Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting Over Gluten Free

imsohungry

Recommended Posts

imsohungry Collaborator
imsohungry
Posted

Hi everyone,

I have not posted in many years. I went off the gluten free diet because I was told that I do not have Celiac. Well, three years later the stomach problems are worse than ever. I am staying up at night and sleeping on the couch to avoid waking my husband and toddler every time I need to run to the bath. Sometimes I'm skipping dinner altogether, and I rarely eat when out of the house.

Imodium, aciphex, and lomotil are what I use to get by from day to day.

The ONLY time in my life I have ever had a normal stomach was when I was on the gluten-free diet for a few years. I have decided to start gluten-free again. But WOW I have a lot to remember!!!

Just wanted to reintroduce myself, and I look forward to getting to know you and learning from others on this site again.

-Julie :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bobbijo6681 Apprentice
Bobbijo6681
Posted

Welcome back!!! This is the best place to get information and help! I have found that I have learned more here than from both my GI Dr, and the Nutrionist he sent me to.

Hopefully you will see positive changes soon!!

Reba32 Rookie
Reba32
Posted

remember, just because you don't have diagnosed Celiac, doesn't mean you're not gluten intolerant. Had you continued on eating gluten, it is entirely possible that you could become Celiac if you are gluten intolerant. I have read in many places that Celiac is just gluten intolerance gone horribly wrong.

You'll be back into the swing of things in no time! Not much has changed in 3 years I'm sure. Just don't eat anything with wheat, barley or rye in it. ;)

newgfcali Rookie
newgfcali
Posted

I have read in many places that Celiac is just gluten intolerance gone horribly wrong.

Gluten intolerance: :)

Gluten intolerance gone horribly wrong: :angry:

lol!

sandsurfgirl Collaborator
sandsurfgirl
Posted

I was told by my OB that I might have celiac and she sent me to a GI. He never tested me and gave me a long list of reasons why I didn't have it. I was so relieved! I mean who wants to have celiac and do that restrictive diet?

Well... my health got worse and worse. I had two horrific pregnancies and my son barely made it out alive when he was born.

I finally ended up with yet another attack that sent me to the ER and the ER doc had celiac! I told him my story and he said to get tested, but regardless of the tests go gluten free. He told me about the inaccuracy of the tests.

I did come up positive for celiac, but if I didn't I was doing it no matter what. I am so sorry some idiot did the same thing to you. Go gluten free and don't look back. You DO have celiac. For me, I make no distinction between gluten intolerance and celiac. It's so easy to miss the damage in the intestines if they biopsy the wrong part. The symptoms and treatment are the same. Call it celiac and move on.

Welcome back to a life of health!

imsohungry Collaborator
imsohungry
Posted
  • Author

Thank you everyone. I hope to be healthy again soon! Wishing you all the best. :)

-Julie

ravenwoodglass Mentor
ravenwoodglass
Posted

Hi everyone,

I have not posted in many years. I went off the gluten free diet because I was told that I do not have Celiac. Well, three years later the stomach problems are worse than ever. I am staying up at night and sleeping on the couch to avoid waking my husband and toddler every time I need to run to the bath. Sometimes I'm skipping dinner altogether, and I rarely eat when out of the house.

Imodium, aciphex, and lomotil are what I use to get by from day to day.

The ONLY time in my life I have ever had a normal stomach was when I was on the gluten-free diet for a few years. I have decided to start gluten-free again. But WOW I have a lot to remember!!!

Just wanted to reintroduce myself, and I look forward to getting to know you and learning from others on this site again.

-Julie :)

I am glad to hear you are going back to the diet. The having to get up in the middle of the night thing is unfortunately all to familiar. :angry: I really don't miss those days at all and hopefully they will be a thing of the past for you also very soon.

You'll get the hang of things again soon and we are here if you have any questions. There are a lot more products for us every day and hopefully you will find the changes easier than they were the first time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sandsurfgirl Collaborator
sandsurfgirl
Posted

Since you have been off for so long, you need to heal again. Eat clean and simple and avoid gluten free foods for awhile. Don't be surprised if you have withdrawals get sicker for a bit. Most of us do.

psawyer Proficient
psawyer
Posted

Welcome back, Julie! :)

mamaw Community Regular
mamaw
Posted

Hi Julie

Welcome back---- has it been that long? Time sure does fly by... But I remeber you....

mamaw

cyberprof Enthusiast
cyberprof
Posted

Thank you everyone. I hope to be healthy again soon! Wishing you all the best. :)

-Julie

I remember you too, Julie. Welcome back!

I hope you feel great soon! Feeling good is the best revenge...or something like that!

~Laura

missy'smom Collaborator
missy'smom
Posted

I remember you too. Welcome back! Hope you're feeling much better soon. I seem remember having some laughs with you on a thread about flops and kitchen disasters.

imsohungry Collaborator
imsohungry
Posted
  • Author

LOL...yep, that was me. LOTS of kitchen disasters. ;)

I remembeer you all too!

The people who are helpful, funny, positive, and nonjudgmental are the ones who always stand out in my mind...that goes for any site I'm a "regular" on.

Thank you all for responding to my post. B)

mamaw Community Regular
mamaw
Posted

Julie

I think once you get started again it will all come back to you quickly. And hopefully the cooking blunders will never cross your path again!!!! You know one mistake & one learns for life!!!!

good luck with that!

You will do great just stick to the gluten-free lifestyle so you can be healthy & happy....

blessings

mamaw

missy'smom Collaborator
missy'smom
Posted

LOL...yep, that was me. LOTS of kitchen disasters. ;)

I remembeer you all too!

The people who are helpful, funny, positive, and nonjudgmental are the ones who always stand out in my mind...that goes for any site I'm a "regular" on.

Thank you all for responding to my post. B)

I appreciated that thread so much. If you are the one who started it, thank you! I rarely laugh at things and take everything so seriously but I remember getting alot of good laughs on that one and it really helped at the time. I'm happy to say that I've made some good progress since then. I don't keep a graveyard of flops in my garage anymore! :ph34r::lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,012
    • Most Online (within 30 mins)
      7,748
    Anna Costa
    Newest Member
    Anna Costa
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.