'm always ready for an impromptu lunch meeting! And I'm always happy with what I have to eat.

newgfcali Rookie

Sprouts has mini salad dressing packets that you can throw in your bag for times like these.

All great ideas!

I've been looking for salad dressing packets but can't find any locally. What brand does Sprouts carry? Maybe I can find them online.

Nightingale8472 Rookie

All great ideas!

I've been looking for salad dressing packets but can't find any locally. What brand does Sprouts carry? Maybe I can find them online.

Most of the dressings at Carl's Jr. are gluten free. I ask my friends to grab me some when they eat there. Some McDonalds have Newman's Own dressings that are gluten free (specifically the Newman's Own

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    5. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.