Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Biopsy

precious831

Recommended Posts

precious831 Contributor
precious831
Posted

So my biopsy results came and the doc told me it was negative and that I don't have celiac and as usual was urged to continue to eat gluten. I said I'd rather stay gluten-free. It's frustrating that I put myself thru that miserable month and a half of consuming gluten and it was negative anyway. I was so sick from eating it and I really don't think a month and a half was enough time. I really wish I had not gone thru the endoscopy and colonoscopy!

My symptoms from gluten consumption are kind of extreme(to me at least), now I'm also wondering if maybe I'm actually allergic to wheat. Here are my symptoms:

acid reflux, swollen joints, anemia, diarrhea, bloating, severe cramping, blistering rashes/itching, severe headaches, brainfog, nausea, dizziness, bladder pain(I have IC and when I am eating gluten, it flares up), fibromylagia.

Any thoughts? Thanks. Do you think I should try getting the Enterolab test?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

So my biopsy results came and the doc told me it was negative and that I don't have celiac and as usual was urged to continue to eat gluten. I said I'd rather stay gluten-free. It's frustrating that I put myself thru that miserable month and a half of consuming gluten and it was negative anyway. I was so sick from eating it and I really don't think a month and a half was enough time. I really wish I had not gone thru the endoscopy and colonoscopy!

My symptoms from gluten consumption are kind of extreme(to me at least), now I'm also wondering if maybe I'm actually allergic to wheat. Here are my symptoms:

acid reflux, swollen joints, anemia, diarrhea, bloating, severe cramping, blistering rashes/itching, severe headaches, brainfog, nausea, dizziness, bladder pain(I have IC and when I am eating gluten, it flares up), fibromylagia.

Any thoughts? Thanks. Do you think I should try getting the Enterolab test?

Could very well be Celiac, or it could be gluten intolerance. Since you feel better off gluten, why not just stick with it? Enterolab might be useful for you if you need a "firm" answer in order to stick with the diet, but most MD's do not recognize Enterolab testing, and do not consider it a tool for diagnosis.

mushroom Proficient
mushroom
Posted

Might add that for most doctors non-celiac gluten intolerance flies totally below the radar. There really is such a thing (it could well be latent celiac or you may never develop diagnosable celiac) but the symptoms are just as real and the treatment is the same. It is not okay to continue eating gluten when you react badly to it. I would go gluten free and stay that way if you want to be healthy.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...